| Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ? ( What is Scleroderma?) |
| þó¾ô Àì¸ò¨¾ ±Ø¾¢ÂÅ÷ ¦„øÄ¢ ±ýŠ. þÐ þýÛõ ÁÕòЊ㾢¡¸ ¾¢Õò¾ôÀ¼Å¢ø¨Ä. ÁÚô¨À À¡÷ì¸×õ. |
| This page was written by Shelley Ensz, and has not yet been medically edited. See Disclaimer. |
| Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ? |
| What is Scleroderma? |
| Šì¦Ä§Ã¡¼÷Á¡-¨Åô ÀüȢ À¢ÃÍÃí¸û |
| þó¾ô À¢ÃÍÃí¸û PDF ÅÊÅò¾¢ø ¯ûÇÉ. «§¿¸ ¸õôäð¼÷¸Ç¢ø ¯ûÇ þÄź ô§Ã¡ìáÁ¡É ‘«§¼¡ô ã¼÷’-þý(Adobe Reader) ¯¾Å¢Ô¼ý, þ째¡ôÒ¸¨Çô ÀÊì¸ þÂÖõ. ¿£í¸û §¸¡ôÒ þ¨½ôÀ¢ý Á£Ð ìÇ¢ì ¦ºö¾ À¢ýÉÕõ, §¸¡ô¨Àô ÀÊì¸ ÓÊÂ¡Å¢ð¼¡ø, ‘«§¼¡ô ã¼÷’-³ (Adobe Reader) þíÌ ¦¼ªý§Ä¡ð ¦ºöÂ×õ. |
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À¢ÃÍÃõ) Šì¦Ä§Ã¡¼÷Á¡ (Šì¦Ä÷-µ-¼÷Á¡) ±ýÈ¡ø “«Øò¾Á¡É §¾¡ø” ±ýÚ ¦À¡Õû. þó§¿¡ö ¸ñ¼Å÷¸ÙìÌ §¾¡ø þÚì¸õ ÁüÚõ ¾ÊôÒ, þÃò¾ ¿¡Çí¸ÙìÌ §º¾õ, þýõ ÁüÚõ §¿¡ö ±¾¢÷ôÒ «¨ÁôÀ¢ø Á¡üÈí¸û ¬¸¢Â¨Å ¿¢¸ú¸¢ýÈÉ. À¢ÃÍÃò¾¢ø, Šì¦Ä§Ã¡¼÷Á¡-Å¢ý «È¢ÌÈ¢¸¨Çô ÀüȢ ÀðÊÂø ¯ûÇÐ! º÷ŧ¾º
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| Brochures About Scleroderma |
| These brochures are in PDF format. The files will open automatically in Adobe Reader, which is a free program which is already installed on most computers. If you click on the file link and it doesn't open, download Adobe Reader here. |
What
in the world is Scleroderma? (PDF Brochure) Scleroderma
(sklare-oh-derma) means "hard skin." This complex
disease involves tightening and thickening of the skin, blood
vessel damage, inflammation and immune system changes. Brochure
includes a systemic scleroderma symptom checklist! International
Scleroderma Network.. |
| Šì¦Ä§Ã¡¼÷Á¡-¨Åô ÀüȢ Òò¾¸í¸û |
