Scleroderma Newsroom
Janey Willis, ISN News GuideHello, I am Janey Willis, ISN News Manager and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Assistant News Guides Lisa Bulman and Judy Tarro post these stories to our Sclero Forums. Stephen Dickson prepares our RSS Newsfeed.
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April 2008
Teenage amputees from Scottish Rite find new sense of freedom on ski trip. In June 2006, Tamlynn allowed doctors to amputate her right foot. Scleroderma, an autoimmune disease that hardens the skin, was causing pain, deformity and loss of mobility. DallasNews.com. 04/12/08.
Exposing pulmonary hypertension. It wasn't until the 63-year-old Cuyahoga Falls woman was hospitalized in January and nearly died that she discovered she has pulmonary hypertension. Ohio.com. 04/24/08.
Coping in the workplace with the serious illness of a fellow employee. If a worker is diagnosed with a serious illness, such as cancer, multiple sclerosis, or chronic fatigue syndrome, they are under no obligation to tell their employer unless it has started to impact their ability to do their job. New Brunswick Business Journal. 04/12/08. (Also see: Disability )
Prepared patients: Internet information seeking by new rheumatology patients. The majority of patients research their conditions online prior to initial appointments, but are unlikely to discuss it with physicians. Physicians may want to consider strategies for enabling communication about online research. M. Cameron Hay (Wiley) Arthritis Care & Research. Vol 59, Issue 4, Pp 575 - 582. 04/27/08. (Also see: Physician/Patient Relationship and Web searches )
Men get autoimmune diseases, too! While nearly 75 percent of the more than 23.5 million Americans who suffer from autoimmune disease are women, millions of American men suffer from these diseases, too. However, autoimmune diseases that develop in men tend to be more severe. News-Medical.net. 04/06/08. (Also see: Autoimmunity )
Breakdown Of Kidney's Ability To Clean Its Own Filters Likely Causes Disease. The kidney actively cleans its most selective filter to keep it from clogging with blood proteins. Breakdown of this self-cleaning feature can make kidneys more vulnerable to dysfunction and disease. Science Daily. 02/03/08. (Also see: Kidney Involvement )
Amy Daniels: Stem Cell Transplant Speech on Capitol Hill. Amy is a member of Sclero Forums and has had a stem cell transplant for scleroderma. YouTube. 04/14/08. (Also see: Stem Cell Transplants )
Pittsburgh Rare The International Scleroderma Network (ISN). Most of my friends know I volunteer as a grant writer for sclero.org. The ISN is the cutting-edge technological platform utilized within the international computer network for the preparation of several rare and etiologically unknown autoimmune diseases. Jordana Novotny Blog, 04/09/08. (Also see: Jordana Novotny: ISN Grant Writer )
Insured People Experiencing More Trouble Paying For Prescription Drugs As Copayments Increase, Economy Worsens. Some people are no longer charged a flat fee for prescription drugs but must contribute a proportion that ranges from 20% to 70% of a drug's cost. Medical News Today. 04/04/08.
5 Ways To Help Your Doctor Help You. In an ideal world, a doctor would have your health history, the medications you're taking and lab results right in front of him. But we live in reality, and the reality is that these things are often lost in a mound of paperwork. CNN.com. 03/03/08. (Also see: Physician-Patient Relationships )
University sophomore prepares for Paralympic trials. Grogan was diagnosed with scleroderma at age 2. She has dreamed of making the team since high school, began swimming at age 7 in her hometown after undergoing surgery for a prosthetic leg.RedandBlack.com. 04/04/08.
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