| ISN Donation and Web Site News |
| January 2004 |
| Voices of Scleroderma Volume 1: Featured Story #13 of 100 |
The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| Gio: Progressive Systemic Scleroderma (Italy) I have been suffering from scleroderma since 1990... |
| Voices of Scleroderma Volume 1: Featured Story #12 of 100 |
| Flora: Systemic Scleroderma with Bronchial Allergic Asthma (Italy) I am a young woman aged 23, and in August of this year (1999), I was admitted to Saint Anna Hospital in Ferrara and diagnosed with systemic sclerosis... |
| Voices of Scleroderma Volume 1: Featured Story #11 of 100 |
| Dawn: Confirmed Early Scleroderma I am awaiting surgery for a rotator cuff injury. I now understand this might be a symptom of my scleroderma... |
| Voices of Scleroderma Volume 1: Featured Story #10 of 100 |
| Bobbie Thrasher: Scleroderma I may write a book about my childhood since I am blessed to use my fingers once again... |
| Voices of Scleroderma Volume 1: Featured Story #9 of 100 |
| Jonty: Son of Scleroderma Patient (Hyderabad, India) In 1997, I secured a seat in a medical college in Hyderabad and enrolled for the MBBS degree course. I then took my mother to meet Dr. Narasimhalu... |
| Voices of Scleroderma Volume 1: Featured Story #8 of 100 |
| Trish: Spouse of a Diffuse Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000... |
| Voices of Scleroderma Volume 1: Featured Story #7of 100 |
| Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now... |
| Voices of Scleroderma Volume 1: Featured Story #6 of 100 |
| John: Surviving Son-in-Law of Scleroderma Patient My mother-in-law worked as a custodian and that may be a factor in causing her scleroderma... |
| Voices of Scleroderma Volume 1: Featured Story #5 of 100 |
| Lisa A: Spouse of Systemic Scleroderma Patient My husband was diagnosed in July 2000... |
| Voices of Scleroderma Volume 1: Featured Story #4 of 100 |
| Dimitra Stafilia: Daughter of Systemic Scleroderma Patient I am the ISN Greek Translator. My mum has been suffering from scleroderma since 1992... |
| (Greek Version) Dimitra Stafilia |
| New Australian Scleroderma Support Group |
| Scleroderma Support of Mildura, Victoria. This new Australian group is led by Rosemary Doolan. New page 1-14-04. |
| Voices of Scleroderma Volume 1: Featured Story #3 of 100 |
| (Italiano) Gianna S: Sclerodermia Sono figlia di una signora a cui hanno diagnosticato la sclerodermia in un ospedale della mia città... |
| Gianna: Progressive Systemic Sclerosis (Italy) Hello, I am writing this story on behalf of my mother, who is not very good at using a computer... |
| This book has stories from 16 countries and in five languages (English, Greek, Italian, Polish, and Romanian), and all stories appear in their original language, as well as in English. |
| Voices of Scleroderma Volume 1: Featured Story #2 of 100 |
| Toni: Spouse of Stem Cell Transplant Survivor Jeff is now seventeen months past his stem cell transplant and to look at him you would never know he was sick... |
| WintervSale in ISN Shops! |
It is a great time to get an ISN long sleeve t-shirt and an ISN 2004 Floral Calendar that features the lovely artwork and photography of our ISN artists! Posted 1-8-04. |
| Voices of Scleroderma Volume 1: Featured Story #1 of 100 |
| Amy: Daughter of Systemic Sclerosis Patient: What is Scleroderma? Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden... |
| Surf ISN Style! |
Nothing is more fitting than an ISN t-shirt to wear while surfing your favorite site! Classy and well-made, your purchase will help to support the nonprofit International Scleroderma Network and helps to raise awareness of scleroderma, too! Our site visitors from around the world are sporting ISN t-shirts and hoodies. 1-03-03. |




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