The most important thing to know juvenile scleroderma is that it is a form of arthritis, and it is important to consult a juvenile scleroderma expert.
Juvenile Scleroderma Video Presented by Isabella Ensz
When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. It is a form of juvenile arthritis. (Also see: What is Scleroderma? and Types of Scleroderma)
Over 90% of cases of juvenile scleroderma are localized, such as morphea, linear or en coup de sabre. These types affect only the skin, and not the internal organs. They do not reduce life expectancy in any way. Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis.
Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis. Localized scleroderma does not "progress" into systemic sclerosis, and only very rarely do the two diseases occur together.
Short And Long Term Outcome Of Linear Morphea (LM) In Children. Despite a wide range of therapeutics reported in LM, there is currently a lack of consensus on the optimal therapy. LM needs prolonged monitoring as the disease could have very long periods of quiescence followed by reactivation. PubMed, Br J Dermatol. 2013 Sep 6.
Juvenile Scleroderma Experts. It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are better at preventing progression than healing any damage that has already occurred. ISN.
Prognosis for Juvenile Scleroderma
Prognosis for Juvenile Scleroderma. Localized scleroderma, such as linear, morphea, en coup de sabre, do not reduce a person's life expectancy. For children with systemic sclerosis (scleroderma), such as diffuse or limited/CREST, the survival rate is better for those who have adult onset. ISN. (Also see: Types of Scleroderma)
Coping with a Child's Illness can be quite challenging, but with the right resources, knowledge and attitude, it is possible to continue to maintain a sense of normalcy for the child, the caregivers, and the family. ISN
Patient and Caregiver Stories about Juvenile Scleroderma
Allen's Mom: Son has SclerodermaWith his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out...
Anita G: Localized SclerodermaThis also started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms...
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