|What is Limited Scleroderma?
Diagnosis of Limited Scleroderma
Research for Limited Scleroderma
|Online Support for Limited Scleroderma
Patient and Caregiver Stories
CREST Syndrome does not necessarily have any skin tightening at all. The CREST term has fallen into disuse by experts, who were frustrated because many doctors were just diagnosing CREST and failing to identify further, whether it was Limited or Diffuse Scleroderma.
Limited Scleroderma (CREST Syndrome). For some people, the problems caused by limited scleroderma are minor. For others, limited scleroderma can be life altering and even fatal. Mayo Clinic.
Limited Scleroderma is diagnosed when there is tight skin limited to the hand, along with either pitting digital ulcers (secondary to Raynaud's) and/or lung fibrosis. This is considered to be a "milder" form of Scleroderma. The skin of the face and neck may also be involved in Limited Scleroderma.
Limited Scleroderma often causes Raynaud's and esophageal problems. Occasionally other internal organ involvement occurs, but usually only after many years of the disease. The onset and progression of Limited Scleroderma is usually very slow, and the outlook in general is very good. (1)
ISN's Sclero Forums, Chats, Blogs and Videos is a well-moderated worldwide online support community for people affected by scleroderma (including limited scleroderma) and related illnesses. ISN.
Amy B: Limited Scleroderma with CREST I am a full time pharmacist in a pediatric hospital. In February or March of this year, I began to be very intolerable of the cold...
Brenda: Limited Scleroderma, CREST, Raynaud's I was sick for five or six years, telling doctors how much pain I was in...
Christene: Limited Scleroderma I was diagnosed when I was just nineteen and at that time it was one of the scariest moments of my life...
(1) Learning About Scleroderma. North East Valley Division of General Practice, Victoria.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team or Volunteer.
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Ask for our Welcoming Email!
Toll Free US/Canada Scleroderma Hotline
*5-13-2015: This is a temporary number while our usual 1-800-564-7099 is being ported to a new provider.