Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ?
What is Scleroderma? |
| þó3⁄4ô Àì ̧ò ̈3⁄4
±Ø3⁄4¢ÂÅ÷ ¦„øÄ¢ ±ýŠ.
þÐ þýÛõ ÁÕòЊã3⁄4¢Â¡ ̧ 3⁄4¢Õò3⁄4ôÀ1⁄4Å¢ø ̈Ä. ÁÚô¨À À¡÷ì¸×õ. |
| This page was
written by Shelley
Ensz, and has not yet been medically edited. See Disclaimer. |
|
| Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ? |
 Šì¦Ä§Ã¡1⁄4÷Á¡ ±ýÀÐ,
ÍÁ¡÷ 150,000 Ó3⁄4ø 500,000 «¦Áâì ̧÷ ̧ ̈Ç, ÌÈ¢ôÀ¡ ̧ 30 Ó3⁄4ø 50 ÅÂ3⁄4¢üÌðÀð1⁄4
¦Àñ ̧ ̈Çò 3⁄4¡ìÌõ ́Õ «Ã¢Â, ¿£ñ1⁄4 ̧¡Ä §¿¡ö ±ýÚ Á3⁄4¢ôÀ¢1⁄4ôÀðÎûÇÐ.
þÐ 100,000 Áì ̧Ç¢ø 30 §ÀÕìÌ ±ýÈ Å¢ ̧¢3⁄4ò3⁄4¢Öõ, ¿¡ýÌ ¦Àñ ̧Ç¢ø
́Õ ¬ÏìÌ ±ýÈ Å¢ ̧¢3⁄4ò3⁄4¢Öõ ¿¢ ̧ú ̧¢ÈÐ. |
| What is Scleroderma? |
| Scleroderma is
a rare, chronic autoimmune disease which afflicts an estimated
150,000(1) to 500,000(2) Americans, primarily
females who are 30 to 50 years old at onset. The overall occurrence
is 30 people per 100,000 and the ratio of women to men is about
four to one. |
| Šì¦Ä§Ã¡1⁄4÷Á¡- ̈Åô
ÀüȢ À¢ÃÍÃí ̧û |
| þó3⁄4ô À¢ÃÍÃí ̧û PDF ÅÊÅò3⁄4¢ø
̄ûÇÉ. «§¿ ̧ ̧õôäð1⁄4÷ ̧Ç¢ø ̄ûÇ þÄÅo ô§Ã¡ìáÁ¡É ‘«§1⁄4¡ô ã1⁄4÷’-þý(Adobe
Reader) ̄3⁄4Å¢Ô1⁄4ý, þì§ ̧¡ôÒ ̧ ̈Çô ÀÊì ̧ þÂÖõ. ¿£í ̧û § ̧¡ôÒ þ ̈1⁄2ôÀ¢ý
Á£Ð ìÇ¢ì ¦oö3⁄4 À¢ýÉÕõ, § ̧¡ô ̈Àô ÀÊì ̧ ÓÊ¡Ţð1⁄4¡ø, ‘«§1⁄4¡ô
ã1⁄4÷’-3 (Adobe Reader) þíÌ ¦1⁄4aý§Ä¡ð ¦oöÂ×õ. |
 (PDF
À¢ÃÍÃõ) Šì¦Ä§Ã¡¼÷Á¡ (Šì¦Ä÷-µ-¼÷Á¡) ±ýÈ¡ø “«Øò¾Á¡É §¾¡ø” ±ýÚ ¦À¡Õû. þ󧿡ö ¸ñ¼Å÷¸ÙìÌ §¾¡ø þÚì¸õ ÁüÚõ ¾ÊôÒ, þÃò¾ ¿¡Çí¸ÙìÌ §º¾õ, þýõ ÁüÚõ §¿¡ö ±¾¢÷ôÒ «¨ÁôÀ¢ø Á¡üÈí¸û ¬¸¢Â¨Å ¿¢¸ú¸¢ýÈÉ. À¢ÃÍÃò¾¢ø, Šì¦Ä§Ã¡¼÷Á¡-Å¢ý «È¢ÌÈ¢¸¨Çô ÀüȢ ÀðÊÂø ¯ûÇÐ! o÷ŧ3⁄4o
oslash; ¯ûÇÐ! o÷ŧ3⁄4o Šì¦Ä§Ã¡1⁄4÷Á¡ « ̈ÁôÒ |
| Brochures About Scleroderma |
| These brochures are in PDF format.
