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硬皮病分型 (Types of Scleroderma: Overview, Simplified Chinese)

This page was written by Shelley Ensz, translated into Simplified Chinese by Jie Jackson, who is a medical student in China, and medically edited by Dr. Grace Pei. This pages uses SimSun font with browser encoding set to UTF-8.

针对硬皮病的不同的类型有多种方法来进行分类,由此产生的大量的医学术语很容易让人感到困惑。
下列分类常出现在文献中,但它们的使用和翻译又有不同。

There are many methods used to categorize the various forms of scleroderma, which has brought about a confusing abundance of terms. The following categories are often found in patient literature, but use and interpretation of these categories varies quite a bit.

两种主要类型
Two Main Types

局限性硬皮病
Localized Scleroderma

系统性硬皮病
Systemic

预后
Prognosis

肢端硬化综合症
CREST Syndrome
限制性硬皮病
Limited Scleroderma

弥漫性硬皮病
Diffuse Scleroderma

重叠综合症
Overlap Syndrome

青少年硬皮病
Juvenile Scleroderma

两种主要类型
Two Main Types

硬皮病有两种主要的类型:局限性硬皮病和系统性硬皮病。
There are two maintypes of Scleroderma:  Localized and Systemic.

如果儿童患有硬皮病,不管是何种类型,都叫青少年硬皮病,但以局限性硬皮病最常见。
When scleroderma of any type afflicts children, it is called Juvenile Scleroderma. The localized forms of scleroderma (such as Linear and Morphea) are most common in children.

局限性硬皮病
Localized

局限性硬皮病有两种类型:线形硬皮病和硬斑病。
局限性硬皮病主要是影响到表面皮肤,也可能影响到皮下的肌肉和骨骼。但它不会影响到内部的脏器。
There are two types of Localized Scleroderma: Linear andMorphea . LocalizedScleroderma affects the skin. It may also affect the underlying muscles and bones, but it does not affect internal organs.

总的说来,局限性硬皮病病情相对缓和。相对于系统性硬皮病,
局限性硬皮病只有一些表面的症状,有的只有作皮肤活检并且在显微镜下才能发现。
In general, Localized Scleroderma is relatively mild, and may be related to Systemic Scleroderma only in terms of similar superficial symptoms, such as the appearance of skin biopsy under the microscope.

系统性硬皮病
Systemic

系统性硬皮病有几种类型: CREST 综合症,限制性硬皮病和弥漫性硬皮病。
系统性硬皮病也看作系统性硬化症。它也被称进行性系统性硬化症,或家族进行性系统性硬化症。
There are several types of Systemic Scleroderma: CREST, Limited and Diffuse. Systemic Scleroderma is also known as Systemic Sclerosis. It may also be referred to as Progressive Systemic Sclerosis, or Familial Progressive Systemic Sclerosis.

系统性硬皮病影响皮肤、血管和(或)内部脏器。
它主要影响手和(或)脸的皮肤,导致皮肤硬化。影响血管时,
能导致雷诺氏综合症。当它侵犯内脏时,可以导致残废甚至死亡。
Systemic Scleroderma may affect the skin, blood vessels, and/or internal organs. When it affects the skin, it can cause the skin—most commonly on the hands and/or face—to harden. With the blood vessels, it can cause Raynaud's. When it affects the internal organs, it may cause disability or even death.

预后
Prognosis

以前,只有最严重的硬皮病患者得到诊断,这就导致了广泛的认识,
系统性硬皮病是不断进展的并且是致命的。
现在所有类型的硬皮病都可得到认识和诊断,就增加了另外一种意识,
这种有许多病情发展缓和的类型,预后是长期的。
Years ago, only the worst cases of scleroderma were diagnosed, thus leading to the widespread belief that systemic scleroderma was always progressive and fatal. Now that the full range of types and severity of scleroderma are being recognized and diagnosed, there is increasing awareness that many people have a milder type of illness with a much rosier longterm prognosis.

CREST综合症
CREST Syndrome

CREST 综合症 没有皮肤硬化的症状,它是以钙质沉淀、雷诺现象、食管硬化、 指端硬化和毛细血管扩张为特征。 CREST综合症可单独出现,也可以伴随其他类型的硬皮病(或其他的免疫系统疾病)出现, 象 CREST 并限制性硬皮病, CREST 并红斑狼疮
CREST Syndrome, by itself, does not have any skin tightening at all. CREST stands for Calcinosis, Raynaud's, Esophagus, Sclerodactyly, and Telangiectasia. CREST may occur alone, or in combination with any other form of Scleroderma (or even other autoimmune diseases) such as CREST with Limited Scleroderma, or CREST with Lupus. See CREST.

限制性硬皮病
Limited Scleroderma

限制性硬皮病是只连累手部皮肤的硬皮病,尽管有时会牵涉到脸部和颈部。
Limited Scleroderma is when skin involvement is limited to the hands (although the face and neck may also be involved.) See Limited Scleroderma.

弥漫性硬皮病
Diffuse Scleroderma

弥漫性硬皮病 是皮肤硬化发生在腕关节以上部位(或肘)。弥漫性硬皮病又可以分,
象 Scleroderma sans Scleroderma (它只是内脏硬化,皮肤无影响)和
Familial Progressive Systemic Sclerosis(一种少见的只在家族中出现的疾病)。
Diffuse Scleroderma is when skin tightening also occurs above the wrists (or elbows, see below). There are several subcategories of Diffuse, such as Scleroderma sans Scleroderma where there is internal organ fibrosis, but no skin tightening; and Familial Progressive Systemic Sclerosis, a rare form which runs in families. See Diffuse Scleroderma.

重叠综合症
Overlap Syndrome

如果硬皮病患者还患有其他的免疫系统性疾病,如红斑狼疮,风湿性关节炎等,
就可称为重叠综合症。硬皮病的症状可见于混合性结缔组织病中( MCTD )
或 Undifferentiated Connective Tissue Disease (UCTD) 中。
If a Scleroderma patient also has any other autoimmune disease (such as lupus, rheumatoid arthritis, etc.) it is referred to as overlap ; as in "Diffuse Scleroderma in overlap with lupus." Scleroderma symptoms can also be a part of Mixed Connective Tissue Disease (MCTD), or Undifferentiated Connective Tissue Disease (UCTD). See Scleroderma in Overlap.

Also See

Juvenile Scleroderma by ISN.

Scleroderma Patient and Caregiver Stories by ISN.

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