The International Scleroderma Network thanks Jerry Mackler for his donation in loving memory of Maxine Mackler .Posted 11-29-04. (Also see In Loving Memory)
As of Wednesday, November 17, 2004, the ISN website at sclero.org features personal stories from more than 33 countries including Australia, Brazil, Canada, Chanel Islands, Columbia, Cyprus, Dubai, England, Germany, Greece, Holland, India, Ireland, Italy, Jordan, Kosovo, Netherlands, New Zealand, Peru, Poland, Puerto Rico, Romania, South Africa, Scotland, Singapore, Spain, Switzerland, Turkey, Ukraine, and Venezuela. Posted 11-17-04.
The International Scleroderma Network thanks Al LaTorre for his donation in loving memory of his sister, Yvette Kindig. Posted 11-12-04. (Also see In Loving Memory)
As of Monday, November 8, 2004, the ISN website at sclero.org features personal stories from more than 33 countries in many languages. There are over 450 stories in English and more than 60 personal stories in Italian. There are stories from every U.S. state, and all of the provinces of Canada. Posted 11-10-04.
Nicole Kuo has joined the ISN as an Email Support Specialist. Nicole graduated from college as a physician's assistant. Posted 11-09-04.
Colombiana Support Group Realizaremos nuestra próxima reunión el Sábado 13 de Noviembre en la Calle 100 No 8 A - 55 Edificio Word Trade Center. Allí daremos inicio a nuestro Programa Esclerodermia con Calidad de Vida. Posted 11-09-04.
Korean Version: What is Scleroderma? by Dr. Jae-Bum Jun: ISN Korean Translator. Dr. Jun is a rheumatologist working for the Hospital for Rheumatic Diseases, Hanyang University, Seoul, Republic of Korea. This marks the 19th language for the ISN's SCLERO.ORG website. New page 11-01-04 ISN.
Shelley Ensz, Founder and President of the nonprofit International Scleroderma Network, will be attending the ISN's first fundraiser, a Jazz for Peace Benefit Concert in New York City on December 4, 2004.
"We are thrilled that Jazz for Peace has offered to do a benefit concert for the ISN, including cybercasts of the event for those who cannot attend this fabulous jazz concert with famous jazz vocalist Rick DellaRatta in mid-Manhattan. The general public is invited as well as ISN supporters!"
We want YOU to join us for this fabulous and once-in-a-lifetime event in New York City! Email [email protected] if you plan to attend so that we are all sure to meet! Tickets are $25 in advance, for both the live concert and the cybertickets. If you are unable to attend either, please join or donate to theISN right now, to help provide top-notch information, support and research for scleroderma, throughout the world! Posted 11-01-04.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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