The files will open automatically in Adobe Reader, which is
a free program which is already installed on most computers.
If you click on the file link and it doesn't open, download
Adobe Reader here. |
| What
in the world is Scleroderma? (PDF Brochure) Scleroderma
(sklare-oh-derma) means "hard skin." This complex
disease involves tightening and thickening of the skin, blood
vessel damage, inflammation and immune system changes. Brochure
includes a systemic scleroderma symptom checklist! International
Scleroderma Network. |
| Šì¦Ä§Ã¡1⁄4÷Á¡- ̈Åô
ÀüȢ Òò3⁄4 ̧í ̧û |
Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÀÐ ̄ñ ̈Á¢ø ±ýÉ? þó3⁄4 § ̧ûÅ¢ì ̧¡É Å¢ ̈1⁄4 «È¢Â,
̄Â÷3⁄4à ÁÕòÐÅ ÁüÚõ þ3⁄4à 3⁄4 ̧Åø ̧û «1⁄4í ̧¢Â 3.±Š.±ý-É¢ý
Šì¦Ä§Ã¡1⁄4÷Á¡Å¢ý ÌÃø ̧û Òò3⁄4 ̧ò ¦3⁄4¡Ìô ̈À ÀÊìÌÁ¡Ú ÀâóÐ ̈Ã
¦oö ̧¢§È¡õ. þÐ §¿¡Â¡Ç¢ ̧û, «Å÷ ̧ÙìÌ À1⁄2¢Â¡üڧš÷, ÁüÚõ ÁÕòÐÅ÷ ̧û
¬ ̧¢Â « ̈ÉÅáÖõ ́Õ§oà À¡Ã¡ð1⁄4ôÀÎõ ́Õ Òò3⁄4 ̧ò ¦3⁄4¡ÌôÀ¡Ìõ!
þó3⁄4ô Òò3⁄4 ̧ò ¦3⁄4¡ÌôÒ Šì¦Ä§Ã¡1⁄4÷Á¡ ÅøÖÉ÷ ̧Ç¢ý
̧ðÎ ̈à ̧û, ÁüÚõ §¿¡Â¡Ç¢ ̧Ç¢ý ̄ñ ̈Áì ̧ ̈3⁄4 ̧ ̈Ç ̄ûÇ1⁄4ì ̧¢ÂÐ.
§¿¡Â¡Ç¢ ̧û 3⁄4í ̧û §¿¡Â¢ý 3⁄4ý ̈Á ÀüÈ¢ Å¢Çì ̧¢ì ÜÚÅÐ1⁄4ý, Šì¦Ä§Ã¡1⁄4÷Á¡Å¢ý
«È¢ÌÈ¢ ̧ ̈Çì ̧ñ1⁄4È¢óÐ §¿¡ ̈Âì ̈ ̧¡Ùõ Ó ̈È ̧û ÀüȢ 3⁄4í ̧û
¬§Ä¡o ̈É ̧ ̈ÇÔõ À ̧¢÷óÐ ¦ ̧¡û ̧¢È¡÷ ̧û. |
| Books About Scleroderma |
But
what is scleroderma really like?! To answer that, we
strongly recommend the ISN's
Voices of Scleroderma book series for top quality medical
and support information. It receives rave reviews from
patients, caregivers and doctors alike!
Articles by highly esteemed scleroderma experts are combined
with true stories from patients and caregivers explaining
their illness and sharing their ideas for coping with all
types of scleroderma symptoms. |
| Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢
ý Å ̈ ̧ ̧û |
Šì¦Ä§Ã¡1⁄4÷Á¡ þÃñÎ
Å ̈ ̧ôÀÎõ - ̄1⁄4Ä¢ý ́Õ ÌÈ¢ôÀ¢ð1⁄4 ÀÌ3⁄4¢Â¢ø ÁðÎõ §3⁄4¡ýÚ3⁄4ø (§Ä¡ì ̧ ̈ÄŠð
- localized), ÁüÚõ ̄1⁄4Ä¢ý ÀÄ ÀÌ3⁄4¢ ̧Ç¢ø §3⁄4¡ýÚ3⁄4ø (...¢Šð1⁄4Á¢ì
- systemic).
