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ISN News Manager: Jo Frowde
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May 2005 ISN News

In Loving Memory of Maxine Gail Mackler

The InternationalScleroderma Network thanks Gerald Mackler for his March donation in loving memory of Maxine Gail Mackler. Posted 06-01-05. (Also see ISN: In Loving Memory)

In Loving Memory of Agnese Barsotti

The International Scleroderma Network thanks the following people for their donation in loving memory of Agnese Barsotti. (Also see In Loving Memory) Updated 6-1-05.

John and Sarah Carroz
Don & Nancy Edgar
Kenneth & Vera Lonergan
George & Liliana Manzoli
Eleanore Napsha
Bruno & Giuseppina Nova
Nat & Sylvia Passaglia
Mark & Cathy Woodworth & Family
Helen & Carl Worster, Jr.

Thank you to ISN Donor, Tara Brown

The International Scleroderma Network extends our thanks to Tara Brown for her Microsoft Giving matching donation. Her comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. (Also see ISN Donors) Posted 05-27-05.

New Pages: Sympathectomy Photos

ISN Photo Repository: Sympathectomy Photos. Three and a half months after the ulcers began to surface on my cold purple finger, surgery became a last ditch effort before amputation. Photos contributed by Jeanne N. New pages 05-25-05.

Thank you to Research Donor, Henry Leeson

The International Scleroderma Network extends our thanks to Henry Leeson for his research donation. Henry raised funds by participating in a marathon in the UK, in memory of his sister. Posted 05-25-05.

In Loving Memory of Sharon Borntrager

The International Scleroderma Network thanks Wade and Cindy Herschberger for their donation in loving memory of Sharon Borntrager. Posted 05-24-05. (Also see Gerald: Surviving Spouse of Scleroderma Patient and In Loving Memory)

(Español/Spanish) 05-29-05: Bogotá, Columbiana

(Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Sabado 29 de Mayo en en la Carrera 9 A No 99-02 Y, Bogotá, Columbiana. Allí daremos inicio a nuestro Programa Esclerodermia con Calidad de Vida. Posted 05-13-05.

(Español/Spanish) Folletos En Español, Asociación Colombiana de Esclerodermia

Tambien te cuento que hoy ordenamos la impresion de 5,000 folletos en espanol, Aspectos Generales de la Esclerodermia, y tenemos previsto distribuirlos entre la comunidad medica, clinicas, hospitales y consultorios privados de especialistas. Asociación Colombiana de Esclerodermia. Posted 05-13-05.

Brochures in Spanish, Asociación Colombiana de Esclerodermia

We are now printing 5,000 brochures in Spanish, Aspectos Generales de la Esclerodermia, and distributing them to community medical clinics, hospitals, and private specialists in Colombia. Asociación Colombiana de Esclerodermia. Posted 05-13-05.

Scleroderma Association of Saskatchewan (SASK

The Saskatchewan Scleroderma Self Help Group has officially changed to Scleroderma Association of Saskatchewan with the acronym of SASK. Update posted 05-10-05.

Lisa Bulman: ISN Support Specialist

Lisa Bulman: ISN Senior Support Specialist. Lisa has been promoted to ISN Senior Support Specialist. Sclero Forums provides free online support 24-hours a day. Posted 05-10-05.

New Page: History of Scleroderma by Sherrill Knaggs

History of Scleroderma. Scleroderma was first described by Hippocrates around 400 BC. This page also includes information on Paul Klee, and school report resources! By Sherrill Knaggs, ISN History of Scleroderma Guide. New page, 05-09-05.

Thank you to Research Donor, Vicki Summers

The International Scleroderma Network extends our thanks to Vicki Summers for her research donation. Posted 05-05-05.

In Loving Memory of Ruth Blommel

The International Scleroderma Network thanks the following people for their research donations in loving memory of Ruth Blommel.

Juanita Beeson
Jean & Walt Blakey
Joe & Shirley Cabla
Marina Foster
Mr. & Mrs. Heck
Jeanne Henderson
Keri Holloran & Family
Pauline Houghland
Joseph and Martha Jones
Darren & Tracey Kent
Jim & Karen Kent
Linda Lair
Joe and Lois Linzmaier
Gary Riebsomer & Family
Jim Riebsomer
Larry & Judy Riebsomer
Albert and Mary Scholl
Adelia Smith
Melissa & Steven Taterus
James & Linda Vanden Berg

Go to ISN News: April 2005
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


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