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June 2007 ISN News

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Adam Mackler for his comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, who passed away on 6-29-03. Posted 06-27-07. (Also see Donate in Memory of Maxine Gail Mackler and ISN Donations In Loving Memory)

ISN 2nd Annual Scoring for Scleroderma Fundraiser by Lisa Bulman

The 2nd Annual Scoring for Scleroderma Women's Soccer Tournament to benefit the nonprofit International Scleroderma Network was another huge success! I am not sure of the exact amount that was raised because donations are still coming in, but it is somewhere around $4,000! There were 40 women in the tournament plus volunteers who made this a success. The women were split into five teams and each team played four twenty-five minute games. Registration began at 6:30 and the first games kicked off at 7:30. Our referees, Tony and Igor, gave up their Friday night to donate their referee skills on the fields as well. We had awesome raffle prizes donated and every player received a gift bag of donated items as well. The Canton Sports Plex generously donated the fields again this year. American Acoustical Contractors,Franklin Sports, Dick's Sporting Goods, Bank of Canton, Barrowsville Station Liquor Market & Deli, Brockton Rox, C. Verc Inc., Elegant Accents, Elite Health & Fitness, New England Revolution, Six Flags New England, Somersault Gymnastics Center, Town Spa and Water Country generously donated items such as admission passes, game passes, gift cards, items for our raffle or gift bags (soccer balls, shin guards, tshirts, frisbees, coupons)! Thank you to all of these contributors and to my friends and family who helped along the way and the night of the tournament! Without your contributions and help this year's tournament would not have been a success! Posted 06-25-07 by Lisa Bulman, ISN Fundraiser.

In Loving Memory of Floyd Blatt

The International Scleroderma Network thanks Digital Acoustics for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Floyd Blatt. Posted 06-18-07. (Also see Donate in Memory and ISN Donations In Loving Memory)

Raising Scleroderma Awareness in June 2007!

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 06-28-07. (Also see ISN Secure Shops)

Jose de Carlos
Lisa Cogan
Candace Gillette
Mary Hardeman
Claudia Hilburn
James Kim
Michele Koenig
Dana Meglino
Darlene Mondello
Lacy Morton
April Quate

In Loving Memory of Janet Philips

The International Scleroderma Network thanks the following people for theircomprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Posted 05-31-07. (Also see ISN Donations In Loving Memory)

Lynn Cochran
Gene and Shelley Ensz
Michele Forte
Martha Glew
BriAnn Hill
William and Jean Hoffer
Katrina Trask Nursery School
Miranda Koss
Paul Krebs
Amy Rosoff
William Stark
Lawrence Zeides

U.S. Morphea Registry and DNA Repository

First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Posted 06/04/07 (Also see Morphea)

Go to ISN News: May 2007
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

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