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Localized Scleroderma: Morphea
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Juvenile Scleroderma
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Patient and Caregiver Stories
Morphea Patient and Caregiver Stories
(English) Morphea Stories
(Italiano) Morphea Stories
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English Morphea Patient and Caregiver Stories
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Ainhoa: Morphea I do not have most of the apparent and most common symptoms...
Alex: Mother of Daughter with Morphea My seven year old daughter has been diagnosed with Morphea...
Alex: Localised Scleroderma I am a 34-year-old woman from Italy and I have been suffering from localised scleroderma for about 20 years...
Alicia B: Localized Morphea with possible Parry Romberg Syndrome The doctor kept saying something had eaten away at all the fatty tissue and the muscles which left it just skin, blood, bone, and nerve so when you look at it, it looks like I have dirt on my face and a gaping hole to go with it...
Amber: Morphea with Possible Systemic Sclerosis My story with Morphea started two years ago. I went to a tanning salon...
Andie Friend: Morphea I want to share my story with scleroderma that is nearly eighteen years old now...
Andrea H: Mother of Son with Facial Morphea I am the mother of a six year old boy called Alex who is suffering from facial scleroderma...
Ang: Morphea and Fibromyalgia I was diagnosed with morphea in February 2002, but had this for a year prior to that without knowing exactly what the diagnosis was...
Anita G: Localized Scleroderma This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms...
Anna B: Morphea My Morphea started as bruise-like marks on the backs of my legs about three years ago, after I had just fought cervical cancer and won...
Annabella: Mother of Daughter with Linear/Morphea Scleroderma A mother's intuition never fails. When I first noticed the marks on my little girl's left thigh during bath time last summer, I got a sick feeling in my stomach...
Ariel: Linear Morphea Luckily, it only affects my skin, so I can still dance and play the piano...
Ariel D: Pansclerotic Morphea My first treatment was chemotherapy, then steroids, then light treatment...
Ashlin: Localized Scleroderma It took me five months to realize that I needed to go to the doctor, and now I feel that I should not have waited so long...
Avril: Morphea The consultants in Nottingham, United Kingdom, have all shaken their heads in shock and said that they cannot provide treatment to me...
Awilda: CREST and Morphea Scleroderma In 1971, I had the first symptoms of Raynaud's. I'm  53 years old and live in Puerto Rico...
Becky: Morphea and Fibromyalgia The muscle in my forearm has already atrophied, and it has only been four weeks...
Becky S: Morphea Scleroderma I worry that if the morphea spreads to my face I would not be strong enough to cope with it...
Beth: Morphea Scleroderma It is nice to hear familiar stories. I do not feel like such a freak. My dad used to tell me I could join the circus and be a side show as the spotted girl...
Betty W: Morphea That was in 1984. Twenty-two years later I am fine except for some ugly spots on these places...
Bill M: Localized Scleroderma All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever...
Blanca: Morphea It has been very painful emotionally watching it just takes over my body with no recourse to find a cure...
Bregan: Mother of Daughter with Morphea (New Zealand) My fourth child, who is now seven years old, has just been diagnosed with Morphea...
Brenda K: Morphea Scleroderma I was diagnosed with Morphea Scleroderma about twelve years ago. It started with a dark linear mark on my lower back...
Bri: Morphea Scleroderma I am currently waiting to have plastic surgery. They are going to do reverse liposuction; taking some fat and tissue from my left leg and then inject it into my right leg...
Brittney: Morphea My daddy tells me all the time that a man will fall in love with me for me and my skin will not even be a factor...
Cara: Morphea Scleroderma I recently saw a rheumatologist who says it's limited or localized scleroderma...
Cara R: Morphea The cream made my skin burn so I stopped using and it and now (about ten months later), the hard discolored skin has spread over most of my upper left thigh and it has started hurting...
Carla M: Morphea I am a twenty-nine year old mother of three. I have localized morphea on my lower back...
Caroll: Morphea I would like to know from someone who has children, as to whether my daughter can develop the same thing...
Charmaine C: Lichen Sclerosus and Scleroderma Soon multiple spots developed across my abdomen, with a few stray ones on my forearms and more on the left leg...
Chloe: Morphea I dreaded the mandatory swim class at my elementary school due to the same question that was asked by curious children over and over again, "Do your parents beat you? How come you have such bad bruises?"...
Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there...
Christine: Morphea and Lichen Sclerosus et Atrophicus I would love to know if there are any other solutions out there. Even ways to cover up a bit when I am in my bathing suit...
Christine M: Morphea My doctors do not know what to do anymore and that is the scary part for me...
Cindy E: Morphea Scleroderma I now have an area that grew much faster and larger than any of the marks I had as a child...
Connie D: Morphea Scleroderma At age sixteen I developed what I thought were bruises on the biceps of both arms...
Crystal: Morphea It is a very misunderstood disease. There are so many different types. I have mine on my spine, oval shaped and looks like a bruise...
Crystal R: Morphea One day when I was at school I was called to the office and asked if my parents were abusive...
Damaris: Morphea I am wondering if there is any treatment for this....
Daynelle: Morphea Needless to say, I do not want anymore spots and I am terrified of this spreading...
Desiraye: Linear Morphea When I was 14 years old, I spent the whole summer laying out in the sun. I developed a white patch that my mother thought was ringworm...
Dienne: Morphea plus possible CREST I finally saw a rheumatologist about 6 years ago, who told me I had Raynaud's and Telangiectasia (spider veins) on my hands...
Doreen: Mother of Morphea Scleroderma Patient My daughter Corinne was diagnosed with Morphea when she was six years old. She is now 22...
Doris: Morphea I was diagnosed with morphea in 2006. It started with itching that would not stop and now after a year and a half later it is still itching and painful...
Dot: Mother of Morphea/Linear Patient I have read many of the stories posted and have felt encouraged by them...
Ed: Father of a Linear Morphea Patient A series of medications, steroids and creams has been applied, but Erwin's case seemed to be worsening...
Eliza: Daughter-in-Law of Morphea Patient (Poland) Who should we listen to? Who is right? Where should we look for help?
Ell: Morphea Scleroderma When I was seventeen I got three ridged circular marks on my arm, near the wrist...
Emily: Undiagnosed (Switzerland) I have had scleroderma for almost six years. For over four years doctors haven't said anything, surely because they do not even know what exactly is happening to me...
Emma C: Living with Localized Morphea Some of my earliest childhood memories are of my mother taking me to see doctors who were baffled by the strange marks on my back...
Erica: Mother of Daughter with Linear/Morphea Scleroderma She went there with one spot and now she has them all over both arms, one hand, her back, knee and thigh...
(Polski/Polish) Historia Elizy: Morfea Mam na imie Eliza i wlasciwie nie chodzi o mnie tylko o moja tesciowa.
Ewa: Mother of Localized Scleroderma Patient (Poland) Only sometimes when he plays in the yard I can hear his friends asking: "Why do you have such leg?"
Faye: Morphea Scleroderma At the age of about six or seven, I developed what looked like a bruise on the front of my left thigh. It started off as a small purplish spot...
Federica: Morphea I have had localized morphea in my lower back for two years...
(Español/Spanish) Francisco: Esclerodermia Morfea Tengo manchas de variados tamaa'os en la espalda, el muslo, el brazo, la mano, el pie, y en la cintura, todas en el hemisferio izquierdo...
Gaynor: Morphea and Possible Systemic Sclerosis I was diagnosed in 2003 with morphea. It began as a bruise-like patch on my upper right arm...
Gena P: Morphea I was diagnosed with morphea at the age of twenty-seven. It was a long process for diagnosis...
Georgina: Mother of Child with Morphea The only thing I know about it is what her doctor told me, namely that it has no cure...
Gina: Morphea or Linear Scleroderma I really try to put it out of my mind and be thankful that it is not systemic. But, every time I notice new areas turning color it really worries me...
Gina: Morphea or Linear Scleroderma I really try to put it out of my mind and be thankful that it is not systemic...
Gingy: Localized Scleroderma (Italy) In September 2006 I was told that I might have localized sclerodermia after I discovered dark marks and my skin hardened in my left forearm...
Giovanna: Sister of Morphea Scleroderma Patient My name is Giovanna Petrachi, and I am from Italy. My sister (who is 35 years old) has had Morphea for over 10 years now...
Halina: Mother of Daughter with Morphea (Poland) My daughter was four, when I discovered a small spot on her left foot...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Hope: Linear Morphea My mom took me to the doctor and for three months he treated it as ringworm...
