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Acerca de la Esclerodermia.
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La Esclerodermia Lineal.
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Esclerodermia con Calidad de Vida (PDF).
Historias 40+: Morfea, Lineal, Sistemica.
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Chela: Esclerodermia Difusa

Lo que me ha traumado es la parte estética.

Desde 2002 me diagnosticaron esclerodermia difusa. Fue terrible para mí; las facciones de mi cara cambiaron mucho, pero sin ser notorio para las personas que no me conocen. Las amigas me dicen que me hice la cirugía plástica.

Pero lo terrible son las ronchas que me han salido en el pecho, algunas tan incómodas que me las han operado.

Los dolores en las articulaciones son fuertes, pero manejables. Tomo medicamentos, pero lo que me ha traumado es la parte estética.

To Contact the Author

Chela
Email: mamamichelly@hotmail.com
Story edited 05-07-08 JTD
Story posted 01-21-09 SLE

Story Artist: Ione Bridgman
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

LINKS
Spanish:
Acerca de la Esclerodermia

English:
Chela: Diffuse Scleroderma
Diffuse Scleroderma
Diffuse Scleroderma Stories
Skeletal Involvement
Skeletal Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Ione Bridgman

ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

Dermatología - Entrevista a Francisco J. Castellanos, presidente de la Asociación Colombiana de Esclerodermia vivirmejor.es

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Member of Scleroderma Webmaster's Association

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About the ISN

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