...¢Šð1⁄4Á¢ì(systemic) Å ̈ ̧¡ÉÐ ̄1⁄4Ä¢ý ±ó3⁄4ô
ÀÌ3⁄4¢Â¢ø §ÅñÎÁ¡É¡Öõ §3⁄4¡ýÈÄ¡õ (§3⁄4¡ø, þÃò3⁄4 ¿¡Çí ̧û,
ÁüÚõ ̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧û). þÐ “...¢Šð1⁄4Á¢ì Šì¦Äá...¢Š” ÁüÚõ Ê·ôäŠ(diffuse), Ä¢Á¢1⁄4ð(limited), ì¦ÃŠð(CREST) ÁüÚõ
μÅ÷Ä¡ô(overlap) ¬ ̧¢Â ¦ÀÂ÷ ̧Ç¡ø ÌÈ¢ì ̧ôÀÎ ̧¢ÈÐ.
§Ä¡ì ̧ ̈ÄŠð Å ̈ ̧¡ÉÐ Á¡÷·À¢Â¡(morphea) ÁüÚõ ģɢÂ÷(linear) ±ÉôÀÎõ,
þÐ ̄1⁄4Ä¢ý §3⁄4¡ø (ÁüÚõ «3⁄4ý «Ê¢ø « ̈Áó3⁄4¢ÕìÌõ 3⁄4¢Íì ̧û) ÀÌ3⁄4¢Â¢ø
2üÀÎõ; ¬É¡ø þ3⁄4É¡ø ̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧ÙìÌ À¡3⁄4¢ô§À¡, «øÄÐ ́ÕÅÃÐ
¬Ôð ̧¡Äõ Ì ̈Èŧ3⁄4¡ 2üÀ1⁄4¡Ð.
Ì ̈Æó3⁄4 ̧ÙìÌ 2üÀÎõ Šì¦Ä§Ã¡1⁄4÷Á¡ ÌÆó ̈3⁄4ôÀÕÅ
Šì¦Ä§Ã¡1⁄4÷Á¡ ±ÉôÀÎ ̧¢ÈÐ.
Å¢Çì ̧í ̧û «È¢Â, Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý
Å ̈ ̧ ̧û Àì ̧ò ̈3⁄4ô À¡÷ì ̧×õ. |
| Types
of Scleroderma |
There are two main types of
scleroderma, localized and systemic.
The systemic forms can affect any part of the body (skin,
blood vessels, and internal organs.) The systemic forms are
also referred to as "systemic sclerosis" plus other
terms such as diffuse, limited, CREST,
and overlap.
The localized forms are morphea and linear.
They affect only the skin (and sometimes the underlying tissues)
but do not affect the internal organs, or reduce one's life
expectancy in any way.
When any form of scleroderma (either localized or systemic)
occurs in children, it is also called Childhood Scleroderma
or Juvenile
Scleroderma.
See Types
of Scleroderma page for further explanation. |
| §¿¡ ̈Â
¿¢÷1⁄2¢ôÀ3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û |
Šì¦Ä§Ã¡1⁄4÷Á¡ ́Õ «Ã¢Â §¿¡Â¡ ̧×õ,
¦ÅÌ o¢Ä ÁÕòÐÅ÷ ̧Ùì§ ̧ ÀâîoÂÁ¡É §¿¡Â¡ ̧×õ þÕôÀ3⁄4¡ø, þ3⁄4 ̈Éì ̧ñ1⁄4È¢Â
¿£ñ1⁄4 ̧¡ÄÁ¡ÅÐ1⁄4ý, ̧ÊÉÁ¡ ̧×õ þÕì ̧¢ÈÐ. ¬ÃõÀ ̧ð1⁄4í ̧Ç¢ø
þÐ ãðÎÅÄ¢ (¬÷ò ̈ÃðÊŠ) §À¡ýÈ o¢Ä þ ̈1⁄2ôÒò 3⁄4¢Í §¿¡ö ̧ ̈Ç ́ò3⁄4¢Õì ̧¢ÈÐ.
