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May 2006 ISN News

Thank you to ISN Donors, Tara Brown and Michael Wozniak

The International Scleroderma Network extends our thanks to Tara Brown and Michael Wozniak for their Microsoft Giving matching donation. Their comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. Posted 06-02-06. (Also see ISN Donors)

Shelley Ensz: June 5th Book Signing at Panera Bread in Twin Cities

Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series  , will be doing a book signing on Monday, June 5, 2006 at the Panera Bread restaurant in Yorktown Mall, Edina, Minnesota. ISN books will be available for purchase. Each volume features articles by world experts in scleroderma, as well as over 100 helpful and engaging patient and caregiver stories to provide guidance and support for coping with all types of scleroderma (localized and systemic). 05-30-06.

ISN Nominated for Tech Award for Technology Benefiting Humanity!

The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. At the Awards Gala each fall, five Laureates in each category are honored, and $250,000 in cash prizes are awarded. Posted 05-30-06.

5-26-06: Bogotá, Columbiana

Colombiana Support Group Tenemos programada nuestra proxima reunion para el dia Viernes 26 de Mayo, en la Universidad Nacional de Colombia. Sede Bogota. Avenida Carrera 30 Nº 45-03. Dirigida por la Dra Paola Coral Alvarado, Internista Reumatologia. Posted 05-12-06.

Thank You to Gifts-in-Kind Donor, Marsha Friedman

Marsha Friedman of Event Management Services generously donated publicity services for the ISN's Voices of Scleroderma Volume 3 book, by sending out over 10,000 press releases to book reviewers in May 2006! Posted 05-11-06. (Also see Gifts in Kind Donors)

5-27-06: Bogotá, Columbiana

(Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Viernes 27 de Mayo, en la Universidad Nacional de Colombia. Sede Bogota. Avenida Carrera 30 Nº 45-03. Telefono 057-16270366. Dirigida por Paola Coral Alvarado, Internista Reumatologia. Posted 05-11-06.

Shelley Ensz: Book Signings at Panera Bread in Twin Cities

Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series, did a book signing at Panera Bread in Knollwood Mall, St. Louis Park, Minnesota on Tuesday, May 9, 2006. She reports, "It was an exciting event, and a wonderful chance to meet patients, doctors, and members of the general public who are thrilled with the ISN and our books. I really look forward to the rest of our book signings at Panera!" The next one will be June 5, 2006 (Monday) at the Panera Bread in Yorktown Mall, Edina, Minnesota. ISN books will be available for purchase. 05-10-06.

New Pages: Diabetes by Janey Willis, ISN Guide to Diabetes

Autoimmune Diseases: Diabetes. Topics of this new 11-page section include symptoms, causes, diagnosis, treatments, research, personal stories and media stories about diabetes, by Janey Willis, ISN Guide to Diabetes. Posted 05-01-06.

Tony Varghese : ISN Board of Directors

Tony Varghese: ISN Board of Directors and ISN Project Manager. I am a software professional working for a multinational corporation headquartered in India. Currently I am doing projects for a financial firm in Minneapolis. I strongly believe in the power, reach and influence of technology and its ability to be a potent tool in making a difference to a cause. The sclero.org web site is a testimonial to this. Posted 05-01-06.

Go to ISN News: April 2006
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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