Šì¦Ä§Ã¡¼÷Á¡ ±ýÀÐ ¯ñ¨Á¢ø ±ýÉ? þó¾ §¸ûÅ¢ì¸¡É Å¢¨¼ «È¢Â, ¯Â÷¾Ã ÁÕòÐÅ ÁüÚõ þ¾Ã ¾¸Åø¸û «¼í¸¢Â ³.±Š.±ý-É¢ý Šì¦Ä§Ã¡¼÷Á¡Å¢ý ÌÃø¸û Òò¾¸ò ¦¾¡Ìô¨À ÀÊìÌÁ¡Ú ÀâóШà ¦ºö¸¢§È¡õ. þÐ §¿¡Â¡Ç¢¸û, «Å÷¸ÙìÌ À½¢Â¡üÚ§Å¡÷, ÁüÚõ ÁÕòÐÅ÷¸û ¬¸¢Â «¨ÉÅáÖõ ´Õ§ºÃ À¡Ã¡ð¼ôÀÎõ ´Õ Òò¾¸ò ¦¾¡ÌôÀ¡Ìõ! þó¾ô Òò¾¸ò ¦¾¡ÌôÒ Šì¦Ä§Ã¡¼÷Á¡ ÅøÖÉ÷¸Ç¢ý ¸ðΨøû, ÁüÚõ §¿¡Â¡Ç¢¸Ç¢ý ¯ñ¨Áì ¸¨¾¸¨Ç ¯ûǼ츢ÂÐ. §¿¡Â¡Ç¢¸û ¾í¸û §¿¡Â¢ý ¾ý¨Á ÀüÈ¢ Å¢Ç츢ì ÜÚÅмý, Šì¦Ä§Ã¡¼÷Á¡Å¢ý «È¢ÌÈ¢¸¨Çì ¸ñ¼È¢óÐ §¿¡¨Âì ¨¸Â¡Ùõ Өȸû ÀüȢ ¾í¸û ¬§Ä¡º¨É¸¨ÇÔõ À¸¢÷óÐ ¦¸¡û¸¢È¡÷¸û. À¡÷ì¸: Šì¦Ä§Ã¡¼÷Á¡ Òò¾¸ì¸¢¼íÌ. |
| Books About Scleroderma |
But what is scleroderma really like?! To answer that, we strongly recommend the ISN's Voices of Scleroderma book series for top quality medical and support information. It receives rave reviews from patients, caregivers and doctors alike! Articles by highly esteemed scleroderma experts are combined with true stories from patients and caregivers explaining their illness and sharing their ideas for coping with all types of scleroderma symptoms. |
| Šì¦Ä§Ã¡¼÷Á¡-Å¢ ý Ũ¸¸û |
Šì¦Ä§Ã¡¼÷Á¡ þÃñΠŨ¸ôÀÎõ - ¯¼Ä¢ý ´Õ ÌÈ¢ôÀ¢ð¼ À̾¢Â¢ø ÁðÎõ §¾¡ýÚ¾ø (§Ä¡ì¸¨ÄŠð - localized), ÁüÚõ ¯¼Ä¢ý ÀÄ À̾¢¸Ç¢ø §¾¡ýÚ¾ø (…¢Šð¼Á¢ì - systemic). …¢Šð¼Á¢ì(systemic) Ũ¸Â¡ÉÐ ¯¼Ä¢ý ±ó¾ô À̾¢Â¢ø §ÅñÎÁ¡É¡Öõ §¾¡ýÈÄ¡õ (§¾¡ø, þÃò¾ ¿¡Çí¸û, ÁüÚõ ¯¼Ä¢ý ¯ûÙÚôÒ¸û). þÐ “…¢Šð¼Á¢ì Šì¦Äá…¢Š” ÁüÚõ Ê·ôäŠ(diffuse), Ä¢Á¢¼ð(limited), ì¦ÃŠð(CREST) ÁüÚõ µÅ÷Ä¡ô(overlap) ¬¸¢Â ¦ÀÂ÷¸Ç¡ø ÌÈ¢ì¸ôÀθ¢ÈÐ. §Ä¡ì¸¨ÄŠð Ũ¸Â¡ÉÐ Á¡÷·À¢Â¡(morphea) ÁüÚõ ģɢÂ÷(linear) ±ÉôÀÎõ, þÐ ¯¼Ä¢ý §¾¡ø (ÁüÚõ «¾ý «Ê¢ø «¨Áó¾¢ÕìÌõ ¾¢Íì¸û) À̾¢Â¢ø ²üÀÎõ; ¬É¡ø þ¾É¡ø ¯¼Ä¢ý ¯ûÙÚôÒ¸ÙìÌ À¡¾¢ô§À¡, «øÄÐ ´ÕÅÃÐ ¬Ôð¸¡Äõ ̨Èŧ¾¡ ²üÀ¼¡Ð. ̨Æó¾¸ÙìÌ ²üÀÎõ Šì¦Ä§Ã¡¼÷Á¡ ÌÆó¨¾ôÀÕÅ Šì¦Ä§Ã¡¼÷Á¡ ±ÉôÀθ¢ÈÐ. Å¢Çì¸í¸û «È¢Â, Šì¦Ä§Ã¡¼÷Á¡-Å¢ý Ũ¸¸û Àì¸ò¨¾ô À¡÷ì¸×õ. |
| Types of Scleroderma |
