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What is Scleroderma? (MAIN MENU)
What is Scleroderma?
Books About Scleroderma
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Types of Scleroderma
Diagnosis of Scleroderma
Difficult Diagnosis
Causes of Scleroderma
Not Contagious or Cancerous
Systemic Symptoms
Treatments and Clinical Trials
About Scleroderma
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References
Types of Scleroderma: Overview
Overview
Two Main Types: Localized and Systemic
Determining the Type
Juvenile Scleroderma
Localized (Morphea, Linear, En Coup)
Nodular Scleroderma
Systemic Sclerosis (Limited/CREST, Diffuse, Overlap)
Juvenile Scleroderma
What is Juvenile Scleroderma?
Juvenile Scleroderma Books
Juvenile Scleroderma Experts
Juvenile Scleroderma Research
Prognosis
Patient and Caregiver Stories
Juvenile Scleroderma Experts
Juvenile Scleroderma Experts: It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are available for most forms of localized scleroderma, but they are better at preventing progression than healing any damage that has already occurred. (Also see: Linear Scleroderma Treatments and Scleroderma Experts)
Scleroderma Experts: US and worldwide listings. Only some of the expert centers treat children, and even fewer specialize in juvenile scleroderma. Please call the center(s) you are interested in for more information. ISN.
Italy: International Pediatric Center for Juvenile Scleroderma (both localized and systemic.) ISN.
New Jersey: Dr. L. Nandini Moorthy, Assistant Professor of Pediatrics at UMDNJ/Robert Wood Johnson Medical School. Featured expert on Juvenile Scleroderma in the ISN's book, Voices of Scleroderma Volume 2. ISN.
New York: Dr. Thomas Lehman, Chief of the Division of Pediatric Rheumatology at the Hospital for Special Surgery, Professor of Clinical Pediatrics at Cornell University Medical Center. Featured expert on Juvenile Scleroderma in the ISN's book, Voices of Scleroderma Volume 1 . ISN.
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International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)

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