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Scleromyxedema, Lichen Myxedematosus or Papular Mucinosis

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
What is Scleromyxedema?
Causes of Scleromyxedema
Treatments for Scleromyxedema
Scleromyxedema Support
Scleromyxedma Personal Stories
References

What is Scleromyxedema?

Scleromyxedema is a scleroderma-like condition. However, it causes thickening and hardening that makes the skin look too ample, rather than too tight, as in scleroderma. It is also referred to as Scleromyxedema of Groton, lichen myxedematosus, and papular mucinosis. (2)

Causes of Scleromyxedema

Scleromyxedema. The underlying cause of scleromyxedema remains unknown. In a few cases, it has been reported in association with cancers of the bone marrow such as myeloma, lymphoma and leukemia. Genetic and Rare Diseases Information Center.

Treatments for Scleromyxedema

Scleromyxedema with Subcutaneous Nodules: Successful Treatment with Thalidomide and Intravenous Immunoglobulin. Karger, Case Reports in Dermatology, Vol. 5, No. 3, 2013.

Scleromyxedema Support

Scleromyxedema Online Support Groups. We currently have two support groups with over 100 members. Bonnie, Scleromyxedema.com.

Scleromyxedema Personal Stories

Phyllis K. Phillips: Scleromyxedema I have been living with scleromyxedema for ten years, and as you may know, there is very little information about it...

References

(2) Scleromyxedema information from the book Systemic Sclerosis, First Edition by Dr. Phil Clements and Dr. Daniel Furst, pages 100-102.
 
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