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June 2006 ISN News

In Loving Memory of Doris Schwartz

The International Scleroderma Network thanks Anonymous and Michelle Little for their donation to tackle scleroderma research in loving memory of Doris Schwartz. Posted 06-27-06. (Also see ISN: In Loving Memory Donors)

In Loving Memory of Doris Schwartz

The International Scleroderma Network thanks All American for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Doris Schwartz. Posted 06-26-06. (Also see ISN: In Loving Memory Donors)

In Honor of Sheryll Bedingfield, Tackling Scleroderma Now!

The International Scleroderma Network thanks Elaine and Richard Freund & Family for their comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see Comprehensive Donors)

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Gerald Mackler for his June donation in loving memory of Maxine Gail Mackler. Posted 06-26-06. (Also see ISN: In Loving Memory Donors)

In Honor of Sheryll Bedingfield, Tackling Scleroderma Now!

The International Scleroderma Network thanks Ronald Georgeff for his comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see Comprehensive Donors)

ISN Scoring for Scleroderma Huge Success!

The Scoring for Scleroderma Women's Soccer Tournament, which was held on June 19, 2006, at the Canton Sports Plex, in Canton, Massachusetts was a huge success! Everyone had a great time and generously donated to this worthy cause! At this time, the tournament has raised over $5,000 with donations still coming in! Posted 06-22-06.

06-19-06: ISN Scoring for Scleroderma Fundraiser Today!

Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is kicking off today—Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-19-06 by Lisa Bulman, ISN Fundraiser.

Sid Strong: ISN Board of Directors

Sid Strong: ISN Board of Directors. I have closely observed the establishment and growth of this amazing website, and the resulting nonprofit International Scleroderma Network. I am a former business owner. I presently serve on two other boards, and I am delighted to put my experience to good use in making sound decisions for the ISN. Posted 06-16-06.

07-01-06: Bogotá, Columbiana

Colombiana Support Group Nuestra proxima reunion se realizara el Sabado 1 de Julio de 2006 a las 11:00 A.M. en la Universidad Nacional de Colombia. Sede Bogota. Facultad de Medicina. Dirige la Dra. Paola Coral Alvarado, Internista - Residente Reumatologia. Posted 06-15-06.

06-19-06: ISN Scoring for Scleroderma Fundraiser!

Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is ready to kick off! The women's soccer tournament will be held on Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-14-06 by Lisa Bulman, ISN Fundraiser.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 06-09-06. (Also see ISN: Comprehensive Donors)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). Posted 06-07-06. (Also see Pulmonary Hypertension)

06-22-06: Shelley Ensz: Book Signings at Panera Bread in Twin Cities

Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series  , will be doing public book signings for all 3 volumes at Panera Bread in Minnesota from 10:30am-2:00pm, on Thursday, June 22, 2006 at 3808 Grand Way, St. Louis Park, Minnesota. Help raise awareness of scleroderma: bring your friends and family! Books will be available for purchase. Posted 06-07-06.

ISN Nominated for Tech Award for Technology Benefiting Humanity!

The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. It is all of us working together, as site visitors, members, and volunteers, who have earned this special recognition. Posted 06-02-06.

ISN Shop for Scoring for Scleroderma Fundraiser by Lisa Bulman

Join in the fun and support ISN's Scoring for Scleroderma fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Order your items now—everything from t-shirts, track suits, sweatshirts, hoodies, dog t-shirts, bibs, infant clothing, mouse pads, coffee mugs, calendars, aprons, caps, tote bags, and teddy bears are available for purchase online and the profit from each sale benefits this fundraiser! Posted 06-02-06. (Also see Lisa Bulman, ISN Fundraiser)

Thank you to ISN Donors, Tara Brown and Michael Wozniak

The International Scleroderma Network extends our thanks to Tara Brown and Michael Wozniak for their Microsoft Giving matching donation. Their comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. Posted 06-02-06. (Also see ISN Donors)

Go to ISN News: May 2006
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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