¦ÀÕõÀ¡Öõ, §¿¡ ̈Âì ̧ñ1⁄4È¢Å3⁄4¢ø ̄ûÇ ¿¢îoÂÁ¢ý ̈ÁÔõ, 2Á¡üÈÓõ
ÁÉ¿¢ ̈Ä ̈ ¦ÅÌÅ¡ ̧ À¡3⁄4¢ôÀ3⁄4¡ø, §¿¡ ̈ °÷ƒ¢3⁄4ôÀÎò3⁄4¢ì ¦ ̧¡ûÅ3⁄4üÌû
«Å÷ ̧ÙìÌ 2üÀÎõ ÅÕò3⁄4í ̧§Ç þ󧿡¢ý ÐÂÃÁ¡É ̧ð1⁄4õ ±ý ̧¢È¡÷ ̧û
þ󧿡¡Ǣ ̧û.(4)
§¿¡ ̈Â
¿¢÷1⁄2¢ôÀ3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Difficult
Diagnosis |
| Proper diagnosis of scleroderma
is often long and difficult, since it is a rare disease which
few doctors are well-versed in, and in the early stages it
may resemble many other connective tissue diseases, such as
systemic lupus erythematosus, polymyositis, and rheumatoid
arthritis, just to name a few. |
| Often the diagnostic uncertainty
and frustration takes a huge toll on the psychological well-being
of these patients, who describe their journey to diagnosis
as being by far the most difficult part of their illness.(4) See Difficult
Diagnosis. |
| Effects of Systemic
Scleroderma |
| ...¢Šð1⁄4Á¢ì Šì¦Ä§Ã¡1⁄4÷Á¡ §3⁄4¡Ä¢Öõ,
̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧Ç¢Öõ ̄ûÇ 3⁄4¢Íì ̧Ç¢ø ÅÄ¢Ôõ Å£ì ̧Óõ(fibrosis) 2üÀÎòÐ ̧¢ÈÐ.
þ3⁄4ý Å¢ ̈ÇÅ¡ ̧ À¡3⁄4¢ì ̧ôÀð1⁄4 §3⁄4¡Öõ, ̄1⁄4ø ̄ÚôÒõ þÚ ̧¢ì ̧¡1⁄2ôÀÎÅ3⁄4¡ø,
þ󧿡ö “ÁÉ¢3⁄4÷ ̧ ̈Çì ̧øÄ¡ ̧ Á¡üÚõ §¿¡ö” ±ýÚ ÀÃÅÄ¡ ̧ «È¢ÂôÀÎ ̧¢ÈÐ. |
| Effects of Systemic
Scleroderma |
| The systemic forms of scleroderma
cause fibrosis (scar tissue) to be formed in the skin and/or
internal organs. The fibrosis eventually causes the involved
skin or organs to harden, which is why scleroderma is popularly
known as the "disease that turns people into stone." |
| Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý
ãÄì ̧¡Ã1⁄2í ̧û |
| Šì¦Ä§Ã¡1⁄4÷Á¡ §¿¡ö 2üÀÎÅ3⁄4ü ̧¡É
ãÄì ̧¡Ã1⁄2í ̧û þýÛõ ̧ñ1⁄4È¢ÂôÀ1⁄4Å¢ø ̈Ä. o¢Ä Å ̈ ̧Â¡É §¿¡öìÌ Ã...¡ÂÉò
3⁄4¡ìÌ3⁄4ø ̧û ̧¡Ã1⁄2Á¡ ̧ þÕì ̧Ä¡õ ±ýÚ ¿õÀôÀÎ ̧¢ÈÐ. ÁÃÀÏì ̧û ÁüÚõ o¢Ä
̈ÅÊ ̧¢ÕÁ¢ ̧û ¬ ̧¢Â ̈ÅÔõ ̧¡Ã1⁄2Á¡ ̧ « ̈ÁÂÄ¡õ ±ýÚõ ̧Õ3⁄4ôÀÎ ̧¢ÈÐ. Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý
ãÄì ̧¡Ã1⁄2í ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Causes
of Scleroderma |
| The cause of scleroderma is unknown.
Some cases of scleroderma have been linked to chemical exposures.
