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February 2004 ISN News

Voices of Scleroderma Volume 1: Featured Story #27 of 100

The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.

Awilda: CREST and Morphea Scleroderma In 1971, I had the first symptoms of Raynaud's. I'm  53 years old and live in Puerto Rico…

ISN: What in the world is Scleroderma? New PDF Brochure.

The ISN has just released, in PDF format, our What in the world is scleroderma? (English version) brochure. Site visitors may freely read or print this brochure for distribution to their family, friends, classrooms and physicians. They may also use it to display publicly to help raise awareness of scleroderma in their community. 2-11-04.

Voices of Scleroderma Volume 1: Featured Story #26 of 100

Arianna: Early LcSSc with lung involvement, recent alveolitis, and grade II esophagitis with hiatus hernia (Italy) What I want is to struggle against this disease to stop it from beating me…

Arianna: Early LcSSc con interessamento polmonare (DLCOc=44%), recente alveolite polmonare, esofagite di II grado con ernia iatale Mi chiamo Arianna e sono una ragazza di 26 anni…

Voices of Scleroderma Volume 1: Featured Story #25 of 100

Angiola: Progressive Systemic Scleroderma (Italy) I would very much like to find other people that find themselves in a similar situation…

Angiola: Sclerodermia Sistemica Progressiva La sclerosi sistemica progressiva mi è stata diagnosticata nel febbraio 1997, quando avevo 57 anni, la diagnosi è stata immediata…

Voices of Scleroderma Volume 1: Featured Story #24 of 100

Aileen: CREST Scleroderma Oh, the wonderful feeling to have a doctor sit there and tell you that you are not imagining things…

Voices of Scleroderma Volume 1: Featured Story #23 of 100

Rose: Diffuse Scleroderma The decision to amputate was made, and the pain that kept me up in tears all night, every night was finally gone…

Voices of Scleroderma Volume 1: Featured Story #22 of 100

Marilyn: Diffuse Scleroderma Being that I was a nurse you would think that I should have picked up on this myself…

Voices of Scleroderma Volume 1: Featured Story #21 of 100

Easter (Hiwee Be-Maria): Scleroderma My name is Easter, and I'm Iraqi. About 16 years ago I began my struggle with scleroderma…

Voices of Scleroderma Volume 1: Featured Story #20 of 100

Greg: Diffuse Scleroderma and Lung Transplant Patient I asked Dr. Frank C Arnett to see if I was a candidate for a lung transplant…

Voices of Scleroderma Volume 1: Featured Story #19 of 100

Deborah Peck: Diffuse Systemic Sclerosis I first noticed my hands turning white in 1992 after my father's funeral…

Voices of Scleroderma Volume 1: Featured Story #18 of 100

Carol Langenfeld: Diffuse Scleroderma People tell me that I have earned my credentials as a "certified patient" the hard way…

Voices of Scleroderma Volume 1: Featured Story #17 of 100

Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis…

(Italiano) Valeria - Sclerosis sistemica Mi farebbe anche molto piacere sapere se esiste qualche centro, possibilmente non troppo lontano da Roma…

Voices of Scleroderma Volume 1: Featured Story #16 of 100

Pushpa: Scleroderma with Raynaud's (Bangalore, India) Around my 21st winter, the year of 1982 in Calcutta, India, is when I first noticed my nails and fingers were turning blue when exposed to the cold…

Voices of Scleroderma Volume 1: Featured Story #15 of 100

Laura W: Scleroderma, Sjögren's, Raynaud's and IBS I am glad to finally have an answer after years of tests, with no results…

Voices of Scleroderma Volume 1: Featured Story #14 of 100

Kathi: Scleroderma/Lupus I am forty-three years old and have not been feeling well for ten years…

Go to Website News:January 2004
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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