Support Services Team for the International Scleroderma Network

ISN Director of Support Services

Responsible for all areas of community, affiliated, and online support groups for the ISN, in the U.S. and worldwide.

Open volunteer position. Apply now.

Support: Blogs

Blog Manager

Frowde, Jo


Justis, Serena 'Barefut' (Retired)
Lowe, Barbs (Retired)
Roar, Penny (Retired)
Thorpe, Amanda
Thorpe, Michael

Support: Skype Chats

Jo Frowde
Kraft, Susie

Support: Email

Email Support (English)

Open Volunteer Position. Apply.

Email Support (English: Eye Involvement Only)

Irvin, Dr. Liz

Email Support (Italian)

Abati, Angela

Email Support (Español)

Open Position: Español. Apply.

Support: Forums

Please read our Sclero Forum Guidelines. Submit reports about forum issues (difficulty registering or logging in, spammers, troublesome messages, etc.) to [email protected]. This notifies both the Forums Manager and Forums Director.

Sclero Forums Manager

Frowde, Jo

Assistant Manager

Open Volunteer Position. Apply.

Senior Support Specialist

Thorpe, Amanda

Support Specialists

Roland, Pamela 'Sweet'
Trewartha, Judy

Support: ISN Support Groups and Affiliates

Acosta, Matilde: Venezuela
Castellanos, Francisco: Colombia
Le Gendre, Susan: Trinidad and Tobago
Myohanen, Emmi: Finland
Thorpe, Amanda: U.K.

The ISN has also has outreaches in 23 languages and dozens of countries! See Languages/Countries.

Support: Phone Hotline (English)

Ensz, Shelley
Roland, Pamela 'Sweet'
Thorpe, Amanda

Go to ISN Translation Team
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
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Edina, MN 55435-4702 USA

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