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Janey WillisHello, I am Janey Willis, ISN News Director and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Jeannie McClelland, ISN Assistant News Guide, researches Scleroderma Medical and Media News. Assistant News Guide Lisa Bulman posts these stories to our Sclero Forums.
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Archives 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002
December 2005
Lisa Bulman: ISN Assistant News Guide
Lisa Bulman: ISN Assistant News Guide. Lisa, who is an ISN Support Specialist, has taken on an additional role, working with the ISN News team which is led by Sherrill Knaggs. Lisa will be posting some articles from the ISN Newsroom to the Sclero Forums message boards. Posted 12-22-05.
In Honor of Lisa Bulman, Tackling Scleroderma Now!
The International Scleroderma Network thanks Beverly Tardiff for her comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Lisa Bulman. Posted 12-20-05. (Also see: Lisa Bulman and ISN: Comprehensive Donations)
Welcome Rose Adkins: ISN New or Renewing Member
The International Scleroderma Network welcomes Rose Adkins as a new or renewing member. Posted 12-19-05. (Also see: ISN Membership)
In Loving Memory of Joan Hollars
The International Scleroderma Network thanks National Vinyl Products for their comprehensive donation to tackle scleroderma research, support, education and awareness, in loving memory of Joan Hollars . Posted 12-16-05. (Also see: ISN: In Loving Memory)
Arnold and Joyce Slotkin are Tackling Scleroderma Now!
The International Scleroderma Network thanks Arnold and Joyce Slotkin for their comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 12-16-05. (Also see: ISN: Comprehensive Donation)
Welcome Irene LaMontagne: ISN New or Renewing Member
The International Scleroderma Network welcomes Irene LaMontagne as a new or renewing member. Posted 12-13-05. (Also see: ISN Membership)
Jim and Maggie Seibold are Tackling Scleroderma Now!
The International Scleroderma Network thanks Jim and Maggie Seibold for their comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 12-13-05. (Also see: ISN: Comprehensive Donation)
Welcome Sarah Pauwels: ISN New or Renewing Member
The International Scleroderma Network welcomes Sarah Pauwels as a new or renewing member. Posted 12-13-05. (Also see: ISN Membership)
Janet and Chuck Pruitt are Tackling Scleroderma Now!
The International Scleroderma Network thanks Janet and Chuck Pruitt for their ISN/SCTC Research Fund donation to tackle scleroderma research! Posted 12-09-05. (Also see: ISN/SCTC Research Fund)
Sally Dougherty is Tackling Scleroderma Now!
The International Scleroderma Network thanks Sally Dougherty for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 12-09-05. (Also see: ISN: Comprehensive Donation)
Welcome Rita Cream: ISN New or Renewing Member
The International Scleroderma Network welcomes Rita Cream as a new or renewing member. Posted 12-08-05. (Also see: ISN Membership)
Janey Willis: ISN Assistant News Guide
Janey Willis: ISN Assistant News Guide. Janey, who is an ISN Support Specialist, has taken on an additional role, working with the ISN News team of Sherrill Knaggs and Judy Tarro. Janey will be posting some articles from the ISN Newsroom to the Sclero Forums message board community. Posted 12-08-05.
Dr. Irene Miniati: Contributing Author, Voices of Scleroderma Volume 3
Dr. Irene Miniati: ISN Contributing Author for Voices of Scleroderma Volume 3. I am a young medical doctor working as a rheumatologist with Professor Matucci Cerinic at the University of Florence in Italy. My principal field of interest is autologous stem cell transplantation in scleroderma, a treatment that has emerged in the last decade. Posted 12-07-05.
In Loving Memory of Maxine Gail Mackler
The International Scleroderma Network thanks Gerald Mackler for his December donation in loving memory of Maxine Gail Mackler. Posted 12-06-05. (Also see: ISN: In Loving Memory)
Welcome Jane and Matt Gilliam: ISN New or Renewing Member
The International Scleroderma Network welcomes Jane and Matt Gilliam as a new or renewing members. Posted 12-05-05. (Also see: ISN Membership)
In Loving Memory of Deloris Robinson
The International Scleroderma Network thanks Neal Robinson and Family for their research donation in loving memory of Deloris Robinson. Posted 12-05-05. (Also see: ISN: Donate In Loving Memory, ISN: In Loving Memory Donors and ISN/SCTC Research Fund.)
12-16-05: Bogotá, Columbiana
(Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Viernes 16 de Deciembre en en la Carrera 10 Nº 20-19, oficina 606-A edificio Saraga de Bogotá D.C. Posted 12-05-05.
In Loving Memory of Bill Conrath
The International Scleroderma Network thanks Trammell Crow Company for their comprehensive donation in loving memory of Bill Conrath. Posted 12-01-05. (Also see: ISN: In Loving Memory Donors)
In Loving Memory of Mabel Noroian
The International Scleroderma Network thanks Jan Neilsen for her comprehensive donation in loving memory of Mabel Noroian. Posted 12-01-05. (Also see:ISN: In Loving Memory Donors)
Welcome Bernice Kerkochian: ISN New or Renewing Member
The International Scleroderma Network welcomes Bernice Kerkochian as a new or renewing member! Posted 12-01-05. (Also see: ISN Membership)
SCOT Trial: Open Enrollment, 2005-2008
SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 12-01-05. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation)
NIH: Now Enrolling for Family/Twin Study
NIH Autoimmune Twins and Siblings StudyFamilies with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. Families may enroll at the NIH Clinical Center in Bethesda, Maryland, just 9 miles north of Washington, DC or at their local physician’s office. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 12-01-05. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics)
 
Go to ISN Donation and Web Site News: November 2005
 
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