Iman: Morphea When it got too hot and I would take off my jacket, people would be so disgusted with my arm. I would always cry about it...
Ivone: Morphea My dermatologist has said that this has no cure, but that I am stable...
Jackie J: Localized Scleroderma Initially I noticed a dark patch on my left forearm and the front of my left thigh...
Jacqueline: Morphea Scleroderma I have multiple grayish/brown/ and white spots on my sides, stomach, and back. The one on my left side is huge...
Jan L: Linear Scleroderma and Vitiligo I was not ever overly concerned with my looks, so I really did not pay that much attention to it...
Jane S: Mother of Morphea Scleroderma Patient In 1990 my healthy and bright six-year-old daughter complained of her right foot itching and hurting...
Janie: Morphea And it scares me because the feeling I have on my back is weird...
Jason G: Morphea I went to see a rheumatologist, who unfortunately originally told me that morphea has been known to lead to systemic sclerosis. Obviously, he was wrong about this, and later admitted that he spoke too soon...
Jen: Scleroderma Morphea About six weeks ago, I hit a low when I discovered new spots on my arms and neck...
Jennie: Morphea Scleroderma I have spent six years with an ugly white rash on my neck. During those six years, the doctor experimented with different treatment...
Jennifer B: Morphea Scleroderma I am now 24 years old. I still have the permanent "bruise" on my left knee...
Jennifer Gayton: Mother of Morphea Patient Last May we noticed what looked like a bruise on our daughter's stomach...
Jennifer M: Mom of Linear Morphea Patient Almost the minute that the doctor walked into the room she knew what it was. The first words out of her mouth were, "That's linear morphea"...
Jenny M: Morphea Scleroderma I was told it was a fungus, then that it was clearly all in my head. I went to a dermatologist who told me I had vitiligo, and then that it was lichen sclerosis...
Jenny S: Morphea, etc. After a biopsy, I was diagnosed with morphea at age fourteen. A small spot, size of a quarter on my lower back that progressed to the size of two of my hands...
Jessica: Morphea I know I will not let this morphea stop me. I am going to continue living life to the full like any other twelve-year-old girl...
Jo: Mother of a Child with Morphea Scleroderma Last year during the summer we noticed that our daughter had a blotchy, purple/red "rash"...
Joanna: Morphea The first dermatologist said I had more spots than he could find on any one person in his medical books and treated me with a steroid tape that I had to cut into the shape of each spot on a daily basis...
Joe Joe: Morphea Because such a large area of my body is attacked my doctors believe that my internal organs are also affected...
Joe S: Morphea Scleroderma I am 42 and have had Morphea for about 15 years now. I have too many bruise-like marks on my body to count...
Jose Luis: Morfea (Mexico) I am 17 and going though a difficult time. I need help and I hope someone will hear me and tell me something...
Joshua: Morphea My morphea doesn't look like most. In fact, it looks almost star-shape, mostly because it is in lines and not a solid shape. It is not hard either, so my fear is that it could be keloid morphea...
Joy: Mom of Cassi, Who Has Morphea I carefully checked the bruises; Cassi (age 6) said that they did not hurt and she did not have anyone hit her...
Judy C: Mother of a Daughter with Linear Morphea Scleroderma Three months ago, our oldest daughter, Alison, was diagnosed with Linear Morphea Scleroderma (Juvenile Scleroderma)...
Julian: Morphea About thirteen years ago I got a little white spot in my thigh (coin-like)...
Julie: Morphea Scleroderma I am now thirty-two years old and have had morphea for almost twenty years. Unfortunately, it has not stopped as it has taken over a lot of my body...
Julie B: Mother of Linear/Morphea Scleroderma Patient Her right leg is badly affected with a lot of scarring and muscle wasting and also the leg length...
Karina: Mother of Morphea Patient The doctor says it will be under control, and that it is a good thing that it is localized and hasn't spread...
Katie: Morphea I developed Morphea on my lower abdomen around the time I was twelve years old...
Kendall: Morphea Scleroderma In August 2001, I found a small purple thing on my hip...
Karen: Mother of Generalized Guttate Morphea Patient As the mother of ten-year-old daughter who has been struggling with what she refers to as "weird skin", I was so pleased to come across this web site to share our story...
