ISN Donation and Web Site News |
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| July 2004 |
| New Page: Scleromyxedema |
| Diseases Similar to Scleroderma: Scleromyxedema is a scleroderma-like condition. However, it causes thickening and hardening that makes the skin look too ample, rather than too tight, as in scleroderma. It is also referred to as Scleromyxedema of Groton, lichen myxedematosus, and papular mucinosis. Overview, symptoms, diagnosis, treatments, support, and personal stories. New page, 07-23-04. |
| New Page: Vitiligo |
| Diseases Similar to Scleroderma: Vitiligo Includes overview, symptoms, causes, treatments, research and personal stories. New page, 07-23-04. |
| Voices of Scleroderma Volume 1: Featured Story #87 of 100 |
| The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| John B: Eosinophilic Fasciitis or Scleroderma-Like Condition I have knee contractures that prevent me from walking, very tight skin in the legs... |
| Voices of Scleroderma Volume 1: Featured Story #86 of 100 |
| Maureen "Buggzy": Autoimmune Hepatitis, Fibromyalgia, Undiagnosed I am really desperate to get some answers or to hear from others in the same boat as me... |
| In Loving Memory of Cheryl Broder |
| The International Scleroderma Network thanks Eileen Breier and Family for their donation in loving memory of Cheryl Broder. Posted 07-21-04. (Also see: ISN: In Loving Memory) |
| Voices of Scleroderma Volume 1: Featured Story #85 of 100 |
| Tonya: Morphea Scleroderma I am wondering if it will help to hide the brown spots by tanning? |
| Welcome Sheila Sellers: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Sheila Sellers as a new or renewing member! Posted 7-16-04. (Also see: ISN Membership) |
| Thank you to Donor, Kathleen Wilson |
| The International Scleroderma Network extends our thanks to Kathleen Wilson for her donation. Posted 7-16-04. (Also see: ISN Donations) |
| Voices of Scleroderma Volume 1: Featured Story #84 of 100 |
| Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea... |
| Voices of Scleroderma Volume 2: In Prepress! |
| Voices of Scleroderma Volume 2 is in prepress! The book will feature 100 patient and caregiver stories, in 5 languages, as well as articles by world experts in scleroderma, including Professor Carol Black, Dr. Christopher Denton, Dr. L. Nandini Moorthy, Dr. James Seibold, Dr. Maria Trojanowska, Kevin Howell, and Dr. Vanessa Malcarne. Posted 07-14-04. |
| Thank you to Donor, Catherine Vanzant |
| The International Scleroderma Network extends our thanks to Catherine Vanzant for her donation. Posted 07-14-04. (Also see: ISN Donations) /td> |
| Welcome Melissa Gilder: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Melissa Gilder as a new or renewing member! Posted 07-14-04. (Also see: ISN Membership) |
| Voices of Scleroderma Volume 1: Featured Story #83 of 100 |
| Stephanie: Morphea Scleroderma I have bruise-like patches all over the trunk of my body... |
| Welcome Gerald Mackler: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Gerald Mackler as a new or renewing member! Posted 07-12-04. (Also see: ISN Membership) |
| Voices of Scleroderma Volume 1: Featured Story #82 of 100 |
| Kasra: Son of Morphea Scleroderma Patient (Iran) Please help me. The doctor that we went to in 1990 is now dead, and the doctors in Iran do not have much information about this kind of disease... |
| Welcome Maria Anargyros: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Maria Anargyros as a new or renewing member! Posted 07-9-04. (Also see: ISN Membership) |
| Welcome Annette Morrison: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Annette Morrison as a new or renewing member! Posted 7-9-04. (Also see: ISN Membership) |
| Voices of Scleroderma Volume 1: Featured Story #81 of 100 |
| Pamela W: Morphea Scleroderma It started as a bruise about the size of a dime under my arm... |
| Welcome Lizzy Cotton: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Lizzy Cotton as a new or renewing member! Posted 07-7-04. (Also see: ISN Membership) |
| Welcome Bill Claflin: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Bill Claflin as a new or renewing member! Posted 07-7-04. (Also see: ISN Membership) |
| In Loving Memory of Maxine Gail Mackler |
| The International Scleroderma Network thanks Gerald Mackler for his June donation in loving memory of Maxine Gail Mackler. Posted 07-06-04. (Also see: ISN: In Loving Memory) |
| Voices of Scleroderma Volume 1: Featured Story #80 of 100 |
| The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| Linda: Morphea Scleroderma I wonder if any of you who read this, know any methods of treatment... |
| Dr. C. Stephen Foster, ISN Medical Advisory Board |
| Dr. C. Stephen Foster: ISN Medical Advisory Board. He is a Professor of Ophthalmology at Harvard Medical School and Director of the Ocular Immunology and Uveitis Service at the Massachusetts Eye and Ear Infirmary in Boston, Massachusetts. New page, 07-05-04. |
| In Loving Memory of Gillian Henwood |
| The International Scleroderma Network extends our sympathy to the family and friends of Gillian Henwood. We thank Judy Stober for her donation in loving memory of Gillian, who passed away from scleroderma in May 2004. Posted 07-03-04. (Also see: ISN: In Loving Memory) /td> |
| Welcome Sherrill Knaggs: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Sherrill Knaggs as a new or renewing member! Posted 07-03-04. (Also see: ISN Membership) |
| Voices of Scleroderma Volume 1: Featured Story #78 of 100 |
| The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| Krys: Morphea Scleroderma I am still not comfortable with the scar but I have been free of scleroderma for quite some time... |
