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June 2004 ISN News

Voices of Scleroderma Volume 1: Featured Story #78 of 100

The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.

Krys: Morphea Scleroderma I am still not comfortable with the scar but I have been free of scleroderma for quite some time…

In Loving Memory of Marta Marx

The International Scleroderma Network thanks an anonymous donor for their generous donation in loving memory of Marta Marx. Posted 6-28-04. (Also see ISN Donations)

Welcome Jan Wilber: ISN New or Renewing Member

The International Scleroderma Network welcomes Jan Wilber as a new or renewing member! Posted 6-28-04. (Also see ISN Membership)

Welcome Carol Soto: ISN New or Renewing Member

The International Scleroderma Network welcomes Carol Soto as a new or renewing member! Posted 6-28-04. (Also see ISN Membership)

Voices of Scleroderma Volume 1: Featured Story #77 of 100

Jenny: CREST Scleroderma My symptoms started to appear over ten years ago, but I was only recently diagnosed…

Voices of Scleroderma Volume 1: Featured Story #75 of 100

Liz: Localized Scleroderma: Morphea Over the next eight months I was misdiagnosed by three different doctors…

Voices of Scleroderma Volume 1: Featured Story #74 of 100

Andie Friend: Morphea I want to share my story with scleroderma that is nearly eighteen years old now…

Voices of Scleroderma Volume 1: Featured Story #73 of 100

Amber: Morphea with Possible Systemic Sclerosis My story with Morphea started two years ago. I went to a tanning salon…

Welcome Carol Soto, ISN Data Analyst

Carol Soto: ISN Data Analyst. Carol Soto joins the ISN as Data Analyst, Assistant to ISN Membership and Donation Services Coordinator, and Volunteer Services Assistant. New page 6-17-04.

Voices of Scleroderma Volume 1: Featured Story #72 of 100

Catherine: Mother of Linear Scleroderma Patient (Emma W's Story) My mouth does not close as the lips cannot cover my protruding top jaw, and there is little saliva flow over these teeth..

Iona Carina, Penerjemah Bahasa Indonesia ISN

(Indonesia) Iona Carina: Penerjemah Bahasa Indonesia ISN. Halo, nama saya Iona Carina. Saya penerjemah Bahasa Indonesia ISN. Saya lahir, besar, sampai lulus SMU di Surabaya, Indonesia. New page 6-11-04. (Also see Iona Carina, ISN Indonesian Translator)

Thank you to Gifts-in-Kind Donor, Christine Patane

The International Scleroderma Network extends our thanks to Gifts-in-Kind Donor, Christine Patane. Posted 6-10-04. (Also see ISN: Gifts in Kind)

Welcome Judith Thompson Devlin: ISN New or Renewing Member

The International Scleroderma Network welcomes Judith Thompson Devlin as a new or renewing member! Posted 6-10-04. (Also see ISN Membership)

Welcome to Iona Carina, ISN Indonesian Translator

Iona Carina: ISN Indonesian Translator. I graduated from high school in Surabaya, Indonesia and am studying Communication, Advertising and Design Management in Rotterdam, The Netherlands. New page 6-10-04. (Also see ISN Team Members)

Welcome Judy Tarro: ISN New or Renewing Member

The International Scleroderma Network welcomes Judy Tarro as a new or renewing member! Posted 6-9-04. (Also see ISN Membership)

Voices of Scleroderma Volume 1: Featured Story #71 of 100

The following story is featured in the ISN's Voices of Scleroderma Volume 1 book.

Dora: Linear Scleroderma I try to enjoy life as I always have tried, and also give the world a smile and a kind word as often as possible…

Open Position: ISN Email Support Specialist

ISN Email Support Specialists, Open Position Volunteer applications are now being accepted for Email Support Specialists to answer ISN site inquiry emails. Training provided. Posted 6-7-04.

The McCally's Honor the Memory of Joyce Masini

The International Scleroderma Network extends our sympathy to the family and friends of Joyce Masini. We thank the McCally's for their donation in her memory. Posted 6-7-04.

Voices of Scleroderma Volume 1: Featured Story #70 of 100

Anna: Linear Scleroderma (Poland) I realized that it is not worthwhile to give up, even during the most difficult moments; it is necessary to fight and to believe that it will be better. If I had not believed I would not have been alive now…

(Polski/Polish) Anny: Linear Moja historia zaczęła się dokładnie dziewięć lat temu…

ISN Finalist in the TechGrants Spring 2004 Awards

ISN Finalist in the TechGrants Spring 2004 Awards. The International Scleroderma Network (ISN) has been accepted as a finalist for the TechGrants Spring 2004 Awards. With these awards, TechFoundation seeks to acknowledge nonprofit/nongovernmental organizations that are making innovative use of technology to better pursue their missions. On September 1, 2004, TechFoundation will reward six organizations with cash grants totaling $25,000. Posted 6-5-04.

Voices of Scleroderma Volume 1: Featured Story #68 of 100

Bill M: Localized Scleroderma All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever….

Go to ISN News: July 2004
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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