Karen A: Morphea Scleroderma I am a 34-year-old female who has been bounced around for 2-1/2 years from oncologists to rheumatologists...
Kasra: Son of Morphea Scleroderma Patient (Iran) Please help me. The doctor that we went to in 1990 is now dead, and the doctors in Iran do not have much information about this kind of disease...
Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents...
Kathy P: Localized Scleroderma I was diagnosed with Focal or Localized Scleroderma (Juvenile Scleroderma) at the age of eighteen months...
Kathy R: Localized Scleroderma I was diagnosed with Localized Scleroderma when I was six months pregnant with my son in 1965. It started at the time with blotches on my right arm...
Katie W: Morphea The worst part for me is that because I do not have a very severe case of it, I sometimes feel like it is not real...
Katy: Morphea Scleroderma It took nearly a year to get my diagnosis. The first two doctors told me I had ringworm...
Kay: Linear Morphea Scleroderma I saw a dermatologist at Mayo Clinic who included me in Grand Rounds where every dermatologist at the clinic got to see my patches...
Kelli: Morphea Scleroderma I am a twenty-six-year-old, married, mother of two girls in Texas. I was diagnosed with Morphea in the first grade...
Kiara: Morphea Scleroderma (Italy) My name is Kiara, I am 19 years old and I have had Localised Scleroderma (Morphea) for 14 years...
Kichy: Morphea Scleroderma I am a thirty-four year old professor at the Autonomus University of Chihuahua. A month ago, I was diagnosed with localized morphea...
Kimmy: Morphea My morphea started off as a little bump on my stomach. So I went to a surgeon and he said that is not a cyst, it is a disease...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
Krys: Morphea Scleroderma I am still not comfortable with the scar but I have been free of scleroderma for quite some time...
Kym P: Morphea It started almost seven years ago, when I developed an odd looking bruise about the size of a quarter on my shin. The next couple of years it slowly changed...
Lama: Morphea Scleroderma If anyone reads this, please send me an e-mail and tell me anything you know about morphea...
Lama S: Morphea Scleroderma (UAE) It makes me feel great to know that he wants to marry me and spend the rest of his life with me as if these spots weren't bothering him at all...
Lancia: A Friend of a Morphea Patient (Italy) Some time ago a beloved friend of mine was diagnosed with scleroderma...
Larella: Mother of Son with Morphea Cody can't cover up the scarring and he can't hide from the stares or questions, but since he dyed his hair green...
Laura C: Mother of Morphea Scleroderma Patient My 13-year-old son was diagnosed with morphea in September 2000. He is very athletic and does not seem to have any physical limitations from it...
Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit...
Laura S: Morphea Scleroderma It is frustrating that there is such a lack of knowledge for this condition and that I have had to go through the last thirteen years with very little support from doctors...
Liliana: Morphea (Argentina) I have spots in my legs, hips, back and some in my arms...
Lina: Morphea Scleroderma I am twenty-five years old and two weeks ago I was diagnosed with scleroderma. I went to see a rheumatologist and he said my case wasn't very important...
Linda: Morphea Scleroderma I wonder if any of you who read this, know any methods of treatment...
Lindsey Z: Morphea Scleroderma I was self conscious in fear that others would care, or find me ugly because of it...
Lisa D: Morphea Scleroderma I have had morphea scleroderma for twenty-eight years. I first noticed it when I was seven years old...
Lisa S: Morphea Scleroderma I am nineteen now and I am just wondering if this could get any worse and if I should be getting it checked out more with a specialist...
Lisa T: Morphea Scleroderma When I was about thirteen years old I developed white marks around my neck where the skin was thinner than the rest of the skin on my body...
Liz: Localized Scleroderma: Morphea Over the next eight months I was misdiagnosed by three different doctors who told me I had Tinea Versicolor (a type of fungus)...
Lynne: Morphea Scleroderma One day when I was seven years old, my family and I went swimming in the local river...
Madhu Bhatia: Morphea (Delhi, India) When will I get respite and correct diagnosis? Pain on the wound is excruciating. I am entangled in a web of doctors with no clear diagnosis...
Maggie M: Lichen Sclerosus et Atrophicus and Generalized Morphea I had to seek medical help when I realized that it was spreading and getting considerably worse...
