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Juvenile Scleroderma

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
What is Juvenile Scleroderma?
Juvenile Scleroderma Books
Juvenile Scleroderma Experts
Juvenile Scleroderma Research
Prognosis
Coping with a Child's Illness
Patient and Caregiver Stories
The most important thing to know juvenile scleroderma is that it is a form of arthritis, and
it is important to consult a juvenile scleroderma expert.

Overview


Juvenile Scleroderma Video
Presented by Isabella Ensz

When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. It is a form of juvenile arthritis. (Also see: What is Scleroderma? and Types of Scleroderma)

Over 90% of cases of juvenile scleroderma are localized, such as morphea, linear or en coup de sabre. These types affect only the skin, and not the internal organs. They do not reduce life expectancy in any way. Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis.

Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis. Localized scleroderma does not "progress" into systemic sclerosis, and only very rarely do the two diseases occur together.

Juvenile Scleroderma

New developments in juvenile systemic (jSS) and localized scleroderma (jLS). The new classifications, developments, and adaptations of the outcome measures for certain organ involvements whereby progress has been made regarding pediatric patients. PubMed, Rheum Dis Clin North Am. 2013 Nov;39(4):905-20.
Short And Long Term Outcome Of Linear Morphea (LM) In Children. Despite a wide range of therapeutics reported in LM, there is currently a lack of consensus on the optimal therapy. LM needs prolonged monitoring as the disease could have very long periods of quiescence followed by reactivation. PubMed, Br J Dermatol. 2013 Sep 6.
Clinical features of childhood localized scleroderma in an incidence cohort. Key findings included the high prevalence of face–head involvement in those with linear disease, and the high prevalence of extracutaneous disease and of ANA positivity. After 12 months, most patients improved according to clinician's opinion. Ariane L. Herrick. Rheumatology. July 5, 2011. (Also see: Localized Scleroderma)

Books for Juvenile Scleroderma

Books for Juvenile Scleroderma features the ISN's Voices of Scleroderma book series, which is base on our www.sclero.org web site! ISN.

Experts for Juvenile Scleroderma

Juvenile Scleroderma Experts. It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are better at preventing progression than healing any damage that has already occurred. ISN.

Prognosis for Juvenile Scleroderma

Prognosis for Juvenile Scleroderma. Localized scleroderma, such as linear, morphea, en coup de sabre, do not reduce a person's life expectancy. For children with systemic sclerosis (scleroderma), such as diffuse or limited/CREST, the survival rate is better for those who have adult onset. ISN. (Also see: Types of Scleroderma)
Overview
Prognosis: Localized (Linear/Morphea)
Prognosis: Systemic (Diffuse/Limited)

Research on Juvenile Scleroderma

Overview
Nailfold Capillaroscopy
Prognosis and Mortality
Treatments

Coping with a Child's Illness

Coping with a Child's Illness can be quite challenging, but with the right resources, knowledge and attitude, it is possible to continue to maintain a sense of normalcy for the child, the caregivers, and the family. ISN

Patient and Caregiver Stories about Juvenile Scleroderma

Allen's Mom: Son has Scleroderma With his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out...
Anita G: Localized Scleroderma This also started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms...
Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there...
More Juvenile Scleroderma Patient and Caregiver Stories...
 
Go to Localized: Linear Scleroderma
 

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