There are two main types of scleroderma, localized and systemic. The systemic forms can affect any part of the body (skin, blood vessels, and internal organs.) The systemic forms are also referred to as "systemic sclerosis" plus other terms such as diffuse, limited, CREST, and overlap. The localized forms are morphea and linear. They affect only the skin (and sometimes the underlying tissues) but do not affect the internal organs, or reduce one's life expectancy in any way. When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. See Types of Scleroderma page for further explanation. |
| §¿¡¨Â ¿¢÷½Â¢ôÀ¾¢ø ¯ûÇ þ¼÷À¡Î¸û |
| Šì¦Ä§Ã¡¼÷Á¡
´Õ «Ã¢Â §¿¡Â¡¸×õ, ¦ÅÌ º¢Ä ÁÕòÐÅ÷¸Ù째 ÀâîºÂÁ¡É §¿¡Â¡¸×õ
þÕôÀ¾¡ø, þ¾¨Éì ¸ñ¼È¢Â ¿£ñ¼ ¸¡ÄÁ¡Åмý, ¸ÊÉÁ¡¸×õ þÕ츢ÈÐ.
¬ÃõÀ ¸ð¼í¸Ç¢ø þÐ ãðÎÅÄ¢ (¬÷ò¨ÃðÊŠ) §À¡ýÈ º¢Ä þ¨½ôÒò
¾¢Í §¿¡ö¸¨Ç ´ò¾¢Õ츢ÈÐ.
¦ÀÕõÀ¡Öõ, §¿¡¨Âì ¸ñ¼È¢Å¾¢ø ¯ûÇ ¿¢îºÂÁ¢ý¨ÁÔõ, ²Á¡üÈÓõ ÁÉ¿¢¨Ä¨Â ¦ÅÌÅ¡¸ À¡¾¢ôÀ¾¡ø, §¿¡¨Â °÷ƒ¢¾ôÀÎò¾¢ì ¦¸¡ûžüÌû «Å÷¸ÙìÌ ²üÀÎõ ÅÕò¾í¸§Ç þ󧿡¢ý ÐÂÃÁ¡É ¸ð¼õ ±ý¸¢È¡÷¸û þ󧿡¡Ǣ¸û.(4) §¿¡¨Â ¿¢÷½Â¢ôÀ¾¢ø ¯ûÇ þ¼÷À¡Î¸û - À̾¢¨Âô À¡÷ì¸×õ. |
| Difficult Diagnosis |
| Proper diagnosis of scleroderma is often long and difficult, since it is a rare disease which few doctors are well-versed in, and in the early stages it may resemble many other connective tissue diseases, such as systemic lupus erythematosus, polymyositis, and rheumatoid arthritis, just to name a few. |
| Often the diagnostic uncertainty and frustration takes a huge toll on the psychological well-being of these patients, who describe their journey to diagnosis as being by far the most difficult part of their illness.(4) See Difficult Diagnosis. |
| Effects of Systemic Scleroderma |
| …¢Šð¼Á¢ì Šì¦Ä§Ã¡¼÷Á¡ §¾¡Ä¢Öõ, ¯¼Ä¢ý ¯ûÙÚôҸǢÖõ ¯ûÇ ¾¢Íì¸Ç¢ø ÅÄ¢Ôõ Å£ì¸Óõ(fibrosis) ²üÀÎòи¢ÈÐ. þ¾ý Å¢¨ÇÅ¡¸ À¡¾¢ì¸ôÀð¼ §¾¡Öõ, ¯¼ø ¯ÚôÒõ þÚ¸¢ì ¸¡½ôÀΞ¡ø, þó§¿¡ö “ÁÉ¢¾÷¸¨Çì ¸øÄ¡¸ Á¡üÚõ §¿¡ö” ±ýÚ ÀÃÅÄ¡¸ «È¢ÂôÀθ¢ÈÐ. |
