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July 2006 ISN News

Lisa Bulman's Scoring for Scleroderma is Tackling Research, Too!

The International Scleroderma Network thanks Lisa Bulman's Scoring for Scleroderma fundraiser for their special donation for scleroderma research! Posted 07-28-06.

Sandy Strong: ISN Board of Directors

Sandy Strong: ISN Board of Directors. I take the responsibilities of being a board member seriously, and I must admit I feel a bit daunted by the many challenges and opportunities it entails. But I am honored to be part of the ISN, and I will do my utmost to make good decisions on its behalf. Posted 07-28-06.

Lisa Bulman's Scoring for Scleroderma is Tackling Scleroderma Now!

The International Scleroderma Network thanks Lisa Bulman's Scoring for Scleroderma fundraiser for their comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-28-06.

(Español/Spanish) Folleto En Español, La Esclerodermia Sistemica Difusa (Gratis PDF)

Folleto en español, La Esclerodermia Sistemica Difusa. (Gratis, PDF). La Esclerodermia Difusa se caracteriza por el desarrollo de una marcada fibrosis de la piel, las articulaciones, el tronco y la cara. Pudiendo presentarse en cualquier parte del cuerpo. Suele afectar algunos órganos internos del paciente tales como riñones, pulmones, corazón, esófago e intestinos lo que hace que se diagnostique como una enfermedad grave para quienes la padecen. Posted 07-26-06. (Also see Asociación Colombiana de Esclerodermia)

(Español/Spanish) Folleto En Español, La Esclerodermia Limitada: Síndrome de C.R.E.S.T. (Gratis PDF)

Folleto en español, La Esclerodermia Limitada: Síndrome de C.R.E.S.T. (Gratis PDF). La Esclerodermia es una enfermedad crónica que se da cuando el sistema inmunológico del cuerpo ataca a sus propios tejidos. La Esclerodermia Limitada frecuentemente también es denominada Síndrome de C.R.E.S.T. Posted 07-21-06. (Also see Asociación Colombiana de Esclerodermia)

A Patient Guide to Ocular Inflammatory Disease

A Patient Guide to Ocular Inflammatory Disease. This is an online guide, covering symptoms, diagnosis and treatment for inflammatory eye diseases. In addition, printed copies of this guide can be requested free of charge from the Ocular Immunology and Uveitis Foundation. (Also see ISN Guide to Eye Involvement and Dr. C. Stephen Foster, ISN Medical Advisory Board) Posted 07-18-06.

Patsy Lundberg is Tackling Scleroderma Now!

The International Scleroderma Network thanks Patsy Lundberg for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-17-06. (Also see ISN: Comprehensive Donors)

James Hemenway is Tackling Scleroderma Now!

The International Scleroderma Network thanks James Hemenway for his comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-18-06. (Also see ISN: Comprehensive Donors)

In Loving Memory of Doris Schwartz

The International Scleroderma Network thanks Mary Ellen and Mark Powell for their donation to tackle scleroderma research, support, education and awareness in loving memory of Doris Schwartz. Posted 07-18-06. (Also see ISN: In Loving Memory Donors)

07-29-06: Bogotá, Columbiana

Colombiana Support Group Nuestra proxima reunion se celebra el Sabado 29 de Julio de 2006 a las 10:00 A.M. en el edificio World Trade Center, calle 100 # 8 A - 55, Bogota, D.C.. Posted 07-14-06.

Thank you to ISN Research Donor, Sherrill Knaggs

The nonprofit International Scleroderma Network extends our thanks to Sherrill Knaggs. Her additional donation helps tackle scleroderma with top notch scleroderma research. Posted 07-12-06.

Sherrill Knaggs is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sherrill Knaggs for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-12-06. (Also see Sherrill Knaggs: ISN News Guide and ISN: Comprehensive Donors)

Heidi Nolan is Tackling Scleroderma Now!

The International Scleroderma Network thanks Heidi Nolan for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-07-06. (Also see Heidi Nolan: ISN Manager for Sclero MSN Community and ISN: Comprehensive Donors)

In Loving Memory of Jack Matarazzo

The International Scleroderma Network thanks Narre Warren South P-12 College of Australia for their donation to tackle scleroderma research, support, education and awareness in loving memory of Jack Matarazzo. Posted 07-07-06. (Also see ISN: In Loving Memory Donors)

In Loving Memory of Doris Schwartz

The International Scleroderma Network thanks Yujia Wu for the donation to tackle scleroderma research in loving memory of Doris Schwartz. Posted 07-06-06. (Also see ISN: In Loving Memory Donors)

07-06-06: Shelley Ensz Book Signing at Panera, Eden Prairie, MN

Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series, will be doing public book signings for all 3 volumes at: Panera Bread in Minnesota from 10:30am-2:00pm on July 6, 2006 (Thu) at 8251 Flying Cloud Dr, Eden Prairie, Minnesota. Books will be available for purchase. Posted 07-03-06.

07-01-06: Bogotá, Columbiana

Colombiana Support Group Nuestra proxima reunion se realizara el Sabado 1 de Julio de 2006 a las 11:00 A.M. en la Universidad Nacional de Colombia. Sede Bogota. Facultad de Medicina. Dirige la Dra. Paola Coral Alvarado, Internista - Residente Reumatologia. Posted 06-15-06.

Go to ISN News: June 2006
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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