SCLERO.ORG
Search
ISN: Spanish Version (Español)
Support Groups: International
Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Historias 40+: Morfea, Lineal, Sistemica.

Fernando: Esclerodermia Sistemica Progresiva

Ferrol, España

Blue Bantam Microlight by Sherrill Knaggs, ISN Artist Me llamo Fernando soy de Ferrol (a coruña) España y tengo 40 años. A los 8 años me diagnosticaron esclerodermia sistemica progresiva, durante estos años he pasado muchas fases de mi enfermedad, empezando por el raynon en las manos a los 8 años, afectación del esofago a los 15, operaciones de todo tipo (sin resultado ninguno), todo tipo de tratamiento Adalat, Genoxal, Acetesin, Dezacor, etc. Hasta que hoy en la consulta con mi reumatologo me dice que tengo que empezar un tratamieno por vía de vena porque mi capacidad pulmonar a bajado hasta el 45%.

Toda mi vida ha sido una lucha contra esta enfermedad, hoy mi estado de animo no es muy alto, pero tengo una hija de 11 meses y una mujer maravillosa que me hacen luchar y seguir para delante.

To Contact the Author

Fernando
New email address needed 11-15-06 SLE
Old Email Prefix: analbafer
Story edited 09-21-05 JTD
Story posted 09-26-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
Esclerodermia

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Historia: Francisco
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.