The International Scleroderma Network thanks Bruce Peggs for his donation in loving memory of his aunt, Leila Small. Posted 01-31-05. (Also see ISN: In Loving Memory)
Anemia of Chronic Disease. Anemia refers to a deficiency in the blood. Anemia most commonly refers to insufficient iron resulting in a shortage of hemoglobin, but the term is also used to indicate vitamin deficiency or blood loss. Anemia can range from mild and temporary to severe and life-threatening. When the anemia is caused by a chronic illness, it is called "anemia of chronic disease." New page 01-29-05.
Torok Aron: ISN Hungarian (Magyarul) Translator I met Krista a few years ago, she is the ISN Romanian Translator, who was diagnosed with scleroderma. Hearing her story made me want to translate this page, in order to offer information in my native language. New page, posted 01-28-05.
The International Scleroderma Network thanks Michael Best & Friedrich, Attorneys at Law, for their research donation in loving memory of Corinne Bereskin. Posted 01-25-05.
The Scleroderma Association of Manitoba will hold its 2005 support group meetings on April 6, May 4, September 7, and October 5, 2005. Page updates 01-24-05.
The International Scleroderma Network celebrates it's 3rd anniversary on Friday, January 21, 2005! The nonprofit ISN was launched on 1-21-02, from the outgrowth of the Sclero.org website which was founded on 1-7-98 by Shelley Ensz.
The ISN operates the 1200+ page sclero.org website in 19 languages, publishes the Voices of Scleroderma book series, supports international peer-reviewed research, manages the 800+ member Sclero MSN online support community, offers a toll free hotline, and works to unite the online scleroderma community through leading the Scleroderma Webmaster's Association and it's popular "Scleroderma Sites to Surf !" program.
This is all made possible through the amazing international grassroots collaboration of thousands of scleroderma patients, caregivers, supporters, researchers, site visitors, members, donors, volunteers, and board members who work together via the internet to drive top quality information and support to the farthest corners of the globe. Posted 01-20-05. (Also see ISN Donors)
The International Scleroderma Network extends our thanks to an anonymous research donor for a donation of $100 made through Network for Good on 12-28-04. Posted 01-19-05.
The International Scleroderma Network thanks Gerald Mackler for his December donation in loving memory of Maxine Gail Mackler. Posted 01-19-05. (Also see ISN: In Loving Memory)
Colombiana Support Group Realizaremos nuestra próxima reunión el Sábado 29 de Enero en la Calle 100 N. 8 A - 55 edificio Word Trade Center. Y nos acompañara el Doctor (reumatologo) Alexander Vıvanco, quien nos impartirá una pequeña charla sobre los cuidados generales que deben tener los pacientes con esclerodermia. Allí daremos inicio a nuestro Programa Esclerodermia con Calidad de Vida. Posted 01-18-05.
The International Scleroderma Network thanks Jacquelyn and John Moriarty for their donation in loving memory of Michele Williams. Posted 1-17-05. (Also see ISN: In Loving Memory)
Volunteer Opportunity: Email Support Specialist Do you love doing online research and have an abiding interest in scleroderma? Then you'd probably love answering site inquiries for the nonprofit International Scleroderma Network! This position is vital for helping to provide quality scleroderma support and information for those affected by scleroderma throughout the world. Open position posted 1-12-05.
The International Scleroderma Network thanks Sally Beth Dougherty for her donation in loving memory of Shirley Glassman. Posted 1-3-05. (Also see ISN: In Loving Memory)
The International Scleroderma Network thanks Barbara and Dick Hart for their donation in loving memory of Ollie Beaty. Posted 1-3-05. (Also see ISN: In Loving Memory)
The International Scleroderma Network thanks Rhoda and Nelson Lohre for their donation in loving memory of Michele Williams. Posted 1-3-05. (Also see ISN: In Loving Memory)
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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