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Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Esclerodermia con Calidad de Vida (PDF).
Historias 40+: Morfea, Lineal, Sistemica.

Marina C: Paciente de CREST

Spain

Medicines by Sherrill Knaggs Hola. Soy una paciente diagnosticada de Crest hace 5 años, con síntomas de la enfermedad desde mucho tiempo atrás.

Tengo telangiectasia por todo el cuerpo, sobre todo en cara, cuello y tronco, fenómeno de Raynaud muy acusado y dolor muscular generalizado.

Actualmente la única medicación que tomo es un tratamiento hormonal porque el crest me provocó hipotiroidismo. Escribo para informaros que el Hospital Puerta de Hierro de Madrid (España),está probando en humanos un tratamiento con la molecula P144, que creen que puede ayudarnos en la enfermedad.

Para informaros mejor, entrar en su página web o en la de Europa Press (fue donde leí la noticia). Un saludo a todos.

To Contact the Author

Marina
Email: aircorral@yahoo.es
Story edited 04-23-07 JTD
Story posted 06-01-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Español) Esclerodermia
English:
Marina C: CREST Patient
CREST Scleroderma
Molecule P144
Muscular Pain
Raynaud's
Raynaud's Patient Stories
Telangiectasia
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Maritere: Madre de una niña Morfea
 
 

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