Scleroderma Web Site News: January 2005

ISN Donation and Web Site News

Archives 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

January 2005

In Loving Memory of Leila Small

The International Scleroderma Network thanks Bruce Peggs for his donation in loving memory of his aunt, Leila Small. Posted 01-31-05. (Also see: ISN: In Loving Memory)

New Page: Anemia of Chronic Disease

Anemia of Chronic Disease. Anemia refers to a deficiency in the blood. Anemia most commonly refers to insufficient iron resulting in a shortage of hemoglobin, but the term is also used to indicate vitamin deficiency or blood loss. Anemia can range from mild and temporary to severe and life-threatening. When the anemia is caused by a chronic illness, it is called "anemia of chronic disease." New page 01-29-05.

New Page: Torok Aron: ISN Hungarian (Magyarul) Translator

Torok Aron: ISN Hungarian (Magyarul) Translator I met Krista a few years ago, she is the ISN Romanian Translator, who was diagnosed with scleroderma. Hearing her story made me want to translate this page, in order to offer information in my native language. New page, posted 01-28-05.

In Loving Memory of Corinne Bereskin

The International Scleroderma Network thanks Michael Best & Friedrich, Attorneys at Law, for their ISN/SCTC Research Fund donation in loving memory of Corinne Bereskin. Posted 01-25-05. (Also see: ISN: In Loving Memory and ISN/SCTC Research Fund)

2005 Meeting Schedule for Scleroderma Association of Manitoba

The Scleroderma Association of Manitoba will hold its 2005 support group meetings on April 6, May 4, September 7, and October 5, 2005. Page updates 01-24-05.

ISN Celebrates its 3rd Anniversary!

The International Scleroderma Network celebrates it's 3rd anniversary on Friday, January 21, 2005! The nonprofit ISN was launched on 1-21-02, from the outgrowth of the Sclero.org website which was founded on 1-7-98 by Shelley Ensz.

The ISN operates the 1200+ page sclero.org website in 19 languages, publishes the Voices of Scleroderma book series, supports international peer-reviewed research in collaboration with the Scleroderma Clinical Trials Consortium, manages the 800+ member Sclero MSN online support community, publishes the ISN Insider newsletter for members, offers a tollfree hotline, and works to unite the online scleroderma community through leading the Scleroderma Webmaster's Association and it's popular "Scleroderma Sites to Surf !" program.

This is all made possible through the amazing international grassroots collaboration of thousands of scleroderma patients, caregivers, supporters, researchers, site visitors, members, donors, volunteers, medical advisors and board members who work together via the internet to drive top quality information and support to the farthest corners of the globe. Posted 01-20-05. (Also see: ISN Donors)

Thank You to Donor, Rhonda Scrimpsher

The International Scleroderma Network extends our thanks to donor Rhonda Scrimpsher for her general donation through Network for Good on 12-27-04. Posted 01-19-05. (Also see: ISN Donors)

Thank you to ISN/SCTC Research Donor, Anonymous

The International Scleroderma Network extends our thanks to an anonymous research donor for a donation of $100 made through Network for Good on 12-28-04. The ISN/SCTC Research Fund supports international peer-reviewed research for scleroderma, in collaboration with the Scleroderma Clinical Trials Consortium. Posted 01-19-05. (Also see: ISN/SCTC Research Fund)

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Gerald Mackler for his December donation in loving memory of Maxine Gail Mackler. Posted 01-19-05. (Also see: ISN: In Loving Memory)

01-29-05: Bogotá, Columbiana

(Español/Spanish) Asociación Colombiana de Esclerodermia Realizaremos nuestra próxima reunión el Sábado 29 de Enero en la Calle 100 N. 8 A - 55 edificio Word Trade Center. Y nos acompañara el Doctor (reumatologo) Alexander Vıvanco, quien nos impartirá una pequeña charla sobre los cuidados generales que deben tener los pacientes con esclerodermia. Allí daremos inicio a nuestro Programa Esclerodermia con Calidad de Vida. Posted 01-18-05.

Thank you to Donor, WarmMeUps.com

The International Scleroderma Network extends our thanks to WarmMeUps.com for their donation. They offer hand and foot warmers, and give their customers the opportunity to donate a portion of their purchase to the ISN. Posted 01-16-05. (Also see: ISN Donors)

In Loving Memory of Michele Williams

The International Scleroderma Network thanks Jacquelyn and John Moriarty for their donation in loving memory of Michele Williams. Posted 1-17-05. (Also see: ISN: In Loving Memory)

Volunteer Opportunity: Email Support Specialist

Volunteer Opportunity: Email Support Specialist Do you love doing online research and have an abiding interest in scleroderma? Then you'd probably love answering site inquiries for the nonprofit International Scleroderma Network! This position is vital for helping to provide quality scleroderma support and information for those affected by scleroderma throughout the world. Open position posted 1-12-05.

In Loving Memory of Shirley Glassman

The International Scleroderma Network thanks Sally Beth Dougherty for her donation in loving memory of Shirley Glassman. Posted 1-3-05. (Also see: ISN: In Loving Memory)

In Loving Memory of Ollie Beaty

The International Scleroderma Network thanks Barbara and Dick Hart for their donation in loving memory of Ollie Beaty. Posted 1-3-05. (Also see: ISN: In Loving Memory)

In Loving Memory of Michele Williams

The International Scleroderma Network thanks Rhoda and Nelson Lohre for their donation in loving memory of Michele Williams. Posted 1-3-05. (Also see: ISN: In Loving Memory)