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April 2006 ISN News

In Loving Memory of Patricia Harper

The International Scleroderma Network thanks Martha and Jim Delargey for their comprehensive donation for scleroderma research, education, support, and awareness in loving remembrance of Patricia Harper. Posted 04-27-06. (Also see Donors In Loving Memory)

In Loving Memory of Sandra Lee Gervais

The nonprofit International Scleroderma Network extends our sympathy to the family and friends of Sandra Lee Gervais. Donations in her memory may be made online or by mail. We have acknowledgement information on file. Updated 04-24-06.

Anonymous (1)
Betsy Coffin
Mr. & Mrs. George Field
Margaret Marciano
Bernice Martel
Barbara Ramsdell
Patricia Santos
George Williams

Shelley Ensz: Book Signings at Panera Bread in Twin Cities

Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series, will be doing public book signings for all 3 volumes at:

Panera Bread in Minnesota from 10:30am-2:00pm:
May 9, 2006 (Tue) Knollwood Mall, St. Louis Park
June 5, 2006 (Mon) Yorktown Mall, Edina
June 22, 2006 (Thu) 3808 Grand Way, St. Louis Park
July 6, 2006 (Thu) 8251 Flying Cloud Dr, Eden Prairie

Help raise awareness of scleroderma: bring your friends and family! Books will be available for purchase. Posted 04-20-06.

ISN Scoring for Scleroderma Fundraiser by Lisa Bulman

Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is off to a great start! The Scoring for Scleroderma fundraiser, which is a women's soccer tournament, is scheduled for June 19th. Our indoor fields, located at the Canton Sports Plex, in Canton, Massachusetts and our copying services, furnished by Staples, have been donated! We are expecting at least 50 to 60 people to participate as well as other goods to be donated, such as water and soccer balls. We are all very excited and looking forward to this being a great success! Posted 04-18-06 by Lisa Bulman, ISN Fundraiser.

Merrié Scriber: ISN Membership and Donation Coordinator

Merrie Scriber: ISN Membership and Donation Coordinator. I am honored and excited to have the opportunity to volunteer my time to this incredibly talented group of people and all those who suffer from this related group of diseases. I am forty-three years old and the mother of two beautiful children. My youngest turns 17 next month (5/06). She has been fighting illness since she was 12. Posted 04-18-06.

In Loving Memory of Sandra Lee Gervais

The nonprofit International Scleroderma Network extends our sympathy to the family and friends of Sandra Lee Gervais. Donations in her memory may be made online or by mail. We have acknowledgement information on file. Posted 04-12-06.

In Loving Memory of Candy Caro-Butterfield

The International Scleroderma Network thanks the Santa Barbara Department of Rehabilitation for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Candy Caro-Butterfield. Posted 04-12-06. (Also see Donors In Loving Memory)

New Page: Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). New page, posted 04-10-06. (Also see Pulmonary Hypertension)

Vivian Taggart is Tackling Scleroderma Now!

The International Scleroderma Network thanks Vivian Taggart for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 04-07-06. (Also see ISN: Comprehensive Donors)

In Loving Memory of Marilyn Abramowitz-O'Neill

The International Scleroderma Network thanks Fern, Lawry, Jenna, Jonah and Mischa Trevor-Deutsch for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Marilyn Abramowitz-O'Neill. Posted 04-06-06. (Also see Donors In Loving Memory)

04-28-06: Bogotá, Columbiana

Colombiana Support Group Tenemos programada nuestra proxima reunion para el dia Viernes 28 de Abril, en la escuela Colombiana de Rehabilitacion. Avenida Carrera 30 Nº 152-40. Telefono 057-16270366. Contaremos con la presencia de la Dra. Gloria Cespedes (Fisioterapeuta). El taller ilustrara a los pacientes sobre la importancia de la fisioterapia en su rehabilitacion. Posted 04-04-06.

Go to ISN News: March 2006
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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