| In Loving Memory of Patricia Harper |
| The International Scleroderma Network thanks Martha and Jim Delargey for their comprehensive donation for scleroderma research, education, support, and awareness in loving remembrance of Patricia Harper. Posted 04-27-06. (Also see: Donors in Loving Memory) |
| Welcome Patricia Smith: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Patricia Smith as a new or renewing member. Posted 04-26-06. (Also see: ISN Membership) |
| In Loving Memory of Sandra Lee Gervais |
| The nonprofit International Scleroderma Network extends our sympathy to the family and friends of Sandra Lee Gervais. Donations in her memory may be made online or by mail. We have acknowledgement information on file. |
Anonymous (1)
Betsy Coffin
Mr. & Mrs. George Field
Margaret Marciano |
Bernice Martel
Barbara Ramsdell
Patricia Santos
George Williams |
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| Updated 04-24-06. |
| Shelley Ensz: Book Signings at Panera Bread in Twin Cities |
Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series, will be doing public book signings for all 3 volumes at:
Panera Bread in Minnesota from 10:30am-2:00pm :
May 9, 2006 (Tue) Knollwood Mall, St. Louis Park
June 5, 2006 (Mon) Yorktown Mall, Edina
June 22, 2006 (Thu) 3808 Grand Way, St. Louis Park
July 6, 2006 (Thu) 8251 Flying Cloud Dr, Eden Prairie
Help raise awareness of scleroderma: bring your friends and family! Books will be available for purchase. Posted 04-20-06. |
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| Welcome Rhonda Bye: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Rhonda Bye as a new or renewing member. Posted 04-20-06. (Also see: ISN Membership) |
| ISN Scoring for Scleroderma Fundraiser by Lisa Bulman |
| Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is off to a great start! The Scoring for Scleroderma fundraiser, which is a women's soccer tournament, is scheduled for June 19th. Our indoor fields, located at the Canton Sports Plex, in Canton, Massachusetts and our copying services, furnished by Staples, have been donated! We are expecting at least 50 to 60 people to participate as well as other goods to be donated, such as water and soccer balls. We are all very excited and looking forward to this being a great success! Posted 04-18-06 by Lisa Bulman, ISN Fundraiser. |
| Merrié Scriber: ISN Membership and Donation Coordinator |
| Merrie Scriber: ISN Membership and Donation Coordinator. I am honored and excited to have the opportunity to volunteer my time to this incredibly talented group of people and all those who suffer from this related group of diseases. I am forty-three years old and the mother of two beautiful children. My youngest turns 17 next month (5/06). She has been fighting illness since she was 12. Posted 04-18-06. |
| In Loving Memory of Sandra Lee Gervais |
| The nonprofit International Scleroderma Network extends our sympathy to the family and friends of Sandra Lee Gervais. Donations in her memory may be made online or by mail. We have acknowledgement information on file. Posted 04-12-06. |
| In Loving Memory of Candy Caro-Butterfield |
| The International Scleroderma Network thanks the Santa Barbara Department of Rehabilitation for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Candy Caro-Butterfield. Posted 04-12-06. (Also see: Donors in Loving Memory) |
| Welcome Andrew McKechnie: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Andrew McKechnie as a new or renewing member. Posted 04-12-06. (Also see: ISN Membership) |
| New Page: Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). New page, posted 04-10-06. (Also see: Pulmonary Hypertension) |
| Vivian Taggart is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Vivian Taggart for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 04-07-06. (Also see: ISN: Comprehensive Donors) |
| Welcome Vivian Taggart: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Vivian Taggart as a new or renewing member. Posted 04-07-06. (Also see: ISN Membership) |
| ISN Open Volunteer Position: Donations/Membership Coordinator |
| The International Scleroderma Network has a volunteer opening for a Donations and Membership Coordinator, as Christine Patane is transferring to ISN Database Coordinator. Training provided but requires caring, English-speaking, detail-oriented person with office experience. About 5 hours per week, from home. Posted 04-07-06. Apply here. |
| In Loving Memory of Marilyn Abramowitz-O'Neill |
| The International Scleroderma Network thanks Fern, Lawry, Jenna, Jonah and Mischa Trevor-Deutsch for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Marilyn Abramowitz-O'Neill. Posted 04-06-06. (Also see: Donors in Loving Memory) |
| 04-28-06: Bogotá, Columbiana |
| (Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Viernes 28 de Abril, en la escuela Colombiana de Rehabilitacion. Avenida Carrera 30 Nº 152-40. Telefono 057-16270366. Contaremos con la presencia de la Dra. Gloria Cespedes (Fisioterapeuta). El taller ilustrara a los pacientes sobre la importancia de la fisioterapia en su rehabilitacion. Posted 04-04-06. |
| Welcome Laurie Hansley: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Laurie Hansley as a new or renewing member. Posted 04-05-06. (Also see: ISN Membership) |
| Welcome Anna Viegas: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Anna Viegas as a new or renewing member. Posted 04-05-06. (Also see: ISN Membership) |
| Welcome Julie Williams: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Julie Williams as a new or renewing member. Posted 04-04-06. (Also see: ISN Membership) |
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