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July 2016 ISN News

Sclero Hotline and Email Support Services

Call our sclero hotlineScleroderma Hotline and Email Support Specialists are eager to help people affected by scleroderma and related illnesses, such as pulmonary hypertension. Simply email [email protected] or call our Hotline at 1-800-564-7099. Ask for your free information packet! Posted 07/26/2016.

Vickie Risner is Raising Scleroderma Awareness!

Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Vickie Risner for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/25/2016. (Also see Donate Now)

Online Scleroderma Support for You and Your Family!

Sclero Forums offers stellar online support, with forums, chats, and blogs for people who are interested in scleroderma. It is a free service of SCLERO.ORG, by the nonprofit International Scleroderma Network. Posted 07/23/2016.

In Loving Memory of Jacqueline (Jackie) Noll

In loving memory of Jackie Noll, a donation has been made by Jim and Brenda Bomberger to the nonprofit International Scleroderma Network. (Also see Sclero Shop/Donate) Posted 07/22/2016.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 07/21/2016.

Diana Kramer is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Diana Kramer for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 07/15/2016.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 07/14/2016.

Nancy Smithberg is Raising Scleroderma Awareness!

Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Nancy Smithberg for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/11/2016. (Also see Donate Now)

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Medical Symbol Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 07/09/2016.

In Loving Memory of Louise Beeler

In loving memory of Louise Beeler a donation has been made by Susan Moore to the nonprofit International Scleroderma Network. (Also see Louise Beeler Obituary, and Sclero Shop/Donate) Posted 07/08/2016.

Did you know you can help raise scleroderma awareness?

Scleroderma Awareness Bracelet Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 07/07/2016.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 07/06/2016.

In Loving Memory of Patricia Ann Black

In loving memory of Patricia Ann Black, a donation has been made by Shelley Ensz, and Keither and Rosalyn Miller, to the nonprofit International Scleroderma Network. (Also see Sclero Shop/Donate) Posted 07/06/2016.

In Loving Memory of Gene Wilkinson

In loving memory of Gene Wilkinson a donation has been made by David and Carleen Waterman to the nonprofit International Scleroderma Network. (Also see Gene Wilkinson Obituary, and Sclero Shop/Donate) Posted 07/05/2016.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 07/04/2016.

In Loving Memory of Gayle Hedlin

In loving memory of Gayle Hedlin, a donation has been made by Nancy Smithberg, and by Daniel and JoAnn Pepper, to the nonprofit International Scleroderma Network. Gayle had CREST Syndrome for over 35 years. (Also see Sclero Shop/Donate) Posted 07/02/2016.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/02/2016.

Go to ISN News: June 2016
 

Shelley Ensz in Memory of Patricia Ann Black
Diana Kramer is reading Voices of Scleroderma book series!
Keith and Rosalyn Miller in Memory of Patricia Ann Black
Brenda Miller is Raising Awareness!
Susan Moore in Memory of Louise Beeler
Daniel and Joann Pepper in Memory of Gayle Hedlin
Vickie Risner is Raising Scleroderma Awareness!
Nancy Smithberg in Memory of Gayle Hedlin
David and Carleen Waterman in Memory of Gene Wilkinson
United Way of Central New Mexico
United Way of Snohomish County
Donate Now

 

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