Sclero Forums FREE online support for US, Aussie, UK, worldwide!
Thank You
Your generosity of time and talent help us tackle scleroderma with stellar research, education, newsletters, support forums, chats, blogs, over 1,000 personal stories, 23 languages, videos and global outreach.
Pulmonary Hypertension Research Panel in U.S. — Qualified participants will earn $50.00, plus opportunity to earn more!
WWMR, a division of IntrinsiQ, is searching for patients diagnosed with PAH or their caregivers to serve on their research panel. Qualified participants will earn $50.00, plus the opportunity to earn more money by participating in future research studies. Participants must either be diagnosed with PAH, or be a caregiver for someone living with PAH. To learn more, and to see if you qualify, call WWMR toll free at 1-888-947-2339 and select option 4, or email PAH_Panel@wwmr.com. (Also see: ISN Newsletter: Do you have PAH?)
Pulmonary Hypertension Registry of Scleroderma (PHAROS)
Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). Posted 04-10-06. (Also see: PHAROS)
REVEAL (Registry to Evaluate Early And Long-term PAH Disease Management)
REVEAL Registry™: Registry to Evaluate Early And Long-term PAH (Pulmonary Arterial Hypertension) Disease Management. The REVEAL Registry will provide investigators with descriptive data regarding the clinical course and treatment outcomes in patients with WHO (World Health Organization) Group I PAH. Data derived from the study may offer important tools for assessing current management practices of treating investigators, as well as changes over time. This study is ongoing, but not recruiting participants. December 2009.
SureSteps Patient Support Program for Tracleer/Bosentan Patients
SureSteps™ is a free patient support program for people who are on Tracleer/Bosentan.
Actelion Pharmaceuticals US, Inc. is pleased to announce the launch of Sure StepsTM, a comprehensive support program for U.S. patients enrolled in the Tracleer Access Program (T.A.P.). Sure StepsTM free services include one-to-one attention from a Nurse Counselor. Posted 11-08-06.
Pulmonary Hypertension Registry of Scleroderma (PHAROS)
Bosentan For The Treatment Of Scleroderma.