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ISN News Manager: Jo Frowde. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
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November 2014 ISN News

Genentech is Tackling Scleroderma Now!
Genentech, A Member of the Roche GroupThe International Scleroderma Network thanks Genentech for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 11/21/2014.
MyConsult: Second Opinion from Cleveland Clinic

Please note that this is not a free service. No matter where you live in the world, if you would like a consultation, and cannot travel to Cleveland at this time, you may consider MyConsult: an Online Medical Second Opinion program that connects patients with a specialty physician when faced with a serious diagnosis. Contact info: 1-800-223-2272 Ext 43223 or email clevelandclinic@ccf.org.

As of August 2014 this service costs $565.00, plus a pathology review of $180.00 if necessary, and it is not covered by any insurance programs. Cleveland Clinic. Posted 11/18/2014. (Also see: Cleveland Clinic Scleroderma Program)

In Loving Memory of Nolan LaTourelle
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Shelley Ensz for her generous donation to tackle scleroderma research in loving memory of her son, Nolan LaTourelle, who passed away suddenly on November 10th. Nolan was a co-founder of the ISN and is dearly missed by all. (Also see: Sclero Shop/Donate) Posted 11/16/2014.
Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.
Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 11/17/2014.
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 11/14/2014.
Our Thanks to United Way of Central New Mexico!
The International Scleroderma Network thanks United Way of Central New Mexico for their generous donation to tackle scleroderma research, support, education and awareness! (Also see: Sclero Shop/Donate) Posted 11/11/2014.
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 11/09/2014. (Also see: Current Clinical Trials and Scleroderma Experts)
Did you know you can help raise scleroderma awareness?
Scleroderma Awareness BraceletDid you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other.(Also see: Donate Now) Posted 11/07/2014.
United Therapeutics is Tackling Scleroderma Now!
United TherapeuticsThe International Scleroderma Network thanks United Therapeutics for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 11/06/2014.
Scleroderma? Shop at AmazonSmile!
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 11/04/2014.
New Topic: Taste and Smell Impairments in Systemic Sclerosis by Jo Frowde
Coffee and Cookie by Shelley EnszTaste and Smell Impairments. Taste and smell disorders can be caused by many things. Surprisingly, losing a sense of smell is a strong indication of poor health, so it warrants a trip to the doctor to identify the underlying cause. ISN. Posted 11/03/2014.
Actelion Pharmaceuticals is Tackling Scleroderma Now!
Actelion Pharmaceuticals The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 11/02/2014.
Go to ISN News: October 2014
 

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Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

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