ISN Donation and Web Site News |
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| August 2007 |
| In Loving Memory of Janet Philips |
| The International Scleroderma Network thanks Jason and Lisbeth Zeides comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janet Philips. Robertson Funeral Home Obituary for Janet Philips. Posted 08-28-07. (Also see: ISN Donations in Loving Memory) |
| Raising Scleroderma Awareness in August 2007! | | The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 08-28-07. (Also see: ISN Secure Shops) | Rebecca Bouchard
Debra Early
Jaxs Finlay
Carol Foltz
Kristi Ford
Gina Hall
Paula Henderson
| Donna Hoffman
Fred Hoffman
Renee Johan
A. L. McGee
Jason and Catherine McWilliams
Ruth Pyne | | |
| Welcome Gillian Doxzon |
| The International Scleroderma Network welcomes Gillian Doxzon as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 08-25-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Sheryl Doom |
| The International Scleroderma Network welcomes Sheryl Doom as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 08-25-07. (Also see: Join or Donate and ISN Membership) |
| Autoimmune Disease? Get Paid for Your Antibodies! |
| Access Biologicals’ Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Reposted 08-20-07. (Also see: Antibodies) |
| Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 08-20-07. (Also see: Pulmonary Hypertension) |
| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 08-20-07. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
| NIH: Now Enrolling for Family/Twin Study |
| Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 08-20-07. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics ) |
| U.S. Morphea Registry and DNA Repository |
| First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Reposted 08-20-07. (Also see: Morphea) |
| In Loving Memory of Carolyn Caro-Butterfield |
 The International Scleroderma Network thanks Jason and Catherine McWilliams for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Carolyn Caro-Butterfield. Posted 08-16-07. (Also see: Donate in Memory and ISN Donations in Loving Memory) |
| In Loving Memory of Janine Wozniak |
| The International Scleroderma Network thanks Tara Brown and Michael Wozniak for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Janine Wozniak. Posted 08-16-07. (Also see: Donate in Memory and ISN Donations in Loving Memory) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Reposted 08-16-07. (Also see: ISN Donors) |
| A.L. McGee is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks A. L. McGee for tackling scleroderma now with a donation for scleroderma research! Posted 08-16-07. (Also see: Join or Donate and ISN Research Donors) |
| Welcome Carol Foltz |
| The International Scleroderma Network welcomes Carol Foltz as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 08-16-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Marianne Vance |
| The International Scleroderma Network welcomes Marianne Vance as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 08-16-07. (Also see: Join or Donate and ISN Membership) |
| 2007 Scoring for Scleroderma! |  The nonprofit International Scleroderma Network thanks the tremendous Scoring for Scleroderma fundraising team, led by ISN Fundraiser Lisa Bulman, for their comprehensive and research donations from the Second Annual Scoring for Scleroderma Women's Soccer Tournament, held in Canton, MA on July 22, 2007. Posted 08-02-07. (Also see: Lisa Bulman, ISN Fundraiser) | Bill Alexson
Doug Allen
American Acoustical Contractors
Barrowsville Station A&E of Norton, Inc.
Susan Beardsworth
D. Bilodeau
Scott Breen
Brockton Rox
Lisa Bulman
C Verc Inc.
Penny DiBassio
Dick's Sporting Goods
Elegant Accents
Elite Health and Fitness
Healing Touch Massage Clinic
Rita Kerwin
Hillary Librot | Marlene Maceachern
Anna Manto
Paul McNiff
Tracy Miller
Mary Nickerson
NE Revolution
Gay O'Hanon
Elsie Plumer
Pearl Rogers
Robert Simms
Six Flags NE
Somersault Gymnastics Center
Dave Sousa
Mary Stevens
Town Spa
Water Country
Web Corp. | | |
| Welcome Cheryle Miller |
| The International Scleroderma Network welcomes Cheryle Miller as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 07-25-07. (Also see: Join or Donate and ISN Membership) |
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