[Skip to Content]
ISN: Spanish Version (Español)
Support Groups: International
Email: Español
Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Esclerodermia con Calidad de Vida (PDF).
Historias 40+: Morfea, Lineal, Sistemica.

Ana Lucia: Esclerosis Sistemica Difusa


Yellow Canna by Sherrill Knaggs, ISN Artist Hola, me llamo Ana Lucía, tengo 20 años y me diagnosticaron esclerosis sistemica difusa hace un año y medio.

Estoy en tratamiento de corticoides. y ciclofosfamida, llevo un año y medio en hospitales. He tenido que ingresar todos los meses para ponerme tratamiento intravenoso.

Gracias a Dios ya está todo mejor, todo controlado. A lo mejor si Dios quiere a finales de año me quitan los goteros pero tendré que seguir con las pastillas.

Pero bueno quiero decirle a todo el mundo que tenga algo parecido que no se dejen vencer que sigan adelante que la vida es muy bonita. Gracias por escucharme.

To Contact the Author

Ana Lucia
Email: Withheld by request
Story edited 03-01-06 AL
Story prepared 03-01-06 JTD
Story posted 05-02-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Story Translator: Alba León
Esclerosis Sistemica Difusa

(English) Ana Lucia: Diffuse Scleroderma
(English) Diffuse Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.


(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Member of Scleroderma Webmaster's Association

Scleroderma Webmasters Association
Go to Historia: Angi

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical  News  Sclero Forums  Support  Translations  Donate or Shop
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.