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Confidentiality of data relating to individual patients and visitors to a medical/health Web site, including their identity, is respected by this Web site. The Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
Where appropriate, information contained on this site is supported by clear references to source data and, where possible, we provide specific HTML links to that data, as well as the date of that item. The date when a clinical page was last modified will be clearly displayed (e.g. at the bottom of the page), but the links to individual items on that page are most important, as other page changes might be insignificant.
Our website is generally updated every weekday, with new items posted in our Newsroom. The most recent information can always be found on our English pages, rather than in the translated pages due to turnaround time and less frequent updating of translations.
Sometimes, however, we might need information from you, such as your name or email address, if you choose to purchase a product directly from this website, or subscribe to our newsletter, etc.
Please note that we have no control over the privacy policies of any other web sites, even those of our advertisers.
When you choose to give us this personal information, we will try to let you know how we will use such information, and we will also seek to protect the information you share with us.
If you ask us specific questions via phone or email, we may send your inquiry to other ISN Team Members, including our Medical, Legal, Scientific or Support services representatives, to seek their input or review. Sometimes we seek advice of people outside of the ISN, such as doctors, translators, social workers or hospice care workers. If this concerns you, you can protect your privacy by using a pseudonym, along with a web-based email identity (such as Hotmail) so that your actual identity is not readily available.
If your inquiry portends severe depression or suicide, we will refer you to your nearest emergency room or suicide hotline. We cannot handle any mental disturbances such as depression, suicidal ideas, violent tendencies, etc. We can only attempt to answer non-urgent and general questions regarding our website topics.
We regularly analyze site inquiry trends to see how scleroderma services can be improved. Sometimes these results may be used for scleroderma research purposes.
If you contact us directly for information, submit your story, or make donations, we may contact you in the future to answer your question, follow-up, or otherwise communicate about our nonprofit agency. If you don't want us to contact you, or to publicize your name as a donor, just let us know. We will not sell your contact information to any other organization.
Our hit counter program logs user sessions, however your name remains anonymous to us. We analyze this data for trends and statistics, such as which browsers our visitors are using, or which countries they are from. We have no information personally identifiable to you from this source.
Some web pages may use "cookies," which are small files that may be placed on your hard disk for record-keeping purposes. Cookies can make your next visits to the web page simpler and faster. Your browser can be set to let you know when you receive a cookie, so you can decide whether or not to accept it. However, with cookies not allowed, some web pages may not display properly or you won't be permitted access to certain information.
If you have any feedback about our privacy practices, want to stop getting information from us, or want to make updates or corrections to information provided to our website, please contact us by sending an email to [email protected].
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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