Causes of Scleroderma: Silica. Silica exposure can cause autoimmune diseases such as lupus, scleroderma, and vasculitis. It can also cause silicosis, kidney disease, lung cancer, tuberculosis, and other airways diseases. Environmental exposure to silica can occur in workers and bystanders in many industries, including agriculture, construction, and pottery. New page 09-28-04 ISN.
As of Monday, September 27, 2004, the ISN website at sclero.org was comprised of 1,248 web pages in 19 languages. The pages had a total of 218,750 links, mostly for internal site navigation, but with 24,567 of the links being to other carefully screened websites. (This does not count any pages or links on ISN's Sclero Forums.) Posted 09-27-04.
(Español/Spanish) Asociación Colombiana de Esclerodermia Hemos programado una reunión para el dia Sabado 9 de Octubre próximo. La celebraremos en el Centro Dermatologico Federico Lleras Acosta (Instituto Nacional de Dermatologia). Posted 09-27-04.
On Monday, September 21, 2004, in 24 hours the ISN served over 2,875 unique visitors, who viewed a total of over 16,000 web pages that day. This is rather normal traffic for us on Mondays in the fall, after school has started in the U.S. Posted 09-22-04.
Judith Thompson Devlin, co-editor of the Voices of Scleroderma book series, signed and shipped 125 complimentary copies of Voices of Scleroderma Volume 2 books, which were mailed out on September 16, 2004. These signed copies of the first edition were sent to everyone who contributed a story or worked on Volume 2. This tremendous book features top notch medical and support information for scleroderma. Posted 09-22-04.
Open Position: ISN Support Specialist. Volunteer applications are now being accepted for Support Specialists to serve on the International Scleroderma Network's Sclero Forums. Responsibilities include serving as a moderator in responding to ISN Sclero Forums member messages, and approving/declining new members and messages. To apply, send an email to [email protected] and we will send you an application. Posted 09-18-04.
Lizzy Cotton: ISN Senior Support Specialist. The ISN is pleased to announce that Lizzy Cotton has been promoted to Senior Support Specialist of the ISN's Sclero Forums which provides 24-hour a day online support services to over 700 members. Posted 09-17-04.
The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.
Shar: Lupus, Scleroderma, Sjögren's, and Fibromyalgia Was my battle with Hepatitis C worth it? Yes!
Lynda Garry: ISN Senior Editor. The ISN is pleased to announce that Lynda Garry has joined us as an ISN Senior Editor. Lynda has been in medical communications and publishing for seventeen years, and she is a senior editor for a global Med-Ed firm. Posted 09-07-04.
Nan: Mixed Connective Tissue Disease and Fibromyalgia Finally after several years of struggle, one wonderful doctor at OSU got gutsy and gave me the MCTD diagnosis…
The ISN's Scleroderma Webmaster's Association is a collaboration of respected webmasters worldwide who are committed to providing responsible scleroderma information and support in our online community. The SWA endorses and promotes dozens of websites, in many languages, with it's immensely popular and free Scleroderma Sites to Surf! program. The SWA screens sites for content and trustworthiness, describes websites and webmaster qualifications, and links them together with it's well-known Surfing Penguin logo. Posted 09-04-04.
Heidi Nolan: ISN Manager of Sclero Forums. The ISN is pleased to announce that Heidi Nolan has been promoted from Senior Support Specialist to Manager of ISN's Sclero Forums, which provides 24-hour a day online support for scleroderma and related illnesses, throughout the world. Posted 09-02-04.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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