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August 2007 ISN News

In Loving Memory of Janet Philips

The International Scleroderma Network thanks Jason and Lisbeth Zeides comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Posted 08-28-07. (Also see ISN Donations In Loving Memory)

Raising Scleroderma Awareness in August 2007!

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 08-28-07. (Also see ISN Secure Shops)

Rebecca Bouchard
Debra Early
Jaxs Finlay
Carol Foltz
Kristi Ford
Gina Hall
Paula Henderson
Donna Hoffman
Fred Hoffman
Renee Johan
A. L. McGee
Jason and Catherine McWilliams
Ruth Pyne

Autoimmune Disease? Get Paid for Your Antibodies!

Access Biologicals' Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Posted 08-20-07. (Also see Antibodies)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 08-20-07. (Also see Pulmonary Hypertension)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 08-20-07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

U.S. Morphea Registry and DNA Repository

First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Posted 08-20-07. (Also see Morphea)

In Loving Memory of Carolyn Caro-Butterfield

The International Scleroderma Network thanks Jason and Catherine McWilliams for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Carolyn Caro-Butterfield. Posted 08-16-07. (Also see Donate in Memory and ISN Donations In Loving Memory)

In Loving Memory of Janine Wozniak

The International Scleroderma Network thanks Tara Brown and Michael Wozniak for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janine Wozniak. Posted 08-16-07. (Also see Donate in Memory and ISN Donations In Loving Memory)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 08-16-07. (Also see ISN Donors)

A.L. McGee is Tackling Scleroderma Now!

The International Scleroderma Network thanks A. L. McGee for tackling scleroderma now with a donation for scleroderma research! Posted 08-16-07. (Also see Join or Donate and ISN Research Donors)

2007 Scoring for Scleroderma!

Scoring for Scleroderma Women's Soccer Tournament 2007The nonprofit International Scleroderma Network thanks the tremendous Scoring for Scleroderma fundraising team, led by ISN Fundraiser Lisa Bulman, for their comprehensive and research donations from the Second Annual Scoring for Scleroderma Women's Soccer Tournament, held in Canton, MA on July 22, 2007. Posted 08-02-07. (Also see Lisa Bulman, ISN Fundraiser)

Bill Alexson
Doug Allen
American Acoustical Contractors
Barrowsville Station A&E of Norton, Inc.
Susan Beardsworth
D. Bilodeau
Scott Breen
Brockton Rox
Lisa Bulman
C Verc Inc.
Penny DiBassio
Dick's Sporting Goods
Elegant Accents
Elite Health and Fitness
Healing Touch Massage Clinic
Rita Kerwin
Hillary Librot
Marlene Maceachern
Anna Manto
Paul McNiff
Tracy Miller
Mary Nickerson
NE Revolution
Gay O'Hanon
Elsie Plumer
Pearl Rogers
Robert Simms
Six Flags NE
Somersault Gymnastics Center
Dave Sousa
Mary Stevens
Town Spa
Water Country
Web Corp.

Go to ISN News: July 2007
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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