| Effects of Systemic Scleroderma |
| The systemic forms of scleroderma cause fibrosis (scar tissue) to be formed in the skin and/or internal organs. The fibrosis eventually causes the involved skin or organs to harden, which is why scleroderma is popularly known as the "disease that turns people into stone." |
| Šì¦Ä§Ã¡¼÷Á¡-Å¢ý ãÄ측ýí¸û |
| Šì¦Ä§Ã¡¼÷Á¡ §¿¡ö ²üÀΞü¸¡É ãÄ측ýí¸û þýÛõ ¸ñ¼È¢ÂôÀ¼Å¢ø¨Ä. º¢Ä Ũ¸Â¡É §¿¡öìÌ Ã…¡ÂÉò ¾¡ì̾ø¸û ¸¡Ã½Á¡¸ þÕì¸Ä¡õ ±ýÚ ¿õÀôÀθ¢ÈÐ. ÁÃÀÏì¸û ÁüÚõ º¢Ä ¨ÅÊ ¸¢ÕÁ¢¸û ¬¸¢Â¨ÅÔõ ¸¡Ã½Á¡¸ «¨ÁÂÄ¡õ ±ýÚõ ¸Õ¾ôÀθ¢ÈÐ. Šì¦Ä§Ã¡¼÷Á¡-Å¢ý ãÄ측ýí¸û - À̾¢¨Âô À¡÷ì¸×õ. |
| Causes of Scleroderma |
| The cause of scleroderma is unknown. Some cases of scleroderma have been linked to chemical exposures. Genetics, fetal cells, and viruses might also be factors in the development of scleroderma. See Causes of Scleroderma. |
| Šì¦Ä§Ã¡¼÷Á¡ ´Õ ¦¾¡üÚ§¿¡ö «øÄ |
| Šì¦Ä§Ã¡¼÷Á¡ ´Õ ¦¾¡üÚ§¿¡ö(1) «øÄ, «¾¡ÅÐ, þÐ ¨¸ÌÖìÌžý ãÄÁ¡¸§Å¡, ¸ðÊôÀ¢ÊôÀ¾ý ãÄÁ¡¸§Å¡, Óò¾Á¢Îžý ãÄÁ¡¸§Å¡, ¯¼ÖÈ× ¦¸¡ûžý ãÄÁ¡¸§Å¡, þÃò¾ ºõÀó¾Á¡¸§Å¡, §¿¡Â¡Ç¢ ¯ñÀ¾üÌô ÀÂýÀÎò¾¢Â À¡ò¾¢Ãí¸¨Çô ÀÂýÀÎòО¡§Ä¡, «øÄÐ ¸¡üÚ Å¡Â¢Ä¡¸ þÕÁø, ÐõÁø ãÄÁ¡¸§Å¡ ²üÀΞ¢ø¨Ä. þó§¿¡ö ÒüÚ§¿¡ö ¯ñ¼¡ì¸ìÜÊÂÐõ «øÄ. |
| Scleroderma is Not Contagious or Cancerous |
| Scleroderma is not classified as contagious (1), which means that you cannot get scleroderma by shaking hands, hugging, kissing, sexual contact, contact with blood or bodily fluids, sharing eating utensils, or by airborne contact from coughing or sneezing. And it is not cancerous in any way.(1) |
| Šì¦Ä§Ã¡¼÷Á¡ - «È¢ÌÈ¢¸Ùõ º¢¸¢î¨º ӨȸÙõ |
