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May 2015 ISN News

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 05/21/2015.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 05/14/2015.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 05/09/2015. (Also see Current Clinical Trials and Scleroderma Experts)

Slide Show of Kathy Baker Story

Kathy Baker: CREST, Systemic Sclerosis. This is second slideshow added to Kathy's story, with photos of gangrene and amputation as a complication of systemic sclerosis (scleroderma). Posted 05/08/2015.

Did you know you can help raise scleroderma awareness?

Scleroderma Awareness BraceletDid you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Donate Now) Posted 05/07/2015.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 05/06/2015.

Sheri M: Crest Syndrome (Update)

Sheri M: CREST Syndrome (Update) I was just diagnosed last week with early stage pulmonary arterial hypertension... Posted 05/04/2015.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 05/04/2015.

ISN Video: Overview of Sjogren's Syndrome in Scleroderma.

Amanda Thorpe has produced another video, entitled Overview of Sjogren's Syndrome in Systemic Scleroderma. Did you know the hallmark symptoms of Sjögren's include dry eyes, dry mouth, dry vagina, fatigue, and it can affect the skin, lungs, heart, kidneys, muscles, and central nervous system. (Also see Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 05/03/2015.

Actelion Pharmaceuticals is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 05/02/2015.

Go to ISN News: April 2015
 
 

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