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January 2004 ISN News

Voices of Scleroderma Volume 1: Featured Story #13 of 100

Voices of Scleroderma Volume1 The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.

Gio: Progressive Systemic Scleroderma (Italy) I have been suffering from scleroderma since 1990…

Voices of Scleroderma Volume 1: Featured Story #12 of 100

Flora: Systemic Scleroderma with Bronchial Allergic Asthma (Italy) I am a young woman aged 23, and in August of this year (1999), I was admitted to Saint Anna Hospital in Ferrara and diagnosed with systemic sclerosis…

Voices of Scleroderma Volume 1: Featured Story #11 of 100

Dawn: Confirmed Early Scleroderma I am awaiting surgery for a rotator cuff injury. I now understand this might be a symptom of my scleroderma…

Voices of Scleroderma Volume 1: Featured Story #10 of 100

Bobbie Thrasher: Scleroderma I may write a book about my childhood since I am blessed to use my fingers once again…

Voices of Scleroderma Volume 1: Featured Story #9 of 100

Jonty: Son of Scleroderma Patient (Hyderabad, India) In 1997, I secured a seat in a medical college in Hyderabad and enrolled for the MBBS degree course. I then took my mother to meet Dr. Narasimhalu…

Voices of Scleroderma Volume 1: Featured Story #8 of 100

Trish: Spouse of a Diffuse Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000…

Voices of Scleroderma Volume 1: Featured Story #7of 100

Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now…

Voices of Scleroderma Volume 1: Featured Story #6 of 100

John: Surviving Son-in-Law of Scleroderma Patient My mother-in-law worked as a custodian and that may be a factor in causing her scleroderma…

Voices of Scleroderma Volume 1: Featured Story #5 of 100

Lisa A: Spouse of Systemic Scleroderma Patient My husband was diagnosed in July 2000…

Voices of Scleroderma Volume 1: Featured Story #4 of 100

Dimitra Stafilia: Daughter of Systemic Scleroderma Patient I am the ISN Greek Translator. My mum has been suffering from scleroderma since 1992…

(Greek Version) Dimitra Stafilia

Voices of Scleroderma Volume 1: Featured Story #3 of 100

(Italiano) Gianna S: Sclerodermia Sono figlia di una signora a cui hanno diagnosticato la sclerodermia in un ospedale della mia città…

Gianna: Progressive Systemic Sclerosis (Italy) Hello, I am writing this story on behalf of my mother, who is not very good at using a computer…

This book has stories from 16 countries and in five languages (English, Greek, Italian, Polish, and Romanian), and all stories appear in their original language, as well as in English.

Voices of Scleroderma Volume 1: Featured Story #2 of 100

Toni: Spouse of Stem Cell Transplant Survivor Jeff is now seventeen months past his stem cell transplant and to look at him you would never know he was sick…

Winter Sale in ISN Shops!

ISN Shops is holding a Winter Sale! Get $4.00 off on any order of $35.00 or more . During order checkout you must enter the code ILOVE2004 to receive the discount. This sale expires 1-16-04 , so hurry now to take advantage of this sale!

It is a great time to get an ISN long sleeve t-shirt and an ISN 2004 Floral Calendar that features the lovely artwork and photography of our ISN artists! Posted 1-8-04.

Voices of Scleroderma Volume 1: Featured Story #1 of 100

Amy: Daughter of Systemic Sclerosis Patient: What is Scleroderma? Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden…

Surf ISN Style!

Nothing is more fitting than an ISN t-shirt to wear while surfing your favorite site! Classy and well-made, your purchase will help to support the nonprofit International Scleroderma Network and helps to raise awareness of scleroderma, too! Our site visitors from around the world are sporting ISN t-shirts and hoodies. 1-03-03.

Go to Website News: 2003
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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