Mandy: Mother of Morphea Patient My daughter was in the eighth grade, busy with end of school year activities and in training with her swim team, when she noticed a hard area on the right side of her neck...
Margot: Morphea, Linear and En Coup de Sabre I first went to a medical clinic when I noticed a small brownish mark on my stomach resulting in a doctor telling me I was wearing my jeans too tight!
Martina: Linear Morphea (Ireland) I am twenty-four years old. I was diagnosed with linear morphea in September...
Mary L: Morphea My mom had the department of child services call on her because someone said I was all "bruised". I was denied enlistment into the United States Army because of this disease...
Marzia: Morphea (Italy) I am a twenty-two-year-old girl. Three years ago I described my situation on this site in Italian...
Meghann: Morphea Scleroderma I am 16 now and have had morphea for about 2 to 3 years. When I first started to develop small red spots on my trunk...
Melanie W: Linear Morphea Scleroderma The only good thing about this disease is that it makes you a better person....
Michelle (JR): Morphea Scleroderma My doctor had never seen anything like this, and prescribed some cortisone cream assuming it was a fungus and it would disappear in a week...
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
Millie: Morphea I was diagnosed with morphea scleroderma two years ago at age eleven. I want to know more people like me...
Monika K: Morphea Scleroderma I got a bad sunburn on my back and shortly after the burn healed my Mom noticed a football shaped blotch...
Myle: Morphea I went to a dermatologist, who at first told me it was some type of fungus and treated me accordingly. But the spot kept on growing and changing in colour and aspect...
Nats: Morphea One thing I often wonder about is whether this condition could have been caused by a tetanus jab I had a few weeks before I noticed the first mark appearing...
Nucci: Morphea (Italy) My disease was diagnosed in 1998, although my first tests were done about two years before at one of Italy's best dermatology hospitals...
Pamela W: Morphea Scleroderma My problem started as what I thought was a bruise about the size of a dime under my arm...
Patchlady: Morphea I am very scared that it could get worse, and have not been given any indications on how to treat it...
Patricia M: Morphea When I was pregnant with my first child, I was surprised one day to wake up and look at my breasts, which looked as if they were on fire...
Patti: Generalized Morphea I have patches all over my body, including my hands and feet and "something brewing" on my face...
Phyllis: Morphea At age 63, I noticed shiny places on my abdomen. I thought it was a fungus. I would welcome any e-mails from anyone with this disease...
Rachel: Morphea Scleroderma I have learned to control the use of addicting medication and to manage the pain as well as possible...
Robert B: Morphea I am tired all the time. My foot is swollen and sore making it hard to walk...
Roberta: Morphea Sono una ragazza di 25 anni e due giorni fa mi stata riscontrata una macchia sull'avambraccio destro compatibile con la diagnosi di morphea...
Rhea: Morphea The giant spot on my back started out as Morphea and then started gaining more qualities of Linear Scleroderma...
Rubie: Linear Morphea Scleroderma I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Shaz: Mother of Son with Morphea My seven-year-old son has had morphea since he was five years old and has just been diagnosed with localized scleroderma...
Shelby: Morphea Scleroderma I was diagnosed with morphea scleroderma the day of the September eleventh terrorist attacks...
Silvia: Mother of Son with Morphea He went to a dermatologist and got a biopsy done. His diagnosis was "Late stage of Morphea"...
Stephanie: Morphea Scleroderma I have bruise-like patches all over the trunk of my body...
Stephanie L: Morphea I have also had numbness in my arms, legs and face for the past two months. The doctors do not believe they are related to each other, but it does seem strange that it happened within the same year...
Sheryl: Morphea The brown spots have spread all over my body including my face...
Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
Sue M: Morphea Scleroderma At present, I have blemishes on my face, chest, hips, feet and arms...
Suzy H: Mother of Daughter with Morphea She is twelve now, and although it has not gotten worse, it does not seem to be getting any better...
Takeya: Morphea Scleroderma "I thank God that it's not harmful to me or the baby..."
Tami: Morphea Scleroderma I have gotten used to the stares everyone casts my way because in their eyes I am different. Unique, I guess...
Tammy: Mother of Son with Linear and Morphea Scleroderma Brandan has linear scleroderma on his right side and morphea on his chest pretty bad...
