SCLERO.ORG
Search
Dutch Version (Netherlands): Over Sclerodermie: Hoofd Menu
International Support Groups
Over Sclerodermie
Lokaal Sclerodermie: Lineair
Angélique: Dochter van een Sclerodermie Patient (CREST)
Leon: Lineair

Angélique: Dochter van een Sclerodermie Patient (CREST)

Wie kan mij hiermee helpen?

Flowers for Angelique by Sherrill Knaggs, ISN Artist Mijn moeder heeft het crest-syndroom. Is 64 jaar en heeft sinds de diagnose 7 maanden in het ziekenhuis gelegen vanwege allerlei complicaties. Heeft in het ziekenhuis hardnekkige clostridium infectie opgelopen.

Hoewel ik daarop al getest ben, ben ik bang dat ik dat ook heb, maar ben nog veel banger dat ik ook sclerodermie heb, of mijn 24jarige zus, die nog kinderen wil krijgen (die ik al heb). Hoe kunnen we dit het beste laten onderzoeken?

Mijn zus en ik hebben alle 2 tekenen van Raynaud en willen graag weten of ons in de toekomst ook deze ellende te wachten staat. Ik ben bijna 40 en wil graag weten welke tests mijn huisarts kan laten doen om crest uit te sluiten of te laten bevestigen. Weet iemand of parvo er iets mee te maken heeft? Ik steun mijn vader en moeder zoveel ik kan, maar als ik deze ellende nogmaals mee moet maken weet ik nog niet of ik wel 64 wil worden! Daarom wil ik, met schrik in mijn hart, graag getest worden, maar wat is de beste! Manier? Wie kan mij hiermee helpen?

Webmaster's Note: Campylobacter is a foodborne illness that can cause reactive arthritis. There are over 100 types of Clostridium bacteria, and Clostridium difficile is a very common infection to get after taking antibiotics.

To Contact the Author

Angélique
Email: [email protected]
Story posted 08-10-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
(English) Caregiver Stories
(English) Raynaud's Stories
(English) CREST Syndrome

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Leon: Linear Scleroderma
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.