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Archives 2015: Jan
2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

January 2015 ISN News

In Loving Memory of Craig Roothoff

International Scleroderma Network at sclero.orgIn loving memory of Craig Roothoff, a donation has been made by Shelley Ensz to the nonprofit International Scleroderma Network. Craig generously volunteered as an ISN Assistant News Guide for Autoimmune News from 2010 to 2012. He passed away on January 19, 2015, just shy of his 60th birthday. His memorial service will be in Rancho Bernado on February 2, 2015. (Also see: Sclero Shop/Donate and ISN: Craig Roothoff) Posted 12/22/2015.

Gregory Summerton is Raising Scleroderma Awareness Again!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Gregory Summerton for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 01/22/2015. (Also see: Donate Now)
Genentech is Tackling Scleroderma Now!
Genentech, A Member of the Roche GroupThe International Scleroderma Network thanks Genentech for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 01/21/2015.
Lester Benton is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Lester Benton for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 01/20/2015. (Also see: Donate Now)
MyConsult: Second Opinion from Cleveland Clinic

Please note that this is not a free service. No matter where you live in the world, if you would like a consultation, and cannot travel to Cleveland at this time, you may consider MyConsult: an Online Medical Second Opinion program that connects patients with a specialty physician when faced with a serious diagnosis. Contact info: 1-800-223-2273 Ext 43223 or email clevelandclinic@ccf.org.

As of August 2014 this service costs $565.00, plus a pathology review of $180.00 if necessary, and it is not covered by any insurance programs. Cleveland Clinic. Posted 01/18/2015. (Also see: Cleveland Clinic Scleroderma Program)

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.
Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 01/17/2015.
Terese Smith is Raising Scleroderma Awareness!
Scleroderma Awareness BraceletThe nonprofit International Scleroderma Network thanks Terese Smith for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 01/15/2015. (Also see: Donate Now)
Gilead is Tackling Scleroderma Now!
The International Scleroderma Network thanks Gilead for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 01/14/2015.
Rose Adkins is Tackling Scleroderma Now!

International Scleroderma Network at sclero.orgWe thank Rose Adkins for her comprehensive donation to tackle scleroderma! There's no better or more cost effective way to tackle scleroderma than through the nonprofit ISN at sclero.org. 01/11/2015. (Also see: Sclero Shop/Donate)

Arnold Slotkin, Thanks for Tackling Scleroderma Now, In Loving Memory of Marta Marx

We heartily thank Arnold Slotkin for his donation to tackle scleroderma this holiday season, in loving memory of Marta Marx.

The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! Posted 01/10/2015. (Also see: Sclero Shop/Donate)

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?
Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 01/09/2015. (Also see: Current Clinical Trials and Scleroderma Experts)
Celebrating SCLERO.ORG's 17th Anniversary!
Let's Celebrate! January 2015 marks the 17th anniversary of the SCLERO.ORG web site, and the 13th anniversary of the nonprofit International Scleroderma Network, which developed out of the website. Posted 01/08/2015.
In Loving Memory of Yvonne Monk
International Scleroderma Network at sclero.orgThe International Scleroderma Network thanks Deneese Betz, Jamie Boyd-Hamilton, Ilene Frost, Janice Gross, Betty Lauer, Barbara L. Miller, Timothy Miller, Kay E. Mosher, Terri Neuenfeldt, Lillian Novak, Susan Ontiveros, Leona Osborne, Connie Schafer, Alaine Shock, Rochelle Siler, Rhonda Strong, and Karen Zinck for their generous donation to tackle scleroderma research in loving memory of Yvonne Monk. (Also see: Sclero Shop/Donate) Posted 01/08/2015.
Did you know you can help raise scleroderma awareness?
Scleroderma Awareness BraceletDid you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 01/07/2015.
Patricia Ambrosius is Tackling Scleroderma Now!
The International Scleroderma Network thanks Patricia Ambrosius for her generous donation to tackle scleroderma and pulmonary hypertension. (Also see: Donate Now) Posted 01/07/2015.
Jo Frowde: ISN Assistant Webmaster
Jo Frowde aka JoelfJo Frowde has been promoted to ISN Webmaster. In this position, she will be developing and coding new content for the sclero.org web site. Jo is also an ISN News Manager, Manager of Sclero Forums and a Sclero Forums Chat Host. Posted 01/06/2015. (Also see: Sclero Forums, and How to Volunteer)
In Loving Memory of Nolan LaTourelle
The International Scleroderma Network thanks Shelley Ensz, Janet Paulmenn, Margaret Roof, and Sid and Sandy Strong, for their generous donations to tackle scleroderma in loving memory of Shelley's son, Nolan LaTourelle, who passed away suddenly on November 10th. Nolan was a co-founder of the ISN and is dearly missed by all. (Also see: Sclero Shop/Donate) Posted 01/06/2015.
United Therapeutics is Tackling Scleroderma Now!
United TherapeuticsThe International Scleroderma Network thanks United Therapeutics for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 01/06/2015.
Scleroderma? Shop at AmazonSmile!
Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 01/04/2015.
Actelion Pharmaceuticals is Tackling Scleroderma Now!
Actelion Pharmaceuticals The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle patient education for scleroderma and pulmonary hypertension. Posted 01/02/2015.
Go to ISN News: December 2014
 

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

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