þý¨È ¸¡Ä¸ð¼ò¾¢ø, Šì¦Ä§Ã¡¼÷Á¡ §¿¡¨Â ̽ôÀÎòОü¸¡É ÁÕóи§Ç¡, º¢¸¢î¨º Өȸ§Ç¡ þø¨Ä. ¬É¡ø, þ󧿡¢ý «È¢ÌÈ¢¸¨Ç ̽ôÀÎòОü¸¡É º¢Èó¾ º¢¸¢î¨º Өȸû ÀÄ ¯ûÇÉ. þó¾ ŨÄò¾Çò¾¢ø ÌÈ¢ôÀ¢¼ôÀðÊÕìÌõ §¿¡Â¢ý «È¢ÌÈ¢¸Ç¢ø ÀÄ, …¢Šð¼Á¢ì(systemic) Šì¦Ä§Ã¡¼÷Á¡-Å¢ý «È¢ÌÈ¢¸û ¬Ìõ. …¢Šð¼Á¢ì Šì¦Ä§Ã¡¼÷Á¡Å¢ ý «È¢ÌÈ¢¸ûÁüÚõ ÁÕòÐÅ ¬Ã¡ö¸û À̾¢¨Âô À¡÷ì¸×õ. “Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ?” ±ýÈ À¢ÃÍÃò¾¢ÖûÇ, …¢Šð¼Á¢ì Šì¦Ä§Ã¡¼÷Á¡Å¢ý «È¢ÌÈ¢¸Ç¢ý ÀðʨÄô À¡÷ì¸×õ. þÐ PDF-ÅÊÅò¾¢ø ¯ûÇÐ. …¢Šð¼Á¢ì Šì¦Ä§Ã¡¼÷Á¡Å¢ ý «È¢ÌÈ¢¸û(link) ÁüÚõ ÁÕòÐÅ ¬Ã¡ö¸û(link) À̾¢¨Âô À¡÷ì¸×õ. |
| Scleroderma Symptoms and Treatments |
| At present, there are no proven treatments or cure for any forms of scleroderma. However, there are effective therapies for many of the symptoms. Most of the symptoms listed in this website are those of systemic scleroderma. See Systemic Scleroderma Symptoms and Scleroderma Treatments and Clinical Trials. Also see the Systemic Scleroderma Symptom Checklist in our free PDF from the ISN's "What is Scleroderma?" brochure. |
| Šì¦Ä§Ã¡¼÷Á¡ - À⧺¡¾¨É¸û |
| Šì¦Ä§Ã¡¼÷Á¡-Å¢ý º¢¸¢î¨ºì¸¡É À⧺¡¾¨É¸û º¢Ä, ¿õÀ¢ì¨¸äðÎõ Ũ¸Â¢ø «¨ÁóÐûÇÉ. þÅüÚû ‘Ц¼õ ¦ºø Á¡üÚ Ó¨È(BMT)’-Ôõ «¼íÌõ. À⧺¡¾¨É¸û - À̾¢¨Âô À¡÷ì¸×õ. |
| Scleroderma Clinical Trials |
| There are some experimental therapies which show promise for treatment of scleroderma, including Stem Cell Transfusion (BMT). See Clinical Trials. |
| Šì¦Ä§Ã¡¼÷Á¡-¨Åô ÀüȢ ¾¸Åø¸û |
| Šì¦Ä§Ã¡¼÷Á¡-¨Åô ÀüȢ À¢ÃÍÃõ NIAMS |
| Šì¦Ä§Ã¡¼÷Á¡ - ´Õ ¸ñ§½¡ð¼õ MayoClinic.com |
| Šì¦Ä§Ã¡¼÷Á¡-Å¢ý ÌÃø¸û - À̾¢ 1 þó¾ô Òò¾¸õ Šì¦Ä§Ã¡¼÷Á¡-¨Åô ÀüÈ¢ ÅøÖÉ÷¸û ÜÚõ ÁÕòÐÅò ¾¸Åø¸¨Ç «¼ì¸¢ÔûÇÐ. þ¾¢ø Šì¦Ä§Ã¡¼÷Á¡-Å¢ý «È¢ÌÈ¢¸Ç¢ý ÀðÊÂÖõ, þ󧿡¡ø À¡¾¢ì¸ôÀð¼ 100 §¿¡Â¡Ç¢¸Ç¢ý ¸¨¾¸Ùõ «¼íÌõ. º÷ŧ¾º Šì¦Ä§Ã¡¼÷Á¡ «¨ÁôÒ |
| Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ? “¯í¸û ¯¼Ä¢ý º¢Ä À̾¢¸Ç¢ø, §¾¡ø ¾ÊòÐ, þÚ¸¢ô §À¡Â¢Õ󾡸 ±ôÀÊ þÕìÌõ ±ýÚ ¦¸¡ïºõ ¸üÀ¨É ¦ºöÐ À¡Õí¸û. §ÁÖõ, ÌÇ¢÷ ¾¡í¸ ÓÊ¡¾¢Õò¾ø, «Êì¸Ê ²üÀÎõ ¦¿ï¦ºÃ¢îºø, ãðÎ þÚ̾ø, ÁüÚõ À¢È ¯ûÙÚôÒ À¢ÃîºÉ¨¸û ¬¸¢Â¨ÅÔõ þÕ󾡸?”. ²Á¢ (´Õ …¢Šð¼Á¢ì Šì¦Äá…¢Š §¿¡Â¡Ç¢Â¢ý Á¸û) |
| Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ? ãðÎÅÄ¢ «¨ÁôÒ («¦Áâ측) |
| Šì¦Ä§Ã¡¼÷Á¡ ±ýÈ¡ø ±ýÉ? ¦ÁÊ…¢ý¦¿ð |
| Information about Scleroderma |
| Handout on Health: Scleroderma NIAMS |
| Overview of Scleroderma MayoClinic.com |
| Voices of Scleroderma Volume 1 Book offers medical information about scleroderma by leading experts. Includes scleroderma symptom checklist, plus 100 personal stories of people living with scleroderma and related illnesses. International Scleroderma Network |
| What is Scleroderma? "Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden. Then on top of this, you have a painful sensitivity to cold, frequent heartburn, stiff joints and various other internal problems." Amy (Daughter of a Systemic Sclerosis patient) |
| What is Scleroderma? Arthritis Foundation (U.S.) |
| What is Scleroderma? MedicineNet |
| Šì¦Ä§Ã¡¼÷Á¡ §¿¡Â¡Ç¢¸Ç¢ý ¸¨¾¸û |
| …¢Šð¼Á¢ì Šì¦Ä§Ã¡¼÷Á¡ |
| ì¦ÃŠð ¸¨¾¸û |
| Ê·äŠ ¸¨¾¸û |
| Ä¢Á¢¼ð ¸¨¾¸û |
| µÅ÷Ä¡ô ¸¨¾¸û |
| §Ä¡¸¨ÄŠð Šì¦Ä§Ã¡¼÷Á¡ |
| ģɢÂ÷ ¸¨¾¸û |
| Á¡÷·À¢Â¡ ¸¨¾¸û |
| Morphea Stories (Italiano) |
| ÁüȨŠ|
| §¿¡¨Âì ¸ñ¼È¢Å¾¢ø ¯ûÇ þ¼÷À¡Î¸û |
| .þ…¢§É¡·À¢Ä¢ì ·À¡¨…ÊŠ |
| þý¼÷ŠÊ„¢Âø …¢Š¨¼ÊŠ |
| ŠÂ¡ì¦Ãý …¢ýð§Ã¡õ |
| Scleroderma Patient Stories |
| Systemic Scleroderma: |
| CREST Stories |
| Diffuse Stories |
| Limited SD Stories |
| Overlap Patient Stories |
| Localized Scleroderma: |
| Linear Stories |
| Morphea Stories |
| Morphea Stories (Italiano) |
| Others |
| Difficult Diagnosis and Undiagnosed |
| Eosinophilic Fasciitis |
| Interstitial Cystitis |
| Sjögren's Syndrome |


