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August 2014 ISN News

Angelina Giobbi is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Angelina Giobbi for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 08/24/2014.
Genentech is Tackling Scleroderma Now!
Genentech, A Member of the Roche GroupThe International Scleroderma Network thanks Genentech for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 08/21/2014.
MyConsult: Second Opinion from Cleveland Clinic

Please note that this is not a free service. No matter where you live in the world, if you would like a consultation, and cannot travel to Cleveland at this time, you may consider MyConsult: an Online Medical Second Opinion program that connects patients with a specialty physician when faced with a serious diagnosis. Contact info: 1-800-223-2272 Ext 43223 or email clevelandclinic@ccf.org.

As of August 2014 this service costs $565.00, plus a pathology review of $180.00 if necessary, and it is not covered by any insurance programs. Cleveland Clinic. Posted 08/18/2014. (Also see: Cleveland Clinic Scleroderma Program)

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.
Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you August be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 08/17/2014.
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 08/14/2014.
Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 08/09/2014. (Also see: Current Clinical Trials and Scleroderma Experts)
Did you know you can help raise scleroderma awareness?
Scleroderma Awareness BraceletDid you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other.(Also see: Donate Now) Posted 08/07/2014.
United Therapeutics is Tackling Scleroderma Now!
United TherapeuticsThe International Scleroderma Network thanks United Therapeutics for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 08/06/2014.
Actelion Pharmaceuticals is Tackling Scleroderma Now!
Actelion Pharmaceuticals The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 08/02/2014.
Go to ISN News: July 2014
 

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Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

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