Colombiana Support Group Nuestra proxima reunion se ralizara el Viernes 30 de Marzo de 2007 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 03-27-07.
Scleroderma Awareness Bracelets are in stock and now available for $2.50 each (including shipping) from the nonprofit International Scleroderma Network (ISN). The teal silicone wristbands say "SCLERODERMA" on one side, and "SCLERO.ORG" on the other. Order them now through ISN Secure Shop ! Posted 3-25-07.
The International Scleroderma Network thanks Carrie Maddoux for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-21-07. (Also see Join or Donate)
The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Beryl Blatt. Updated 04-26-07. (Also see ISN Donations In Loving Memory)
Mr. and Mrs. Larry Belgrade
Carol and Lionel Brazen
Norman and Bobbie Bloch
Anna Marie Brodsky
Scott and Debbie Brown
Sharon & Aaron Chanowitz
Marc and Randi Cohn
Matthew and Paula Cohn
Babe & Schellie Cutler
Gene and Shelley Ensz
George and Barbara Fuchs
David and Edith Gass
Chuck, MaryLee and Casey Helander
Dr. and Mrs. Walter Hofman
Lake Forest Food and Wine Specialties
Mr. and Mrs.Philip Lieberman
Lake Forest/Lake Bluff Chamber of Commerce
Fidel and Joyce Lopez
David and Deborah MacKenzie
Shain, Burney, Ross and Citron, Ltd.
Natalie and Fred Strauss
Paula J. Wierschem
The International Scleroderma Network welcomes Fran Waranius as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03--09-07.
In Loving Memory of Janet Philips
|The International Scleroderma Network thanks the following people for theircomprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Reposted 05-31-07. (Also see ISN Donations In Loving Memory)|
The International Scleroderma Network thanks Trudy Barna-Lloyd for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-07-07. (Also see ISN Donors and Join or Donate)
Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 03-05-07. (Also see Pulmonary Hypertension)
Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 03/05/07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )
The International Scleroderma Network welcomes Vera Lonergan as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03-05-07.
The International Scleroderma Network thanks Gerald Mackler for his comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler. Posted 03-01-07. (Also see ISN Donations in L Loving Memory)
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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