Genetics, fetal cells, and viruses might also be factors in
the development of scleroderma. See Causes
of Scleroderma. |
| Šì¦Ä§Ã¡1⁄4÷Á¡
́Õ ¦3⁄4¡üÚ§¿¡ö «øÄ |
| Šì¦Ä§Ã¡1⁄4÷Á¡ ́Õ ¦3⁄4¡üÚ§¿¡ö(1)
«øÄ, «3⁄4¡ÅÐ, þÐ ̈ ̧ÌÖìÌÅ3⁄4ý ãÄÁ¡ ̧§Å¡, ̧ðÊôÀ¢ÊôÀ3⁄4ý ãÄÁ¡ ̧§Å¡,
Óò3⁄4Á¢ÎÅ3⁄4ý ãÄÁ¡ ̧§Å¡, ̄1⁄4ÖÈ× ¦ ̧¡ûÅ3⁄4ý ãÄÁ¡ ̧§Å¡, þÃò3⁄4 oõÀó3⁄4Á¡ ̧§Å¡,
§¿¡Â¡Ç¢ ̄ñÀ3⁄4üÌô ÀÂýÀÎò3⁄4¢Â À¡ò3⁄4¢Ãí ̧ ̈Çô ÀÂýÀÎòÐÅ3⁄4¡§Ä¡,
«øÄÐ ̧¡üÚ Å¡Â¢Ä¡ ̧ þÕÁø, ÐõÁø ãÄÁ¡ ̧§Å¡ 2üÀÎÅ3⁄4¢ø ̈Ä. þ󧿡ö
ÒüÚ§¿¡ö ̄ñ1⁄4¡ì ̧ìÜÊÂÐõ «øÄ. |
| Scleroderma is Not
Contagious or Cancerous |
| Scleroderma is not classified as
contagious (1), which means that you cannot get scleroderma
by shaking hands, hugging, kissing, sexual contact, contact
with blood or bodily fluids, sharing eating utensils, or by
airborne contact from coughing or sneezing. And it is not cancerous
in any way.(1) |
| Šì¦Ä§Ã¡1⁄4÷Á¡
- «È¢ÌÈ¢ ̧Ùõ o¢ ̧¢î ̈o Ó ̈È ̧Ùõ |
þý ̈È ̧¡Ä ̧ð1⁄4ò3⁄4¢ø, Šì¦Ä§Ã¡1⁄4÷Á¡
§¿¡ ̈ Ì1⁄2ôÀÎòÐÅ3⁄4ü ̧¡É ÁÕóÐ ̧§Ç¡, o¢ ̧¢î ̈o Ó ̈È ̧§Ç¡ þø ̈Ä. ¬É¡ø,
þ󧿡¢ý «È¢ÌÈ¢ ̧ ̈Ç Ì1⁄2ôÀÎòÐÅ3⁄4ü ̧¡É o¢Èó3⁄4 o¢ ̧¢î ̈o Ó ̈È ̧û ÀÄ
̄ûÇÉ. þó3⁄4 Å ̈Äò3⁄4Çò3⁄4¢ø ÌÈ¢ôÀ¢1⁄4ôÀðÊÕìÌõ §¿¡Â¢ý «È¢ÌÈ¢ ̧Ç¢ø ÀÄ,
...¢Šð1⁄4Á¢ì(systemic) Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý «È¢ÌÈ¢ ̧û ¬Ìõ. ...¢Šð1⁄4Á¢ì
Šì¦Ä§Ã¡1⁄4÷Á¡Å¢
ý «È¢ÌÈ¢ ̧ûÁüÚõ ÁÕòÐÅ
¬Ã¡öîo¢ ̧û ÀÌ3⁄4¢ ̈Âô À¡÷ì ̧×õ. “Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ?” ±ýÈ À¢ÃÍÃò3⁄4¢ÖûÇ, ...¢Šð1⁄4Á¢ì Šì¦Ä§Ã¡1⁄4÷Á¡Å¢ý
«È¢ÌÈ¢ ̧Ç¢ý ÀðÊ ̈Äô À¡÷ì ̧×õ. þÐ PDF-ÅÊÅò3⁄4¢ø ̄ûÇÐ.