Tammy W: Morphea Scleroderma I am thirty-one years old and I have just recently been diagnosed with what I think he called "Spotted Morphea"...
Tata: Morphea The skin from my ankle all the way up to my knee was completely fused to my bone...
Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy...
Terry E. (Mojoy the Clown): Morphea Profunda Linear Scleroderma My right lower leg started to swell and the ankle grew big. It hurt all the time...
Thomas: Brother of Morphea Patient We just do not know anything about it and my mom is really sad because my sister is only seven...
Toni H: Morphea Scleroderma I was diagnosed as a child with a strange skin complaint, but was given no information about it...
Tonya: Morphea Scleroderma I have avoided the sun like the plague since my initial diagnosis and am wondering if it will help to hide the brown spots by tanning?
Tori: Localized Juvenile Scleroderma This is not the first rare disease that I have had...
Tui: Limited Systemic Scleroderma I am wondering whether such treatments will be ongoing?
Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old...
Vivian: Morphea Truth is that for now my health hasn't been too effected, but emotionally it becomes quite hard...
Wendy: Morphea My diagnosis was back when I was in junior high school. At that time I had one hard shiny patch of skin on my forearm and...
Wendy B: Mother of Daughter with Morphea and Vitiligo Does anyone else have Morphea and vitiligo? And what is the outcome?
Yally: Dermatitis with Linear/Morphea My daughter has a spot on her left leg, that almost covers it completely...
Zuly: Morphea I would like to help people who suffer from it and get to know others with the same illness...
Italian Morphea Patient and Caregiver Stories
Sclerodermia dalla A alla Z: Cos'è la Sclerodermia ISN Italian version.
Anna: Morphea Circa otto mesi fa mi č stata diagnosticata una sclerodermia del tipo morphea...
A. Rita: Morphea Sono una signora di 42 anni affetta da morfea localizzata sulla spalla sinistra...
Alessandra: Morphea Se c'è qualcuno che presenta i miei stessi sintomi chiedo di contattarmi...
Alex: Scleroderma Localizzata Sono una donna di 34 anni e sono affetta da sclerodermia localizzata da 13...
Emily: Non Diagnosticada Da quasi 6 anni ho sclerodermia. Per ben 4 anni i medici non mi hanno detto niente, sicuramente perché neanche loro sapevano bene cosa avessi di preciso...
Erika: Morphea Prima mi scuso per il mio italiano, perché sono una ragazza Albanese di 23 anni...
Eugenia: Morphea Mi chiamo Eugenia ed abito in provincia di Ferrara. Da diversi anni soffro di sclerodermia a chiazza detta Morphea...
Fabiola: Paziente Affetta da Sclerodermia Morphea Dopo 5 anni si e' svegliata una sclero conseguenza pero' della GVHD (Graft Versus Host Disease) che viene dopo il trapianto di midollo...
Federica: Morphea Da due anni sono affetta da Morphea localizzata in fondo alla schiena e dopo un anno su quasi tutta la parte superiore della schiena...
Gingy: Sclerodermia Localizzata A settembre 2006 mi viene detto che potrei avere la sclerodermia localizzata poiché sull'avambraccio sinistro ho la pelle "dura" e delle macchie scure...
Giovanna: Figlia di donna colpita da sclerodermia morphea Salve sono Giovanna Petrachi. Mia sorella (35 anni) è affetta da sclerodermia da ormai molti...
Kiara: Morphea Sclerodermia Sono Kiara, ho 19 anni e da 14 anni sono affetta da Sclerodermia limitata (Morphea)...
Lilli: Morphea Dopo qualche tempo notai delle macchie scure sulla parte anteriore di entrambe le gambe...
Lucia: Sclerodermias a Colpo di Sciabola La lesione c depressa, larga circa un centimetro,di coloro scuro, localizzata in posizone centrale sulla fronte...
Marzia: Morphea Spero solo che ognuno riesca ad uscirne fuori senza troppi problemi...
Nucci: Morphea La malattia di cui sono affetta mi è stata diagnosticata nel 1998, anche se i primi accertamenti sono stati eseguiti...
Roberta: Morphea Sono una ragazza di 25 anni e due giorni fa mi stata riscontrata una macchia sull'avambraccio destro compatibile con la diagnosi di Morphea...
Ru: Non so che tipo di sclerodermia ho Penso che sofro di morphea,ma non lo so esanamente...
