ISN Representative's Profile Submission or Update Form

Thank you for volunteering for the International Scleroderma Network. We offer to post a background page on the site for each of our volunteers. If you have been accepted as an ISN volunteer, use this form to have your page created, changed, or deleted.

Languages: Please submit this form in English. For translators, we will email you a copy of your completed form and ask you to translate it into your native language. We will correct spelling or grammar before we post your web page, but please proof it carefully when it is posted online. We always want your page(s) to be done to your satisfaction!

Your Full, Real Name:

This is required so that your copyright release is valid. This information will not be released to any third party without your permission. See our Privacy Policy..

Your Full NameOn Bio Page:

This is the name you want us to use for your ISN biography page. It is always risky to use your full, real name on the Internet. Volunteers who wish to provide information about themselves, yet remain anonymous, may use an assumed name.

Your Email Address:

This is required in order for us to be able to contact you regarding your story submission. It will not be posted online without your permission.

Email Release: Is it okay to post your email address on our website? This might produce unsolicited or unwanted mail. However, it may also let people contact you regarding your ISN projects. Check one:

Yes, it is okay to post my email address on the website.
No, please do not post my email address on the website.

Copyright Release for Web Site and Print Materials. Do you give the International Scleroderma Network the right to post the biographical information you provide on this website, or in other ISN printed materials, with the understanding that you may submit changes to your website listing, or request its removal, at any time? Check one: Yes, you have my Copyright Release for ISN website and print use.
No (Please stop here, and email Shelley with your concerns about this.)

Titles/Roles:Please list all your ISN titles or roles.
Example Titles: Greek Translator, Email Support Specialist, Greek Medical Editor, Story Editor. If you are uncertain about your official title(s), just enter a description.
ISN Title #1:
ISN Title #2:
ISN Title #3:

Your Biographical Information

Casual Tone and First Person. We want your page to sound friendly for our site visitors. Therefore, we ask you to begin with a personal greeting, such as "Hello, I'm…". Please refer to yourself in the first person such as "I, me, my."

We also want people to appreciate the talents and experience you bring to our team. So please include as much detail as you want, regarding your education or employment background.

Finally, people will want to know how you became involved with the International Scleroderma Network.

Example 1: My name is Dr. David Johnson and I am the ISN Greek Translator and ISN Greek Medical Editor. I am Chief of Rheumatology at Bigwig University in Zurich, Switzerland…

I graduated from BigTime University School of Medicine.

I have conducted several scleroderma studies, as follows…

The first scleroderma patient I met had a profound impact on my life and on my choice of a medical specialty, as I wanted to help combat this disease. I am happy to be a part of bringing more information about scleroderma to people in my native language, through my work with the ISN.

Example 2: Hello, I am Trudy Winters, your ISN Pulmonary Guide from Timbuktu. I was diagnosed with Diffuse Scleroderma in 1998. I used to work as a secretary for a major insurance company, but I had to retire on disability a few years ago. I enjoy reading mystery novels and gardening. My children help with a lot of household and garden chores because my hands are also badly affected by scleroderma.

I have Pulmonary Fibrosis, and I am on oxygen, which is why I chose to help as a Guide for the pulmonary pages. Please feel free to email me with any questions or information you may have on this topic.


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Winn Schillberg
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In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

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Edina, MN 55435-4702 USA

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