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March 2006 ISN News

Meagan (Meg) McLaughlin: ISN Support Specialist

Meagan (Meg) McLaughlin: ISN Support Specialist. I am delighted to join the Sclero support specialist team! The message board was, and continues to be, a place to go for knowledge, understanding, support and love. Posted 03-21-06.

Janey Willis: ISN Website Assistant

Janey Willis: ISN Website Assistant. Janey, who is ISN Technical Writer, ISN Assistant News Guide, and an ISN Support Specialist, is now also preparing and posting ISN news and medical items for the website, using the Macromedia Contribute program, and creating a manual for it, as well. Posted 03-21-06.

Steve Dickson: ISN Autoimmune News Guide

Stephen Dickson: ISN Autoimmune News Guide. In this new role, I prepare the ISN's Autoimmune News, researching and preparing articles about autoimmune diseases for the ISN Newsroom and website. I am also a Support Specialist, and ISN Guide to RSS Newsfeed. Posted 03-21-06.

Lisa Bulman: ISN Fundraiser

Lisa Bulman: ISN Fundraiser. Lisa has been promoted to ISN Fundraiser, in addition to her roles as ISN Senior Support Specialist for Sclero MSN and as ISN Assistant News Guide. Posted 03-21-06.

Marbella Brown is Tackling Scleroderma Now!

The International Scleroderma Network extends our thanks to the Marbella Brown for her comprehensive donation to tackle scleroderma research, support, education and awareness. Posted 03-10-06. (Also see ISN Comprehensive Donors)

In Loving Memory of Jane Seeley

The International Scleroderma Network thanks the following people for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Jane Seeley. Posted 03-10-06. (Also see Donors In Loving Memory)

Penny Casteel
Patti Harris
Tonya Hunter
Melissa Matlock
Susan Lawless

Thank You to Donor, Audrey Love Charitable Foundation

The International Scleroderma Network extends our thanks to the Audrey Love Charitable Foundation for their comprehensive donation to tackle scleroderma research, support, education and awareness. Posted 03-09-06. (Also see ISN Comprehensive Donors)

ISN New Page: Rheumatoid Arthritis

Rheumatoid Arthritis (RA) is a chronic autoimmune disease that primarily affects the joints. Topics include rheumatoid arthritis symptoms, causes, diagnosis, antibodies, scleroderma and rheumatoid arthritis, prevention, treatments, research, support, and over 25 personal stories. ISN. Posted 03-09-06.

03-24-06: Bogotá, Columbiana

Colombiana Support Group Tenemos programada nuestra proxima reunion para el dia Viernes 24 de Marzo, n en la Carrera 10 N º 20-19, oficina 606-A edificio Saraga de Bogotá D.C. Posted 03-09-06.

Sherrill Knaggs: ISN News Manager

Sherrill Knaggs: ISN News Manager. Sherrill has been promoted to ISN News Manager to oversee the development of the burgeoning team that has developed under her leadership. Sherrill has been with the ISN since our launch as a nonprofit agency in 2002, and is also holds many other positions within the ISN. Posted 03-08-06.

ISN: Amazing Virtual Volunteer Opportunities!

The nonprofit International Scleroderma Network is continually expanding and we have some terrific new openings for Internet volunteers, including the areas of support, website assistants, volunteer services, book promotion, donations and membership, fundraising, grant writing, translators, etc. Existing and retired volunteers are always invited to apply for additional roles or transfers, too. See our main Volunteer page for openings and applications! Posted 03-02-06.

ISN Voices of Scleroderma Volume 3: Judith Thompson Devlin Signing!

Judith Thompson Devlin has signed and sent the initial shipment of Voices of Scleroderma Volume 3 to those who contributed their story to this volume. It is packed with top notch medical information and support for scleroderma patients, caregivers, and their friends, families and doctors! The book (and book series) is for sale on Amazon and is also available by mail. Order your copies today! Posted 03-02-06. (Also see Voices of Scleroderma Book Series and Judith Thompson Devlin)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not.

Families may enroll at the NIH Clinical Center in Bethesda, Maryland, just 9 miles north of Washington, DC or at their local physician's office. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 01-11-06. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

Go to ISN News: February 2006
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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