Speranza: Figlia di donna colpita da sclerodermia morphea Mia madre ne è affetta da circa 8 anni e fino ad ora è andata peggiorando di mese in mese...
Valentina: Morfea Gia' mi comporta una vergogna per andare al mare o per legare i capelli...
Valentina A: Morphea Fortunatamente, grazie ad un dottore fantastico insieme ad altri, la mia malattia è stata bloccata...
(Also see: Sclerodermia dalla A alla Z)
Spanish Morphea Patient and Caregiver Stories
La Esclerodermia desde la "A" hasta la "Z" ISN Spanish version.
Ainhoa: Morfea Esclerodermia La piel no está dañada, y es el músculo el que tiene una depresión cada vez mas pronunciada...
Anita G: Esclerodermia Localizada También comencé con una manchita que creí insignificante pero con el tiempo se extendió, y se fueron agravando los síntomas...
Caroll: Morfea No se si alguien tenga hijos porque me preocupa demasiado saber que mi hija pueda desarrollar lo mismo...
Francisco: Esclerodermia Morfea Tengo manchas de variados tamaa'os en la espalda, el muslo, el brazo, la mano, el pie, y en la cintura, todas en el hemisferio izquierdo...
Georgina: Madre de Paciente con Morfea Lo único que sé es que es una enfermedad incurable, por que es lo único que me explico su doctor...
Ivone: Esclerodermia Morfea Mi dermatóloga me ha dicho que esto no tiene cura, pero lo mío está estabilizado...
Jose Luis: Morfea Tengo 17 años y estoy pasando por una etapa difícil. Necesito ayuda y ojalá me escuchen y me aconsejen...
Julian: Morfea Hace como 13 años me salio una mancha blanca pequeña (en forma de moneda)...
Karina: Esclerodermia Localizada Morfea/Madre de Paciente Finalmente hace unos días me dieron el resultado, estoy un poco asustada, es la primera vez que escuché tal palabra...
Kichy: Esclerodermia Morfea Tengo 34 años de edad y soy profesora en la Universidad Autonoma de Chihuahua. Hace un mes fui dignosticada con esclerodermia morfea...
Laura H.: Morfea Lineal Al principio no le dí mucha importancia porque pasaba el tiempo y seguía igual, pero ahora pasado un año todo ha cambiado...
Liliana: Escleroderma Morfea (Argentina) Mis manchas están en piernas, caderas, espalda y algunas en los brazos...
Lina: Esclerodermia Morfea Tengo 25 años y hace 2 semanas me diagnosticaron esclerodermia. Fui con reumatólogo y le restó importancia a mi caso...
Myle: Esclerodermia Morfea Fui con un dermatólogo que en principio me dijo que era un hongo, y me envió un tratamiento para los hongos, pero la mancha seguía creciendo, y cambiando de color y aspecto...
Nora: Esclerodermia Morfea Les agradeceria que me dieran mas informacion a cerca de los tratamientos...
Rodolfo: Esclerodermia Morfea Y recibi asistencia por una Dra aqui en Peru. Y por motivos que no puedo entender no pude seguir con el tratamiento...
Silvia: Madre de Paciente con Morfea Fue al especialista, dermatólogo, y le hicieron una biopsia, donde le salió como diagnóstico "Cuadro Morfologico en Etapa Tardia"...
Tata: Morfea Hace unos 4 años comenzo a extenderse en la pierna y fueron apareciendo otras manchas en mi brazo derecho, espalda, en mi cintura y desde el tobillo hasta la rodilla tenia pegada totalmente la piel al hueso...
Violeta: Esclerodermia Morfea Pero en cuba no hicieron mucho por nosotras mas que tratarnos como ratones de laboratorios ya que no terminaban de asombrarse por la similitud de las dos enfermedades, hace 4 años...
Vivian: Morfea La verdad es que por ahora no me ha afectado en mi salud pero sí emocionalmente pues es difícil...
Yally: Dermatitis con Consistencia en Morfea/Lineal Mi temor siempre ha sido el consumir indefinidamente la droga...
Zuly: Morfea Quisiera ayudar a las personas que la padecen y conocer otros casos...
(Also see: La Esclerodermia desde la A hasta la Z)
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(We are also known as the Scleroderma from A to Z web site.)
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