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May 2004 ISN News

Voices of Scleroderma Volume 1: Featured Story #68 of 100

The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.

Alex: Localised Scleroderma (Italy) I am a 34-year-old woman and I have been suffering from localised scleroderma for about 20 years…

Voices of Scleroderma Volume 1: Featured Story #67 of 100

Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old…

Voices of Scleroderma Volume 1: Featured Story #66 of 100

Davie's Mom: Mother of Linear Scleroderma Patient Davie could be a candidate for skin grafts. If anyone has tried this I would love some input…

Thank you to Research Donor, Kathleen Wilson.

The International Scleroderma Network extends our thanks to Research Donor, Kathleen Wilson. Posted 5-26-04. (Also see ISN Membership)

Welcome Lee Claflin: ISN New or Renewing Member

The International Scleroderma Network welcomes Lee Claflin as a new or renewing member! Posted 5-24-04. (Also see ISN Membership)

Voices of Scleroderma Volume 1: Featured Story #65 of 100

Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents.

Voices of Scleroderma Volume 1: Featured Story #64 of 100

Joy: Mom of Cassi, Who Has Morphea I carefully checked the bruises; Cassi (age 6) said that they did not hurt and she did not have anyone hit her…

Welcome Cynthia Grantham: ISN New or Renewing Member

The International Scleroderma Network welcomes Cynthia Grantham as a new or renewing member! Posted 5-21-04. (Also see ISN Membership)

In Memory of Sharon Marshlack

The International Scleroderma Network extends our thanks to Susan Kahn for her donation in memory of Sharon Marshlack. Posted 05-20-04. (Also see ISN: Gifts in Memory)

New Page: Multiple Sclerosis

Multiple Sclerosis Topics include symptoms, overlap, treatments, research, support organizations, personal stories and media stories about MS. New page, 05-20-04.

Open Position: ISN Email Support Specialist

ISN Email Support Specialists, Open Position Volunteer applications are now being accepted for Email Support Specialists to answer ISN site inquiry emails. New page, 05-20-04.

Causes of Scleroderma: Dendritic Cells

Causes of Scleroderma: Dendritic cells are involved in the regulation of the body's immune system response, and are thought to be a key to preventing or treating autoimmune diseases. New page, 05-14-04.

Voices of Scleroderma Volume 1: Featured Story #63 of 100

Jo: Mother of a Child with Morphea Scleroderma Last year we noticed that our daughter had a blotchy, purple/red "rash"…

Burlington,Ontario Support Group Update

Burlington/Oakville (Ontario, Canada) Area Scleroderma Support and Information Group. New support group leader is Linda Hayes. Update, 05-14-04.

Voices of Scleroderma Volume 1: Featured Story #62 of 100

Jane S: Mother of Morphea Scleroderma Patient In 1990 my healthy and bright six-year-old daughter complained of her right foot itching and hurting…

In Memory of Maxine Mackler

The International Scleroderma Network extends our thanks for donations in memory of Maxine Mackler. Posted 05-12-04. (Also see ISN: Gifts in Memory)

Dr. Janet Pope, ISN Medical Advisory Board

Dr. Janet Pope: ISN Medical Advisory Board. I am a rheumatologist in Canada with a specific interest in scleroderma. I look forward to sharing my expertise with the ISN. New page, 05-10-04. /td>

Voices of Scleroderma Volume 1: Featured Story #61 of 100

Dot: Mother of Morphea/Linear Patient I have read many of the stories posted and have felt encouraged by them…

Voices of Scleroderma Volume 1: Featured Story #60 of 100

Bregan: Mother of Daughter with Morphea (New Zealand) My fourth child, who is now seven years old, has just been diagnosed with Morphea…

Dr. Liz Irvin: ISN Guide to Eye Involvement

Dr. Liz Irvin is the new ISN Guide to Eye Involvement. She is also the founder and moderator of the Uveitis/OID Support Group at the Massachusetts Eye and Ear Infirmary, Harvard Medical School. New page, 05-05-04.

Voices of Scleroderma Volume 1: Featured Story #59 of 100

Bill Jordan: Surviving Boyfriend of Scleroderma Patient Wendy was heartset on dancing that evening even though she was connected to an oxygen machine…

Voices of Scleroderma Volume 1: Featured Story #58 of 100

Star: Widow of Scleroderma Patient I am 43 and I lost my husband on October 7, 2001…

Go to Scleroderma Website News: June 2004
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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