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October 2014 ISN News

In Loving Memory of Robert Baumgardner
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Rhonda Black for her generous donation to tackle scleroderma research in memory of Robert Baumgardner. (Also see: Sclero Shop/Donate) Posted 10/26/2014.
In Honor of Lenora Lawhorn
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Rhonda Black for her generous donation to tackle scleroderma research in honor of Lenora Lawhorn. (Also see: Sclero Shop/Donate) Posted 10/25/2014.
In Loving Memory of Beth Ann Fortwendel
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Dr. David O. Wood & Faculty, from the Department of Microbiology and Immunology at the University of South Alabama College of Medicine for their generous donation to tackle scleroderma research in memory of Beth Ann Fortwendel. (Also see: Sclero Shop/Donate) Posted 10/24/2014.
Charlie Jones is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Charlie Jones for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/23/2014. (Also see: Donate Now)
In Loving Memory of Beth Ann Fortwendel
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Dr. David O. Wood & Faculty, from the Department of Microbiology and Immunology at the University of South Alabama College of Medicine for their generous donation to tackle scleroderma research in memory of Beth Ann Fortwendel. (Also see: Sclero Shop/Donate) Posted 10/22/2014.
Genentech is Tackling Scleroderma Now!
Genentech, A Member of the Roche GroupThe International Scleroderma Network thanks Genentech for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 10/21/2014.
In Loving Memory of Joshua Narins
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Sharon Rapone for her generous donation to tackle scleroderma research in loving memory of her son, Joshua Narins. (Also see: Sclero Shop/Donate) Posted 10/20/2014.
ISN Video: Overview of Dental Involvement in Scleroderma
Amanda Thorpe has produced another video, entitled Overview of Dental Involvement in Systemic Sclerosis. Did you know that Systemic scleroderma sometimes affects the mouth, teeth, jaw, and gums? It can cause the mouth to shrink, tooth loss, mouth sores, dry mouth, and jaw pain from TMJ. (Also see: Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/19/2014.
MyConsult: Second Opinion from Cleveland Clinic

Please note that this is not a free service. No matter where you live in the world, if you would like a consultation, and cannot travel to Cleveland at this time, you may consider MyConsult: an Online Medical Second Opinion program that connects patients with a specialty physician when faced with a serious diagnosis. Contact info: 1-800-223-2272 Ext 43223 or email clevelandclinic@ccf.org.

As of August 2014 this service costs $565.00, plus a pathology review of $180.00 if necessary, and it is not covered by any insurance programs. Cleveland Clinic. Posted 10/18/2014. (Also see: Cleveland Clinic Scleroderma Program)

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.
Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 10/17/2014.
ISN Video: Treatments for Pulmonary Hypertension by Amanda Thorpe
Amanda Thorpe has produced another video, entitled Treatments for Pulmonary Hypertension in Systemic Sclerosis (Scleroderma). Did you know that Pulmonary hypertension secondary to systemic scleroderma can have a poor outcome, if untreated? (Also see: Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/16/2014.
James Manry is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks James Manry for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/15/2014. (Also see: Donate Now)
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 10/14/2014.
ISN New Topic: Extrapulmonary Tuberculosis by Jo Frowde
Extrapulmonary Tuberculosis. Tuberculosis is not an autoimmune disease, however when it spreads outside the lungs, it can affect any part of the body and thus it can imitate many autoimmune diseases, especially other systemic diseases such as scleroderma and lupus. (Also see: Jo Frowde and How to Volunteer) Posted 10/13/2014.
ISN Video: Diagnosis of Pulmonary Hypertension by Amanda Thorpe
Amanda Thorpe has produced another video, entitled Diagnosis of Pulmonary Hypertension in Systemic Sclerosis (Scleroderma). Did you know that diagnosing pulmonary hypertension in systemic scleroderma, especially in the early stages, can be difficult? (Also see: Scleroderma Videos, Amanda Thorpe and How to Volunteer) Posted 10/12/2014.
Our Thanks to United Way of Central New Mexico!
The International Scleroderma Network thanks United Way of Central New Mexico for their generous donation to tackle scleroderma research, support, education and awareness! (Also see: Sclero Shop/Donate) Posted 10/11/2014.
Judy Landsdorf is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Judy Landsdorf for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/10/2014. (Also see: Donate Now)
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 10/09/2014. (Also see: Current Clinical Trials and Scleroderma Experts)
Ashley Stewart is Tackling Scleroderma!
The International Scleroderma Network thanks Ashley Stewart for her generous donation to tackle scleroderma research. (Also see: Sclero Shop/Donate) Posted 10/08/2014.
Did you know you can help raise scleroderma awareness?
Scleroderma Awareness BraceletDid you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other.(Also see: Donate Now) Posted 10/07/2014.
United Therapeutics is Tackling Scleroderma Now!
United TherapeuticsThe International Scleroderma Network thanks United Therapeutics for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 10/06/2014.
Gregory Summerton is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Gregory Summerton for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 10/05/2014. (Also see: Donate Now)
Scleroderma? Shop at AmazonSmile!
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 10/04/2014.
Actelion Pharmaceuticals is Tackling Scleroderma Now!
Actelion Pharmaceuticals The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 10/02/2014.
Go to ISN News: September 2014
 

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