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Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

Scleroderma Newsroom
Janey Willis, ISN News GuideHello, I am Janey Willis, ISN News Manager and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Assistant News Guides Lisa Bulman and Judy Tarro post these stories to our Sclero Forums. Stephen Dickson prepares our RSS Newsfeed.
Scleroderma Medical News
Autoimmune News
Media Stories
ISN Website News
Donations & In Memory
New Personal Stories
Clinical Trials News
News Archives
Newsroom
Updated May 11, 2008
Scleroderma
Vasculopathic diseases complicate pregnancy. Women with systemic sclerosis, primary pulmonary hypertension, or sickle cell disease are at increased risk for having complicated pregnancies. For this reason, these women should receive extensive counseling when considering pregnancy. Reuters. 04/14/08. (Also see: Pregnancy and Scleroderma)
Quantification of hardness, elasticity and viscosity of the skin of patients with systemic sclerosis(SSc) using a novel sensing device (Vesmeter): a proposal for a new outcome measurement procedure. The sensing device (Vesmeter) proved to be able to assess skin abnormalities of SSc with high reliability. Y. Kuwahara. Rheumatology Access Online. April 25, 2008. (Also see: Skin Involvement)
Blunted increase of digital skin vasomotion following acetylcholine and sodium nitroprusside iontophoresis in systemic sclerosis (SSc) patients. This study showed a selective abnormality of the endothelial, sympathetic and myogenic-dependent finger skin vasomotion in SSc patients, consistent with a parallel endothelial, sympathetic and myogenic macrovascular dysfunction. M. Rossi. Rheumatology. April 22, 2008. (Vasomotion is cyclic variation in vascular diameter) (Also see: Raynaud's and Digital Ulcers)
More Scleroderma Medical News
Clinical Trials
U.S. Morphea Registry and DNA Repository
First U.S. Morphea Registry and DNA Repository for both Adults and Children Established.Southwestern Medical Center. Reposted 02/08/08. (Also see: Morphea and Research Registries)
Pulmonary Fibrosis
Pulmonary Fibrosis with Systemic Sclerosis Open Enrollment. Novartis Pharmaceuticals. Reposted 02/13/08.
More Clinical Trial Open Enrollments
Autoimmune
Can exercise limits prevent post-exertional malaise in chronic fatigue syndrome? An uncontrolled clinical trial. The use of exercise limits (limiting both the intensity and duration of exercise) prevents important health status changes following a walking exercise in people with chronic fatigue syndrome, but was unable to prevent short-term symptom increases. Clinical Rehabilitation, May 2008, 22(5), pp 426-435. (Also see: Chronic Fatigue Syndrome)
The significance of the sleeping–waking brain for the understanding of widespread musculoskeletal pain and fatigue in fibromyalgia syndrome and allied syndromes. Experimental evidence indicate that there is an inter-relationship of disturbances in the physiology of the sleeping–waking brain with the widespread musculoskeletal pain, chronic fatigue, and psychological distress in patients with unexplained pain/fatigue illnesses. Joint, Bone, Spine May 2008 (Also see: Chronic Fatigue Syndrome and Fibromyalgia)
Vitamin D deficiency in systemic lupus erythmatosus(SLE): prevalence, predictors and clinical consequences. Vitamin D insufficiency and deficiency are common in patients with SLE and are associated with sun avoidance. G. Ruiz-Irastorza. Rheumatology Advance Access. April 14, 2008 (Also see: Lupus).
More Autoimmune News
Media & Stories
MediQuest Therapeutics Submits Drug Application to FDA to treat Raynaud's Disease. MediQuest Therapeutics Inc. submitted a New Drug Application (NDA) to the U.S. Food and Drug Administration(FDA) for MQX-503, a topical formulation designed to treat Raynaud 's Disease. In 2007, patients enrolled in a confirmatory Phase III study of MQX-503, showed statistically significant improvements in their condition when treated with the therapy. Drugs.com. April 28, 2008. (Also see: Raynaud's)
Mothers And Offspring Can Share Cells Throughout Life. Cutting the umbilical cord doesn’t necessarily sever the physical link between mother and child. Many cells pass back and forth between the mother and fetus during pregnancy and can be detected in the tissues and organs of both even decades later. ScienceDaily. 05/08/08. (Also see: Causes of Scleroderma: Fetal cells)
Eastern and Western Medicine Come Together At New San Diego Center. The Institute is devoted to changing the focus from “treating disease” to creating optimal health and wellness, keeping patients on the road toward an improved quality of life. Business Wire. 04/14/08.
More Media News
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
ISN Website News
Running for SCLERO.ORG!
I'm running for those who can't, SCLERO.ORG
Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Posted 05-07-08. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

Gold Sponsors: $ 500
Joe Eberle
Silver Sponsors: $100
Anonymous (1)
Cordy Mack
William Iannessa

Matt Kerekes
Jesse Otzen
David Woodburn
Boosters: up to $99
Clarice Boehmer
Alan Emahiser
Gene and Shelley Ensz
Mary Lally
Carrie Maddoux

Fred Nelson
Mary Ann Zabel
Donors updated 05-09-08, 11:20 PM CT

Scoring for Scleroderma!
Scoring for Scleroderma
Lisa Bulman's 3rd Annual Scoring for Scleroderma Soccer Tournament will be held Friday evening, June 20, 2008, at the Canton Sportsplex in Canton, Massachusetts! (Also see: Lisa Bulman, Event Donation and Player Registration) Posted 05-08-08.
Welcome Earl Manns, ISN Fundraiser
Welcome Earl Manns: ISN Fundraiser. I hope to have ISN run in all 50 states and internationally over the next few years. Join the sclero-excitement as a runner, waddler, corporate sponsor, or donor. Let me know your ideas! Posted 05-07-08.
More ISN Website News...
Tackling Scleroderma!
Tackling scleroderma in May 2008 through donations, memberships, books, brochures and awareness bracelets:

Cordy Mack
Alan Emahiser
WarmMeUps.com
Diane Dube
(Updated 05/09/08)

Join/Shop/Donate
More ISN Website News...
Keep on Surfing!
Go to Scleroderma Medical News: April 2008
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