...¢Šð1⁄4Á¢ì Šì¦Ä§Ã¡1⁄4÷Á¡Å¢ ý «È¢ÌÈ¢ ̧û(link) ÁüÚõ ÁÕòÐÅ
¬Ã¡öîo¢ ̧û(link) ÀÌ3⁄4¢ ̈Âô À¡÷ì ̧×õ. |
| Scleroderma
Symptoms and Treatments |
| At present, there are no proven
treatments or cure for any forms of scleroderma. However, there
are effective therapies for many of the symptoms. Most of the
symptoms listed in this website are those of systemic scleroderma. See Systemic
Scleroderma Symptoms and Scleroderma
Treatments and Clinical Trials. Also see the Systemic Scleroderma
Symptom Checklist in our free PDF from the ISN's "What
is Scleroderma?" brochure. |
| Šì¦Ä§Ã¡1⁄4÷Á¡
- Àâ§o¡3⁄4 ̈É ̧û |
| Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý o¢ ̧¢î ̈oì ̧¡É
Àâ§o¡3⁄4 ̈É ̧û o¢Ä, ¿õÀ¢ì ̈ ̧äðÎõ Å ̈ ̧¢ø « ̈ÁóÐûÇÉ. þÅüÚû ‘Š¦1⁄4õ
¦oø Á¡üÚ Ó ̈È(BMT)’-Ôõ «1⁄4íÌõ. Àâ§o¡3⁄4 ̈É ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Scleroderma
Clinical Trials |
| There are some experimental therapies
which show promise for treatment of scleroderma, including
Stem Cell Transfusion (BMT). See Clinical
Trials. |
| Šì¦Ä§Ã¡1⁄4÷Á¡- ̈Åô
ÀüȢ 3⁄4 ̧Åø ̧û |
| Šì¦Ä§Ã¡1⁄4÷Á¡
- ́Õ ̧ñ§1⁄2¡ð1⁄4õ MayoClinic.com |
| Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý
ÌÃø ̧û - ÀÌ3⁄4¢ 1 þó3⁄4ô Òò3⁄4 ̧õ Šì¦Ä§Ã¡1⁄4÷Á¡- ̈Åô ÀüÈ¢ ÅøÖÉ÷ ̧û
ÜÚõ ÁÕòÐÅò 3⁄4 ̧Åø ̧ ̈Ç «1⁄4ì ̧¢ÔûÇÐ. þ3⁄4¢ø Šì¦Ä§Ã¡1⁄4÷Á¡-Å¢ý «È¢ÌÈ¢ ̧Ç¢ý
ÀðÊÂÖõ, þ󧿡¡ø À¡3⁄4¢ì ̧ôÀð1⁄4 100 §¿¡Â¡Ç¢ ̧Ç¢ý ̧ ̈3⁄4 ̧Ùõ «1⁄4íÌõ. o÷ŧ3⁄4o
Šì¦Ä§Ã¡1⁄4÷Á¡ « ̈ÁôÒ |
| Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ? “ ̄í ̧û ̄1⁄4Ä¢ý o¢Ä ÀÌ3⁄4¢ ̧Ç¢ø, §3⁄4¡ø 3⁄4ÊòÐ, þÚ ̧¢ô
§À¡Â¢Õó3⁄4¡ø ±ôÀÊ þÕìÌõ ±ýÚ ¦ ̧¡ïoõ ̧üÀ ̈É ¦oöÐ À¡Õí ̧û. §ÁÖõ,
ÌÇ¢÷ 3⁄4¡í ̧ ÓÊ¡3⁄4¢Õò3⁄4ø, «Êì ̧Ê 2üÀÎõ ¦¿ï¦oâîoø, ãðÎ þÚÌ3⁄4ø,
ÁüÚõ À¢È ̄ûÙÚôÒ À¢ÃîoÉ ̈ ̧û ¬ ̧¢Â ̈ÅÔõ þÕó3⁄4¡ø?”. 2Á¢ ( ́Õ
...¢Šð1⁄4Á¢ì Šì¦Äá...¢Š §¿¡Â¡Ç¢Â¢ý Á ̧û) |
| Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ? ãðÎÅÄ¢ « ̈ÁôÒ («¦Áâì ̧¡) |
| Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ? ¦ÁÊ...¢ý¦¿ð |
| Šì¦Ä§Ã¡1⁄4÷Á¡
±ýÈ¡ø ±ýÉ? “Šì¦Ä§Ã¡1⁄4÷Á¡- ̈Åì ̧ñ1⁄4È¢ÅÐ ̧ÊÉõ. §3⁄4¡Ä¢ø
¦ÁøÄ ¦ÁøÄ Á¡üÈí ̧û 2üÀ1⁄4Ä¡õ «øÄÐ ̄1⁄4ø ̄ÚôÒ oÃ¢Â¡É Ó ̈È¢ø þÂí ̧¡3⁄4¢Õì ̧Ä¡õ.
