ISN Donation and Web Site News |
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| September 2006 |
| Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 09-25-06. (Also see: Pulmonary Hypertension) |
| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 09-25-06. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
| NIH: Now Enrolling for Family/Twin Study |
| Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 09-25-06. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics ) |
| Welcome Marilyn Oxby: ISN New or Renewing Member |
 The International Scleroderma Network welcomes Marilyn Oxby as a new or renewing member. Posted 09-25-06. (Also see: ISN Membership) |
| 09-30-06: Bogotá, Columbiana |
| (Español/Spanish) Asociación Colombiana de Esclerodermia Nuestra proxima reunion se ralizara el Sabado 30 de Septiembre de 2006 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 09-20-06. |
| Welcome Steven Hall: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Steven Hall as a new or renewing member. Posted 09-20-06. (Also see: ISN Membership) |
| Patty Sralla: ISN Insider Newsletter Manager |
| Patty Sralla: ISN Insider Newsletter Manager. In 2003-2004, I served as ISN Newsletter Coordinator. I am delighted to return now as ISN Insider Newsletter Manager. Our newsletter is for ISN members and volunteers and a vital part of the outreach for our nonprofit agency. Posted 09-13-06. |
