ISN Donation and Web Site News |
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| April 2007 |
| Actelion Launches Sure Steps Patient Education and Support Program |
 Actelion Pharmaceuticals US, Inc. is pleased to announce the launch of Sure StepsTM, a comprehensive support program for U.S. patients enrolled in the Tracleer Access Program (T.A.P.). Sure StepsTM free services include one-to-one attention from a Nurse Counselor. Reposted 04-30-07. (Also see: Bosentan/Tracleer ) |
| In Loving Memory of Beryl Blatt | | The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Beryl Blatt. Updated 04-26-07. (Also see: ISN Donations in Loving Memory ) | Anonymous (5)
Mr. and Mrs. Larry Belgrade
Carol and Lionel Brazen
Norman and Bobbie Bloch
Anna Marie Brodsky
Tricia Brouwers
Scott and Debbie Brown
Sharon & Aaron Chanowitz
Jerry Chern
Judy Clar
Marc and Randi Cohn
Matthew and Paula Cohn
Babe & Schellie Cutler
Digital Acoustics
Gene and Shelley Ensz
Avelina Friedman
George and Barbara Fuchs
David and Edith Gass
Joyce Guidice
Chuck, MaryLee and Casey Helander
Hochman Family
Dr. and Mrs. Walter Hofman
Myles Kagan | Joan Ladon
Lake Forest Food and Wine Specialties
Mr. and Mrs.Philip Lieberman
Lake Forest/Lake Bluff Chamber of Commerce
Fidel and Joyce Lopez
David and Deborah MacKenzie
Phyllis Malitz
Linda Martinat
Karen Meyer
Sean Mitus
Margaret O'Connor
Rosalie Ovson
Howard Pearlman
Kennedy Pierson
Gary Plotnick
Eric Robin
Ellen Rogin
Matt Schnider
Shain, Burney, Ross and Citron, Ltd.
Shelly Simms
Natalie and Fred Strauss
James Walsh
Paula J. Wierschem | | |
| Welcome Teresa McLaughlin |
| The International Scleroderma Network welcomes Teresa McLaughlin as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-20-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Kathy Baxter, Pledging New Member |
| The International Scleroderma Network welcomes Kathy Baxter as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-20-07. (Also see: Join or Donate and ISN Membership) |
| In Loving Memory of Maxine Gail Mackler |
| The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, who passed away on 6-29-03. Posted 04-17-07. (Also see:Donate in Memory of Maxine Gail Mackler and ISN Donations in Loving Memory ) |
Gerald Mackler
Pam and Adam Mackler
Sydney and Dylan Mackler |
Simone and Jeff Rosenblum
Allison and Jay Sackstein
Matthew and Madison Sackstein |
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| ISN 2nd Annual Scoring for Scleroderma Fundraiser by Lisa Bulman |
| The 2nd Annual Scoring for Scleroderma Women's Soccer Tournament to benefit the nonprofit International Scleroderma Network is off to a great start! The tournament is scheduled for Friday, June 22, 2007. Our indoor fields, located at the Canton Sports Plex, in Canton, Massachusetts have been donated! We are expecting at least 50 to 60 people to participate as well as other goods to be donated, such as water and soccer balls. We are all very excited and looking forward to this being another great success! Posted 04-12-07 by Lisa Bulman, ISN Fundraiser. |
| Welcome Melinda Peterson |
| The International Scleroderma Network welcomes Melinda Peterson as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-11-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Erin Fisher |
| The International Scleroderma Network welcomes Erin Fisher as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-11-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Arden Nagler |
| The International Scleroderma Network welcomes Arden Nagler as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-08-07. (Also see: Join or Donate and ISN Membership) |
| In Loving Memory of Carol Smith |
| The International Scleroderma Network thanks the Florida Fish and Wildlife Commission for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Carol Smith. Posted 04-06-07. (Also see: Donate in Memory of Carol Smith and ISN Donations in Loving Memory ) |
| Welcome Christien Dokter van der Werff |
| The International Scleroderma Network welcomes Christien Dockter van der Werff as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 04-03-07. (Also see: Join or Donate and ISN Membership) |
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| Scleroderma Awareness Bracelets, Now Available! |
| Scleroderma Awareness Bracelets are in stock and now available for $2.50 each (including shipping) from the nonprofit International Scleroderma Network (ISN). The teal silicone wristbands say "SCLERODERMA" on one side, and "SCLERO.ORG" on the other. Order them now through ISN Secure Shop ! Reposted 04-03-07. |
| Only 2 days left!! You're Invited to the Online Pampered Chef Party for Scleroderma, now until April 5th! |
| You're invited to an ONLINE Pampered Chef Party to benefit the nonprofit International Scleroderma Network, from now to Apr 5th. Simply click this link and order, and please send the link to all your friends, too! Reposted 04/03/07. (Also see: ONLINE Pampered Chef Party and Lisa Bulman, ISN Fundraiser ) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Reposted 04-03-07. (Also see: ISN Donors ) |
| Also see: Join ISN, ISN Members, and More ISN News: March 2007. |
