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March 2007 ISN News

03-30-07: Bogotá, Columbiana

Colombiana Support Group Nuestra proxima reunion se ralizara el Viernes 30 de Marzo de 2007 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 03-27-07.

Scleroderma Awareness Bracelets, Now Available!

Scleroderma Awareness Bracelets are in stock and now available for $2.50 each (including shipping) from the nonprofit International Scleroderma Network (ISN). The teal silicone wristbands say "SCLERODERMA" on one side, and "SCLERO.ORG" on the other. Order them now through ISN Secure Shop ! Posted 3-25-07.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 03-21-07. (Also see ISN Donors)

Carrie Maddoux is Tackling Scleroderma Now!

The International Scleroderma Network thanks Carrie Maddoux for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-21-07. (Also see Join or Donate)

In Loving Memory of Beryl Blatt

The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Beryl Blatt. Updated 04-26-07. (Also see ISN Donations In Loving Memory)

Anonymous (5)
Mr. and Mrs. Larry Belgrade
Carol and Lionel Brazen
Norman and Bobbie Bloch
Anna Marie Brodsky
Tricia Brouwers
Scott and Debbie Brown
Sharon & Aaron Chanowitz
Jerry Chern
Judy Clar
Marc and Randi Cohn
Matthew and Paula Cohn
Babe & Schellie Cutler
Digital Acoustics
Gene and Shelley Ensz
Avelina Friedman
George and Barbara Fuchs
David and Edith Gass
Joyce Guidice
Chuck, MaryLee and Casey Helander
Hochman Family
Dr. and Mrs. Walter Hofman
Myles Kagan
Joan Ladon
Lake Forest Food and Wine Specialties
Mr. and Mrs.Philip Lieberman
Lake Forest/Lake Bluff Chamber of Commerce
Fidel and Joyce Lopez
David and Deborah MacKenzie
Phyllis Malitz
Linda Martinat
Karen Meyer
Sean Mitus
Margaret O'Connor
Rosalie Ovson
Howard Pearlman
Kennedy Pierson
Gary Plotnick
Eric Robin
Ellen Rogin
Matt Schnider
Shain, Burney, Ross and Citron, Ltd.
Shelly Simms
Natalie and Fred Strauss
James Walsh
Paula J. Wierschem

Welcome Fran Waranius, ISN New or Renewing Member

The International Scleroderma Network welcomes Fran Waranius as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03--09-07.

In Loving Memory of Janet Philips

The International Scleroderma Network thanks the following people for theircomprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Reposted 05-31-07. (Also see ISN Donations In Loving Memory)
Lynn Cochran
Gene and Shelley Ensz
Michele Forte
Martha Glew
BriAnn Hill
William and Jean Hoffer
Katrina Trask Nursery School
Miranda Koss
Paul Krebs
Amy Rosoff
William Stark
Lawrence Zeides

Trudy Barna-Lloyd is Tackling Scleroderma Now!

The International Scleroderma Network thanks Trudy Barna-Lloyd for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-07-07. (Also see ISN Donors and Join or Donate)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 03-05-07. (Also see Pulmonary Hypertension)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 03/05/07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 03-05-07. (Also see ISN Donors)

Welcome Vera Lonergan, ISN New or Renewing Member

The International Scleroderma Network welcomes Vera Lonergan as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03-05-07.

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Gerald Mackler for his comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler. Posted 03-01-07. (Also see ISN Donations in L Loving Memory)

Go to ISN News: February 2007
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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