|English Version||Greek Version|
Hello, I am Dimitra Stafilia, the ISN Translator for ISN: Greek version. My mum has been suffering from scleroderma since 1992.
I started looking into her disease when I went to University. I visited the Royal Free Hospital in London and I wrote to the American Scleroderma Association. However, there was no documentation I could get hold of easily in Greek and there was no way to know whether her doctor was in touch with the latest developments or whether he performed the necessary tests.
I believe that the patient should be able to know about, question and agree on the treatment, and this was not happening in my mum's case. Thus my interest in translating the pages of ISN's SCLERO.ORG website, to give other Greek patients the opportunity to know a little bit more and to know that there are other people with similar problems.
As for myself, I am a qualified translator working as a project manager in London, who thinks that any academic or professional achievement is not enough, as I am not around to support my mother psychologically, so this is my small contribution.
You can read more about my personal story on this site at Dimitra Stafilia: Daughter of Systemic Scleroderma Patient (English Version) and Dimitra Stafilia: Greek Version. You may email me anytime.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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