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October 2007 ISN News

Scleroderma Webcast with Dr. Art Theodore, BUMC

Scleroderma Webcast Replay. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don't want to miss this special presentation. Posted 10-30-07. PatientPower. (Also see What is Scleroderma?)

In Loving Memory of Dr. Ruth McCormick Nerlich

The International Scleroderma Network thank the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Dr. Ruth McCormick Nerlich. Posted 10-30-07. (Also see Donate in Memory of Dr. Ruth McCormick Nerlich and ISN Donations In Loving Memory)

Harry Bederian
David Covell
Sabine Foster
Lancaster Flooring, Inc.
Brian & Andrea McKinnon
Agnes Pasco

Welcome Serena Justis, ISN Blogger

Serena Justis: ISN Blogger. I am honored to be offered the opportunity to be a blogger here at ISN, home of the most beautiful, caring, supportive, compassionate group of people I have ever had the pleasure of knowing. I only hope my blogging can hold a candle to Barbs Lowe. If I can make you smile then I have done my job. If I can make you laugh then I have done my job well. Posted 10-30-07.

Webcast Tue, Oct 30th, Boston University School of Medicine

Scleroderma Webcast! You are invited to attend a Scleroderma webcast Tuesday, October 30, 2007 from 12:00 pm— 1:00 pm Central Time at www.patientpower.info. You can listen live, and call in live at 877.711.5611 or 877.711.5211. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don't want to miss this special presentation. Call in with your questions live! Posted 10-29-07. PatientPower.

Raising Scleroderma Awareness in October 2007!

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 10-29-07. (Also see ISN Secure Shops)

Jennifer Gutierrez
Michele Hanes
Michele Maki
Michele Marron
Kiyoshi Nakazawa
Lee Overton
Joyce Ricker
Josh Romero
Stephen Sandman
Penni Strait
Ray Valenzuela

In Loving Memory of Bobby Fell

The International Scleroderma Network thanks Kristy Dempsey for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Bobby Fell. Posted 10-25-07. (Also see ISN Donations In Loving Memory)

In Loving Memory of Marcel Rochette

The International Scleroderma Network thanks Barbara Rochette for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Marcel Rochette.who passed away October 17, 2006. Posted 10-23-07. (Also see ISN Donations In Loving Memory)

In Loving Memory of Dr. Ruth McCormick Nerlich

The International Scleroderma Network thanks Sabine Foster for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Dr. Ruth McCormick Nerlich. Posted 10-23-07. (Also see Donate in Memory of Dr. Ruth McCormick Nerlich and ISN Donations In Loving Memory)

In Loving Memory of Margaret Tellekson

The International Scleroderma Network thanks Nancy McGlamery for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Margaret Tellekson. Posted 10-17-07. (Also see Donate in Memory of Margaret Tellekson and ISN Donations In Loving Memory)

Autoimmune Disease? Get Paid for Your Antibodies!

Access Biologicals' Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Posted 10-15-07. (Also see Antibodies)

Pulmonary Hypertension Registry of Scleroderma by SCTC

Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Posted 10-15-07. (Also see Pulmonary Hypertension)

NIH: Now Enrolling for Family/Twin Study

Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Posted 10-15-07. (Also see Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics )

U.S. Morphea Registry and DNA Repository

First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Posted 10-15-07. (Also see Morphea)

In Loving Memory of Maxine Gail Mackler

The International Scleroderma Network thanks the Howard and Rita Sackstein for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, who passed away on 6-29-03. Posted 10-15-07. (Also see Donate in Memory of Maxine Gail Mackler and ISN Donations In Loving Memory)

ISN Sclero Live Chat: Sun, Oct 14th, 6pm PST (9pm EST)

Sclero Forums Live Chat! You are all invited to Sclero Forums Live Chat! Our chat time this week will be as follows: Chat #1: Sunday, October 14th @ 6PM PST (9PM EST; 11AM Monday in Australia.) Posted 10-10-07. (Also see Erin Eton: ISN Chat Host and Sclero Forums)

In Loving Memory of Sheila Hitchcock

The International Scleroderma Network thanks Shelda Lenetz for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Sheila Hitchcock. Posted 10-10-07. (Also see Donate in Memory of Sheila Hitchcock and ISN Donations In Loving Memory)

ISN Sclero Chat: Sunday, 10/07/07, 9:00 PM EST

ISN Sclero Chat! The next ISN Sclero Live Chat, for registered members of Sclero Forums, will be held at 9pm EST (8PM CT), in Sclero Forums (see Chat link in upper right of each page). Posted 10-05-07. (Also see Sclero Forums and Erin Eton: ISN Sclero Chat Host)

In Loving Memory of Jeanette Heidelberg

The International Scleroderma Network thanks Mary Flikke for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Jeanette Heidelberg. Posted 10-05-07. (Also see Donate in Memory and ISN Donations In Loving Memory)

Allyson Kilburn is Tackling Scleroderma Now!

The International Scleroderma Network thanks Allyson Kilburn for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 10-05-07. (Also see Join or Donate and ISN Donors)

Erin Eton: ISN Sclero Chat Host

Erin Eton: ISN Sclero Chat Host. I am excited about being the ISN's first Sclero Chat Host! I will be launching the chat initiative this week, with our first Sclero Chat to be held tomorrow, October 2nd, in Sclero Forums (click on the Live Chat link on the top of each page.) We will begin with just casual chats and later on, after we get our system refined, we will be inviting special guest speakers. Please let me know if you'd like to become an ISN Chat Host, too! Posted 10-01-07. (Also see Sclero Forums and Erin Eton)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09-04-07. (Also see ISN Donors)

Go to ISN News: September 2007
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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