Publishing Team for the International Scleroderma Network

We publish the Voices of Scleroderma book series!

Publishing: Books

Chair of Archivist Committee

Devlin, Judith Thompson


Devlin, Judith Thompson
Ensz, Shelley

Senior Editors

Dock, Maia
Seminara, Lynda
Stanley, Erin

Contributing Experts

Barg, Gary
Black, Professor Carol
Castellanos, Francisco
Czirják, Dr. László
Dziadzio, Dr. Magdalena
Falcini, Dr. Fernanda
Howell, Kevin
Iqbal, Dr. Asim
Korn, Dr. Joseph (In Memory)
Langenfeld, Carol
Lehman, Dr. Thomas
Mahmud, Dr. Tafazzul
Malcarne, Dr. Vanessa
Matucci-Cerinic, Dr. Marco
Miniati, Dr. Irene
Moorthy, Dr. L. Nandini
Trojanowska, Dr. Maria

Artists and Illustrators

Bridgman, Ione (Retired)
Ensz, Shelley
Knaggs, Sherrill (In Memory)
Paulmenn, Janet
Tarro, Judy (In Memory)
Volz, Lisa (In Memory)


Patane, Christine

Book PR in U.S.

Friedman, Marsha

Book PR in U.K.

Lowe, Wayne
Dickson, Steve (for interviews)
Lowe, Barbs (for interviews)


Many ISN Translators also worked on our book series.

Publishing: Brochures

Desktop Publisher

Open Position: Apply

Publishing: Newsletter

Senior Medical Editor

Seminara, Lynda Garry


Castellanos, Francisco
Devlin, Judith Thompson
Ensz, Shelley
McClelland, Jeannie
Willis, Janey

Go to ISN Support Team
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.