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April 2004 ISN News

ISN Nominated for Tech Award for Technology Benefiting Humanity!

The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. At the Awards Gala each fall, five Laureates in each category are honored, and $250,000 in cash prizes are awarded. Posted 4-30-04.

Voices of Scleroderma Volume 1: Featured Story #57 of 100

Sonya: Surviving Daughter-in-law of Diffuse Scleroderma Patient "In Loving Memory of CB" She was told to avoid stress as stress accelerates the disease… Posted 4-30-04.

Voices of Scleroderma Volume 1: Featured Story #56 of 100

Marie C: Surviving Spouse of Scleroderma Patient Dean was a strong-willed "redneck" man and was never able to accept the severity of his disease… Posted 4-29-04.

Many Thanks to Business & Legal Reports of Old Saybrook, CT

The International Scleroderma Network extends our thanks to Business and Legal Reports of Old Saybrook, CT, for their donation in memory of Alfred Strempel. Posted 4-28-04.

Many Thanks to Bosch AdW ASC Team of Anderson, SC

The International Scleroderma Network extends our thanks to Bosch AdW ASC Team of Anderson, South Carolina, for their donation in memory of Joyce C. Masini. Posted 4-28-04.

Do You Have These Gifts to Offer?

The nonprofit International Scleroderma Network would greatly welcome gifts-in-kind from individuals or organizations. In particular, we are seeking donations of new or gently used digital cameras, computers or laptops running Windows XP Professional, and one credit card terminal. If you have items to offer, please contact Shelley Ensz by email or phone. Posted 4-28-04.

Voices of Scleroderma Volume 1: Featured Story #55of 100

LaVonne: Surviving Mother of a Daughter with MCTD I have no faith in doctors anymore…

4-28-04.

New Page: Cancer and Scleroderma

Cancer and Scleroderma. Systemic sclerosis (scleroderma) may be associated with an increased incidence of cancer, including breast cancer, B-cell lymphoma, lung cancer and tongue cancer. New page 4-26-04.

In Sympathy

The International Scleroderma Network extends our sympathy to the family and friends of Alfred Strempel, and especially to his daughter-in-law, Jeanette Davis. Posted 4-26-04.

In Sympathy

The International Scleroderma Network extends our sympathy to the family and friends of Joyce Masini. Our thoughts are with you in this time of grief. Posted 4-26-04.

Voices of Scleroderma Volume 1: Featured Story #54of 100

Krista: My Caregiver's Story I used to love to walk into the forest; I can't do that anymore… Posted 4-26-04.

New Page: Pregnancy and Scleroderma

Pregnancy and Systemic Scleroderma. Resources for those with systemic sclerosis (scleroderma) who are contemplating childbearing. New page 4-23-04. (Also see Scleroderma Symptoms)

Voices of Scleroderma Volume 1: Featured Story #53of 100

Keenan: Surviving Son of Fibrosing Alveolitis Patient It is tough to write about, but cathartic as well… Posted 4-23-04.

New Page: Eye Involvement

Eye Involvement in Systemic Scleroderma. This new page features information about normal tension glaucoma (NTG) and autoimmune iritis and uveitis. New page 4-22-04. (Also see Scleroderma Symptoms)

Voices of Scleroderma Volume 1: Featured Story #52 of 100

Jamie: Surviving Spouse of Progressive Systemic Sclerosis Patient I hope more men will post their stories because scleroderma is rare in men… Posted 4-20-04.

Voices of Scleroderma Volume 1: Featured Story #51 of 100

Chris Beck: In Memory of My Mother, Veta Breit I am very proud of the fight she put up… Posted 4-19-04.

Voices of Scleroderma Volume 1: Featured Story #50 of 100

Archie Bailey: Scleroderma: Sue's Story Time has passed since Sue's death. Only those who have experienced the grieving process can understand… Posted 4-17-04.

Voices of Scleroderma Volume 1: Featured Story #49 of 100

A.M. Keyes: Surviving Daughter My father died on February 9, 2002 from pulmonary fibrosis, a complication of scleroderma… Posted 4-1504.

Voices of Scleroderma Volume 1: Featured Story #48 of 100

Terry: CREST I was told that I have CREST by a doctor who saw me in a Workman's Compensation case… Posted 4-13-04.

Voices of Scleroderma Volume 1: Featured Story #47 of 100

Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face… Posted 4-12-04.

Voices of Scleroderma Volume 1: Featured Story #46 of 100

Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it… Posted 4-9-04.

Voices of Scleroderma Volume 1: Featured Story #45 of 100

Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer… Posted 4-7-04.

Voices of Scleroderma Volume 1: Featured Story #44 of 100

Sharon: CREST with Limited Scleroderma, Sjögren's and Pulmonary Hypertension (Australia) Day by day I discover another food I cannot eatPosted 4-5-04.

ISN Booth at Nonprofit Career Fair, Minneapolis

Free event! Visit the ISN booth at the Nonprofit Career Fair at Coffman Union, University of Minnesota campus, on Wednesday, April 7th, from 12-4pm! The ISN has some exciting openings for 'virtual volunteers' who participate using their own home computers. Meet ISN founders, Shelley and Gene Ensz, too!

Go to March 2004
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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