| LUNG (PULMONARY): MAIN MENU |
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| Pulmonary Fibrosis (MAIN MENU) |
| This page was written by Shelley Ensz, and has not yet been medically edited. See Disclaimer. |
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| Living with Pulmonary Fibrosis |
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| Living with Pulmonary Fibrosis |
| Living with Pulmonary Fibrosis requires a constant awareness of your symptoms, your breathing, your surroundings, and your overall well-being. Work closely with your doctors on treatments, diet and exercise. If you require oxygen therapy, use it. It protects your heart as well as improves the quality of your life. ISN. |
| Living With Idiopathic Pulmonary Fibrosis. National Heart Blood and Lung Institute. |
| Living With Lung Disease. The American Lung Association's Living With Lung Disease Wall of Lung Champions is dedicated to people who live each day with lung disease. American Lung Association. |
| The relationship of dyspnoea to function and quality of life (QoL) in systemic sclerosis (SSc). Interstitial lung disease contributes significantly to the sense of dyspnoea, function and health realted QoL in SSc. Pulmonary hypertension, assessed echocardiographically by the pulmonary artery systolic pressure, predicts the degree of dyspnoea but not function and HRQoL in SSc. M. Baron. Annals of the Rheumatic Diseases 2008;67:644-650. (Also see: Pulmonary Involvement, and Hypertension ) |
| Health-related quality of life (HRQL) in patients with idiopathic pulmonary fibrosis--cross-sectional and longitudinal study. HRQL instruments should be incorporated into routine evaluations of IPF patients, since they measure dimensions not fully estimated by clinical assessment. (PubMed) Intern Med. 2007;46(18):1533-42. |
| Air Quality |
| If you smoke, QUIT. Avoid being around people who do smoke. Do not go to places where people do smoke. |
| Indoor Air Pollution Fact Sheet. American Lung Association. |
| Air Quality in the Home. American Lung Association. |
| Air Quality in the Workplace. American Lung Association. |
| Oxygen Therapy |
| Long-term oxygen therapy for COPD (includes a good overview of basic oxygen delivery devices/equipment) Postgraduate Medicine. |
![[Picture]](/medical/symptoms/pulmonary/oxygen.gif) Oxygen Therapy by SD World "Isn't the guy on the left cute? It does not really look like that, though. Oxygen therapy, that is. What people usually see is a person wearing a cannula (the hose looped over their ears) that is attached to some kind of oxygen delivery device. That device can be one of several sized oxygen cylinders (gaseous oxygen) or a reservoir (liquid oxygen). Some people stare...most don't..." SD World. |
| Special Feature: Dangers of Oxygen and Flame |
| Oxygen is often prescribed for people with scleroderma lung involvement. This series will feature stories regarding the importance of oxygen safety. |
| Portable Oxygen: A User's Perspective. Oxygen Safety. So, I am now more aware that the oxygen I cannot see has a presence, not only in my nostrils but all around me. My clothing and my hair contain more oxygen than that of a person not on oxygen. Knowing this, I understand more fully the "five foot rule" and stay at least this distance away from sources of sparks and flames. Portable Oxygen. Peter M. Wilson, Ph.D. 2001 |
| Avoiding The Hazards Of Medical Gases. "My experience has been that smoking around oxygen may cause fires," says Duane Sylvia, a consumer safety officer in the Food and Drug Administration's Center for Drug Evaluation and Research. "Smoking anywhere near oxygen, even in the same room, can be extremely dangerous." . Do not leave the unit turned on when not in use. A cannula (nose tubing) that is left in contact with a synthetic comforter, for example, could spark a fire. FDA Consumer magazine. July-Aug.2000 |
| Fires caused by smoking while using oxygen. 111 cases summarized and documented. Tobacco.org |
| Support Groups |
| American Lung Association. |
| Pulmonary Fibrosis Foundation. The Pulmonary Fibrosis Foundation is the primary organization dedicated to finding a cure for and raising awareness of Pulmonary Fibrosis, an often fatal lung disease. The Foundation is also devoted to improving the quality of life for those afflicted with this illness. Pulmonary Fibrosis Foundation. |
