The International Scleroderma Network thanks Jason and Lisbeth Zeides comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Posted 08-28-07. (Also see ISN Donations In Loving Memory)
The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 08-28-07. (Also see ISN Secure Shops)
A. L. McGee
Jason and Catherine McWilliams
Access Biologicals' Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Posted 08-20-07. (Also see Antibodies)
Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 08-20-07. (Also see Pulmonary Hypertension)
Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 08-20-07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )
First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Posted 08-20-07. (Also see Morphea)
The International Scleroderma Network thanks Jason and Catherine McWilliams for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Carolyn Caro-Butterfield. Posted 08-16-07. (Also see Donate in Memory and ISN Donations In Loving Memory)
The International Scleroderma Network thanks Tara Brown and Michael Wozniak for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janine Wozniak. Posted 08-16-07. (Also see Donate in Memory and ISN Donations In Loving Memory)
The nonprofit International Scleroderma Network thanks the tremendous Scoring for Scleroderma fundraising team, led by ISN Fundraiser Lisa Bulman, for their comprehensive and research donations from the Second Annual Scoring for Scleroderma Women's Soccer Tournament, held in Canton, MA on July 22, 2007. Posted 08-02-07. (Also see Lisa Bulman, ISN Fundraiser)
American Acoustical Contractors
Barrowsville Station A&E of Norton, Inc.
C Verc Inc.
Dick's Sporting Goods
Elite Health and Fitness
Healing Touch Massage Clinic
Six Flags NE
Somersault Gymnastics Center
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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