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La Esclerodermia Lineal.
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Historias 40+: Morfea, Lineal, Sistemica.

Violeta: Esclerodermia Morfea

Bolivia

Yellow Orchid for Violeta by Sherrill Knaggs, ISN Artist Tengo 27 años soy de Bolivia, soy ingeneria civil. Me diagnosticaron esclerodermia morfea hace 15 años, hace 5 años diagnosticaron a mi hermana menor con Lupus Erimatoso Sistemico fuimos a Cuba para saber mas de esta enfermedad ya que en Bolivia se sabe casi nada o muy poco.

Pero en cuba no hicieron mucho por nosotras mas que tratarnos como ratones de laboratorios ya que no terminaban de asombrarse por la similitud de las dos enfermedades, hace 4 años le hicieron un transplante renal a mi madre pero se desconoce la causa de su insuficiencia renal y se descarto Lupus y Esclerodermia en ella, escribo todo esto no para asustar ni para hacerme a la victima si no mas bien para decirles a todos los que estan pasando por alguna de estas enfermedades que sigan luchando por su vida y por lo que quieren lograr y vivan.

Ahora mi hermana tambien se gradua este año de ingeneria civil vean ustedes todo se puede, los medicos nos prohibieron estudiar por la presion y todo lo que estudiar una carrera de ingenieria amerita pero ahora ya terminamos y espero tener la suerte de casarme y tener hijos.

To Contact the Author

Violeta
Email: [email protected]
Story edited 06-03-05 JTD
Story posted 06-06-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
(Español) Esclerodermia Morfea
(English) Morphea
(English) Morphea Stories
(English) Causes of Scleroderma
(Español) ¿Que es Escleroderma?
(English) PDF Brochure: What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Vivi: Esclerodermia Facial (Lineal/Morfea, Parry Rombergs)
 
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