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Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Historias 40+: Morfea, Lineal, Sistemica.

Soledad: Paciente con Esclerodermia Difusa con CREST

Me cuesta entender mi enfermedad, por los síntomas.

Two Red Flowers by Shelley EnszFui diagnosticada con esclerodermia hace ya tres años. Me cuesta entender mi enfermedad, por los síntomas.

Estoy en una etapa de autoconocimiento. He tratado de buscar diferentes terapias y estoy bien por un tiempo pero vienen las crisis y caigo, y vuelvo a levantarme, una y otra vez.

Tengo 34 años, dos hijos uno de 17 y otro de 11, y tengo mucho por qué luchar, soy papá y mamá a la vez. Qué ganas de conversar con alguien que entienda de lo que hablo sin tener lástima, porque eso es lo que veo en los ojos de las personas, quizás incluso en mí.

Besos y suerte.

To Contact the Author

Soledad
Email: [email protected]
Story edited 06-13-2010 JTD
Story posted 07-01-2010 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Español/Spanish:
Acerca de la Esclerodermia

English:
Soledad: Diffuse Scleroderma with CREST
CREST Syndrome
CREST Syndrome Stories
Diffuse Scleroderma
Diffuse Scleroderma Stories
Emotional Adjustment: Coping
Emotional Adjustment Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Sue M: Esclerodermia Morfea
 

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