The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.
Alex: Localised Scleroderma (Italy) I am a 34-year-old woman and I have been suffering from localised scleroderma for about 20 years…
Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old…
Davie's Mom: Mother of Linear Scleroderma Patient Davie could be a candidate for skin grafts. If anyone has tried this I would love some input…
Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents.
Joy: Mom of Cassi, Who Has Morphea I carefully checked the bruises; Cassi (age 6) said that they did not hurt and she did not have anyone hit her…
Multiple Sclerosis Topics include symptoms, overlap, treatments, research, support organizations, personal stories and media stories about MS. New page, 05-20-04.
ISN Email Support Specialists, Open Position Volunteer applications are now being accepted for Email Support Specialists to answer ISN site inquiry emails. New page, 05-20-04.
Causes of Scleroderma: Dendritic cells are involved in the regulation of the body's immune system response, and are thought to be a key to preventing or treating autoimmune diseases. New page, 05-14-04.
Jo: Mother of a Child with Morphea Scleroderma Last year we noticed that our daughter had a blotchy, purple/red "rash"…
Burlington/Oakville (Ontario, Canada) Area Scleroderma Support and Information Group. New support group leader is Linda Hayes. Update, 05-14-04.
Jane S: Mother of Morphea Scleroderma Patient In 1990 my healthy and bright six-year-old daughter complained of her right foot itching and hurting…
Dr. Janet Pope: ISN Medical Advisory Board. I am a rheumatologist in Canada with a specific interest in scleroderma. I look forward to sharing my expertise with the ISN. New page, 05-10-04. /td>
Dot: Mother of Morphea/Linear Patient I have read many of the stories posted and have felt encouraged by them…
Bregan: Mother of Daughter with Morphea (New Zealand) My fourth child, who is now seven years old, has just been diagnosed with Morphea…
Dr. Liz Irvin is the new ISN Guide to Eye Involvement. She is also the founder and moderator of the Uveitis/OID Support Group at the Massachusetts Eye and Ear Infirmary, Harvard Medical School. New page, 05-05-04.
Bill Jordan: Surviving Boyfriend of Scleroderma Patient Wendy was heartset on dancing that evening even though she was connected to an oxygen machine…
Star: Widow of Scleroderma Patient I am 43 and I lost my husband on October 7, 2001…
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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