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Acerca de la Esclerodermia.
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La Esclerodermia Lineal.
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Anita G: Esclerodermia Localizada

Por momentos no encuentro sentido a nada.

Deep Pink Azalia by Sherrill Knaggs, ISN Artist Hola a todos, tengo 18 años y lamentablemente una desgracia nos une.

Hace casi 2 años me detectaron esta enfermedad sin aún poder darme un diagnóstico específico lo que produce una terrible bronca porque pido ayuda y nadie me la ofrece. También comencé con una manchita que creí insignificante pero con el tiempo se extendió, y se fueron agravando los síntomas.

Por momentos no encuentro sentido a nada, me invade una terrible tristeza, miedo y soledad, aunque sé que no estoy sola ya que están conmigo mi familia y amigos. Quiero decirles que no estan solos, comprendo por lo que están pasando y si algun dia quieren charlar con alguien y compartir sus vivencias pueden contar conmigo.

Les deseo de todo corazón que sigan luchando y tengan mucha fe en que encontraremos juntos una solución…besos saludos y mucha suerte en esta lucha.

To Contact the Author

Anita G.
New email address needed 08-06-09 SLE
Old Email Prefix:aniguz_83
Story edited 11-23-07 JTD
Story posted 01-21-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.


(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

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