The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. At the Awards Gala each fall, five Laureates in each category are honored, and $250,000 in cash prizes are awarded. Posted 4-30-04.
Sonya: Surviving Daughter-in-law of Diffuse Scleroderma Patient "In Loving Memory of CB" She was told to avoid stress as stress accelerates the disease… Posted 4-30-04.
Marie C: Surviving Spouse of Scleroderma Patient Dean was a strong-willed "redneck" man and was never able to accept the severity of his disease… Posted 4-29-04.
The International Scleroderma Network extends our thanks to Business and Legal Reports of Old Saybrook, CT, for their donation in memory of Alfred Strempel. Posted 4-28-04.
The International Scleroderma Network extends our thanks to Bosch AdW ASC Team of Anderson, South Carolina, for their donation in memory of Joyce C. Masini. Posted 4-28-04.
The nonprofit International Scleroderma Network would greatly welcome gifts-in-kind from individuals or organizations. In particular, we are seeking donations of new or gently used digital cameras, computers or laptops running Windows XP Professional, and one credit card terminal. If you have items to offer, please contact Shelley Ensz by email or phone. Posted 4-28-04.
LaVonne: Surviving Mother of a Daughter with MCTD I have no faith in doctors anymore…
Cancer and Scleroderma. Systemic sclerosis (scleroderma) may be associated with an increased incidence of cancer, including breast cancer, B-cell lymphoma, lung cancer and tongue cancer. New page 4-26-04.
The International Scleroderma Network extends our sympathy to the family and friends of Alfred Strempel, and especially to his daughter-in-law, Jeanette Davis. Posted 4-26-04.
The International Scleroderma Network extends our sympathy to the family and friends of Joyce Masini. Our thoughts are with you in this time of grief. Posted 4-26-04.
Krista: My Caregiver's Story I used to love to walk into the forest; I can't do that anymore… Posted 4-26-04.
Keenan: Surviving Son of Fibrosing Alveolitis Patient It is tough to write about, but cathartic as well… Posted 4-23-04.
Jamie: Surviving Spouse of Progressive Systemic Sclerosis Patient I hope more men will post their stories because scleroderma is rare in men… Posted 4-20-04.
Chris Beck: In Memory of My Mother, Veta Breit I am very proud of the fight she put up… Posted 4-19-04.
Archie Bailey: Scleroderma: Sue's Story Time has passed since Sue's death. Only those who have experienced the grieving process can understand… Posted 4-17-04.
A.M. Keyes: Surviving Daughter My father died on February 9, 2002 from pulmonary fibrosis, a complication of scleroderma… Posted 4-1504.
Terry: CREST I was told that I have CREST by a doctor who saw me in a Workman's Compensation case… Posted 4-13-04.
Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face… Posted 4-12-04.
Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it… Posted 4-9-04.
Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer… Posted 4-7-04.
Sharon: CREST with Limited Scleroderma, Sjögren's and Pulmonary Hypertension (Australia) Day by day I discover another food I cannot eat… Posted 4-5-04.
Free event! Visit the ISN booth at the Nonprofit Career Fair at Coffman Union, University of Minnesota campus, on Wednesday, April 7th, from 12-4pm! The ISN has some exciting openings for 'virtual volunteers' who participate using their own home computers. Meet ISN founders, Shelley and Gene Ensz, too!
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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