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Postmortem Resources for Scleroderma (MAIN MENU)
Postmortem Overview
Autopsy
Cadaver Research		 Organ Donation
Tissue Donation
Remembrance Resources
Remembrance Resources
for Scleroderma and Related Illnesses
This page was written by Shelley Ensz and has not yet been medically edited. See disclaimer.
Our Condolences
Financial Donations and Bequests
—Donating in Memory
—ISN/SCTC Research Fund
—Morticians, Funeral Arrangements		 Written Legacies
—Stories in Loving Memory
—Submit Your Story
—Books for the Bereaved
Our Condolences
Our Heart Goes Out to You!

Flowers in Loving Memory of Syl, by Sherrill Knaggs, ISN ArtistIf you, or someone you care for, has lost a friend, relative or co-worker to scleroderma, our heart goes out to you!

Unfortunately, systemic scleroderma is all too often disfiguring, disabling, and deadly. It leaves in its wake devastated loved ones. We may feel relieved that they are no longer suffering but, of course, we are bereft that they are gone.

Sometimes the illness moves so quickly or silently, or the diagnosis is so delayed, that we feel deprived of a chance for closure.

Ways in which we have dealt with our grief include donating in memory of our loved one; supporting medical research; writing a story in remembrance of them for posting on our website; and volunteering for scleroderma organizations.

In fact, many of us became involved in the cause of scleroderma only after our loved one had passed away. Usually we were too occupied trying to keep pace with their illness, or in denial that anything was seriously wrong with them, or simply unaware of how devastating scleroderma could be.

Please remember that we are always here for you. We are truly sorry for your loss, and we welcome your participation in the cause of scleroderma, in whatever manner and at whatever time that suits you best.
Financial Donations and Bequests
Donating in Memory
Donating In Memory. Remember your loved one by making a difference throughout the world by donating in their memory to the nonprofit International Scleroderma Network. We acknowledge each donation on this website, by mail, and in our newsletters. ISN.
ISN/SCTC Research Fund
ISN/SCTC Research Fund. Donating to the ISN/SCTC Research Fund is a wonderful way to make a longlasting difference for scleroderma! The fund supports international peer-review research by the world's top experts in scleroderma. ISN.
Mortuaries, Morticians, Funeral Arrangements
Mortuaries, Morticians, Funeral Arrangements: If the family requests donations for scleroderma, you may collect the donations and forward them to the nonprofit International Scleroderma Network (in U.S. funds, please) with our simple ISN Print and Mail Form.

cardWe promptly send lovely acknowledgement cards for every donation, and honor the memory of the deceased on our website and in our newsletters, too. We will also link to their obituary notice if donations are requested to the "International Scleroderma Network". We encourage you to call our hotline (US toll free 1-800-564-7099 or direct dial 952-831-3091 (U.S.)) or email us at donations@sclero.org, so that notices can be placed on our website promptly.
Written Legacies
Stories in Loving Memory

Scleroderma Survivors: In Memory Of. Our collection of stories of love and remembrance, by those who have lost a loved one to scleroderma or related illnesses. ISN.
Submit Your Story in Loving Memory
Submit Your Scleroderma Patient, Caregiver or Survivor's Story. Add meaning and remembrance to your scleroderma journey while raising awareness and providing support to others, all at the same time. ISN.
Books of Comfort for the Bereaved
Each volume in the Voices of Scleroderma book series features stories in memory of those who have died from scleroderma and related illnesses. The series is produced by the nonprofit International Scleroderma Network and is a top notch resource for medical information and support. ISN.
Keep on Surfing!
Go to Conditions Associated with Scleroderma
Hon Code Accredited ISN Guidestar Listing You Are Not Alone!
Since 1998, we have complied with the HONcode standard for health trustworthy information: verify here. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit. Check our nonprofit status with Guidestar.org Please let us know how we can help you.
Warm Hugs,
Shelley Ensz, ISN Founder & President
Contact ISN
Inquiry Form (English) Mail-In Donation/Order Form Online Donation/Order Form
Inquiry Form (Spanish) Website: www.sclero.org Please contact us in English.
Email: isn@sclero.org or
webmaster@sclero.org
Or post a message in our Sclero Forums!		 International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702 USA		 Toll Free Hotline in U.S.
1-800-564-7099
Direct Line 952-831-3091 (U.S.)
Remember
The most important thing in the world to know about scleroderma is sclero.org!
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All Rights Reserved