The nonprofit International Scleroderma Network is continually expanding and we have some terrific new openings for Internet volunteers, including the areas of support, website assistants, volunteer services, book promotion, donations and membership, fundraising, grant writing, translators, etc. Existing and retired volunteers are always invited to apply for additional roles or transfers, too. See our main Volunteer page for openings and applications! Posted 02-28-06.
The International Scleroderma Network thanks Gerald Mackler for his February donation in loving memory of Maxine Gail Mackler. Posted 02-27-06. (Also see ISN: In Loving Memory Donors)
The Irish Raynaud's & Scleroderma Society has a new phone number, (01) 202 0184. You can reach them at P.O. Box 2958, Foxrock, Dublin 18, Ireland, email [email protected]. IRSS, Member of ISN's Scleroderma Webmaster's Association, posted 02-23-06.
Judith Devlin has just received the initial shipment of Voices of Scleroderma Volume 3. She will be signing the books and shipping out a complimentary copy to everyone who contributed their article or story for this book. Shipping times range from 2 weeks to 6 months, depending on the countries. If your story was submitted for Volume 3, please email Judith if your shipping address has changed since then.
It is simply an unbeatable book for scleroderma patients, caregivers, and their friends, families and doctors!
Contributing professionals include Dr. Marco Matucci-Cerinic and Dr. Irene Miniati (on Systemic Scleroderma), Dr. Fernanda Falcini (on Juvenile Scleroderma), Dr. Tafazzul e-Haque Mahmud, Dr. Laszlo Czirjak (on Scleroderma-Like Disorders), Francisco Castellanos, and Carol Langenfeld—plus over 100 intriguing patient and caregiver and stories in remembrance, from 16 countries!
The International Scleroderma Network thanks Sebastian Dattolico for his comprehensive donation to tackle scleroderma research, support, education and awareness, in loving memory of Diane Wood. Posted 02-22-06. (Also see ISN: In Loving Memory)
(Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Viernes 24 de Febrero, contraremos con la presencia del Dr. Jorge Avendaño (dermatologo), en en la Carrera 10 Nº 20-19, oficina 606-A edificio Saraga de Bogotá D.C. Posted 02-13-06.
Dr. László Czirják is Professor of Rheumatology and Medicine and Head of the Department of Immunology and Rheumatology, University of Pécs, Pécs, Hungary. His article on Scleroderma-Like Disorders is featured in Chapter 1 of the ISN's book,Voices of Scleroderma Volume 3. Posted 02-09-06.
The International Scleroderma Network thanks the following people for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Greta Woodward. Posted 02-08-06. (Also see Donors In Loving Memory)
Mark and Audrey Goudy
Lillian and Ralph Lombard
Lavon and Peggy Sumption
Wayne Lowe : ISN PR for Voices of Scleroderma Book Series in U.K. My current role is ISN Public Relations for the United Kingdom, for the ISN's fabulous Voices of Scleroderma book series. I will try to get your voice heard across all the way to the UK, making your stories read and heard to all who need your help. Posted 02-04-06.
Patty Sralla: ISN PR for Voices of Scleroderma Book Series. I am writing press releases for the ISN's wonderful Voices of Scleroderma book series. Posted 02-04-06.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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