ISN Donation and Web Site News

Archives 2007: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

September 2007

Autoimmune Disease? Get Paid for Your Antibodies!

Access Biologicals’ Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Reposted 09-25-07. (Also see: Antibodies)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 09-25-07. (Also see: Pulmonary Hypertension)

SCOT Trial: Open Enrollment, 2005-2008

SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 09-25-07. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 09-25-07. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

U.S. Morphea Registry and DNA Repository

First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Reposted 09-25-07. (Also see: Morphea)

Albert Herrmann is Tackling Scleroderma Now!

The International Scleroderma Network thanks Albert Herrmann for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 09-25-07. (Also see: Join or Donate and ISN Donors)

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks Adam Mackler and Family for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, "the strongest woman we have ever known", who passed away on 6-29-03. Posted 09-25-07. (Also see: Donate in Memory of Maxine Gail Mackler and ISN Donations in Loving Memory)

Raising Scleroderma Awareness in September 2007!

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 09-25-07. (Also see: ISN Secure Shops)

Amy Clark
Jason Ford
Debra Gucciardo
Elizabeth Hannig

Jacquelyn Noll
Jordana Novotny
Marco Villegas

09-28-07: Bogotá, Columbiana

(Español/Spanish) Asociación Colombiana de Esclerodermia Nuestra proxima reunion se celebrara el Viernes 28 de Septiembre de 2007 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 09-12-07.

Welcome Elizabeth Hannig

The International Scleroderma Network welcomes Elizabeth Hannig as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 09-12-07. (Also see: Join or Donate and ISN Membership)

Welcome Jacquelyn Noll

The International Scleroderma Network welcomes Jacquelyn Noll as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 09-07-07. (Also see: Join or Donate and ISN Membership)

Actelion Pharmaceuticals is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Reposted 09-04-07. (Also see: ISN Donors)