ISN Donation and Web Site News |
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| June 2007 |
| In Loving Memory of Maxine Gail Mackler |
 The International Scleroderma Network thanks Adam Mackler for his comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, who passed away on 6-29-03. Posted 06-27-07. (Also see: Donate in Memory of Maxine Gail Mackler and ISN Donations in Loving Memory ) |
| ISN 2nd Annual Scoring for Scleroderma Fundraiser by Lisa Bulman |
 The 2nd Annual Scoring for Scleroderma Women's Soccer Tournament to benefit the nonprofit International Scleroderma Network was another huge success! I am not sure of the exact amount that was raised because donations are still coming in, but it is somewhere around $4,000! There were 40 women in the tournament plus volunteers who made this a success. The women were split into five teams and each team played four twenty-five minute games. Registration began at 6:30 and the first games kicked off at 7:30. Our referees, Tony and Igor, gave up their Friday night to donate their referee skills on the fields as well. We had awesome raffle prizes donated and every player received a gift bag of donated items as well. The Canton Sports Plex generously donated the fields again this year. American Acoustical Contractors,Franklin Sports, Dick's Sporting Goods, Bank of Canton, Barrowsville Station Liquor Market & Deli, Brockton Rox, C. Verc Inc., Elegant Accents, Elite Health & Fitness, New England Revolution, Six Flags New England, Somersault Gymnastics Center, Town Spa and Water Country generously donated items such as admission passes, game passes, gift cards, items for our raffle or gift bags (soccer balls, shin guards, tshirts, frisbees, coupons)! Thank you to all of these contributors and to my friends and family who helped along the way and the night of the tournament! Without your contributions and help this year's tournament would not have been a success! Posted 06-25-07 by Lisa Bulman, ISN Fundraiser.
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| In Loving Memory of Floyd Blatt |
| The International Scleroderma Network thanks Digital Acoustics for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Floyd Blatt. Posted 06-18-07. (Also see: Donate in Memory and ISN Donations in Loving Memory ) |
| Welcome James Kim |
 The International Scleroderma Network welcomes James Kim as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 05-31-07. (Also see: Join or Donate and ISN Membership) |
| Raising Scleroderma Awareness in June 2007! |  The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 06-28-07. (Also see: ISN Secure Shops ) | Jose de Carlos
Lisa Cogan
Candace Gillette
Mary Hardeman
Claudia Hilburn
James Kim | Michele Koenig
Dana Meglino
Darlene Mondello
Lacy Morton
April Quate | | |
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| U.S. Morphea Registry and DNA Repository |
| First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Posted 06/04/07 (Also see: Morphea ) |
| Welcome Wai Sum Yuen |
| The International Scleroderma Network welcomes Wai Sum Yuen as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 05-31-07. (Also see: Join or Donate and ISN Membership) |
| Also see: Join ISN, ISN Members, and More ISN News: May 2007. |