¬ÃõÀ ̧¡Ä «È¢ÌÈ¢ ̧Ç¢ø o¢Ä.....” ̧É1⁄4¡-Å¢ý Šì¦Ä§Ã¡1⁄4÷Á¡ « ̈ÁôÒ |
| Information about
Scleroderma |
| Overview
of Scleroderma MayoClinic.com |
| History
of Scleroderma and School Report Resources. Help raise
awareness of scleroderma by doing a school report on it,
with help from these resources. International
Scleroderma Network. |
| History
of Scleroderma: Paul Klee and Scleroderma. Paul Klee
is perhaps the most famous person to have had scleroderma. International
Scleroderma Network. |
| The
Scleroderma Book: A Guide for Patients and Families by
Dr. Maureen Mayes. |
| Voices
of Scleroderma Volume 1 Book offers medical information
about scleroderma by leading experts. Includes scleroderma
symptom checklist, plus 100 personal stories of people living
with scleroderma and related illnesses. International
Scleroderma Network. |
| What
is Scleroderma? "Imagine for me if you would that
in certain areas of your body the skin has begun to thicken
and harden. Then on top of this, you have a painful sensitivity
to cold, frequent heartburn, stiff joints and various other
internal problems." Amy (Daughter of a Systemic Sclerosis
patient) |
| What
is Scleroderma? Arthritis Foundation (U.S.) |
| What
is Scleroderma? MedicineNet |
| What
is Scleroderma? "Scleroderma can be difficult to
diagnose. There may be slowly evolving skin changes or malfunction
of an organ. First symptoms may include..." Scleroderma
Society of Canada |
| Šì¦Ä§Ã¡1⁄4÷Á¡
§¿¡Â¡Ç¢ ̧Ç¢ý ̧ ̈3⁄4 ̧û |
| ...¢Šð1⁄4Á¢ì Šì¦Ä§Ã¡1⁄4÷Á¡ |
| ì¦ÃŠð
̧ ̈3⁄4 ̧û |
| Ê·äŠ
̧ ̈3⁄4 ̧û |
| Ä¢Á¢1⁄4ð
̧ ̈3⁄4 ̧û |
| μÅ÷Ä¡ô
̧ ̈3⁄4 ̧û |
| |
| §Ä¡ ̧ ̈ÄŠð Šì¦Ä§Ã¡1⁄4÷Á¡ |
| ģɢÂ÷
̧ ̈3⁄4 ̧û |
| Á¡÷·À¢Â¡
̧ ̈3⁄4 ̧û |
| Morphea
Stories (Italiano) |
| |
| ÁüÈ ̈Å |
| §¿¡ ̈Âì
̧ñ1⁄4È¢Å3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û |
| .þ…¢§É¡·À¢Ä¢ì ·À¡¨…ÊŠ |
| þý1⁄4÷ŠÊ„¢Âø
...¢Š ̈1⁄4ÊŠ |
| ŠÂ¡ì¦Ãý
...¢ýð§Ã¡õ |
| Scleroderma
Patient Stories |
| Systemic Scleroderma: |
| CREST
Stories |
| Diffuse
Stories |
| Limited
SD Stories |
| Overlap
Patient Stories |
| |
| Localized Scleroderma: |
| Linear
Stories |
| Morphea
Stories |
| Morphea
Stories (Italiano) |
| |
| Others |
| Difficult
Diagnosis and Undiagnosed |
| Eosinophilic
Fasciitis |
| Interstitial
Cystitis |
| Sjögren's
Syndrome |
| References |
| (1) Audio
pronunciations for this page are from Mirriam-Webster
Online Dictionary. |
