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| October 2008 ISN Donation and Website News |
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| Venezuela Revista: Esclerodermia y Algo Mas (FLASH Document) —Gratis! |
 (Español/Spanish) En la Grupo de Apoyo de Venezuela contra la Esclerodermia: Revista:Esclerodermia y Algo Mas (FLASH Document) —Gratis! Esta es una publicación en español, 41 paginas.
(English) The Scleroderma Support Group of Venezuela (which is an affiliate of the ISN) has published a 41-page online FLASH magazine, in Spanish, Escleroderma y Algo Mas, which is free! Posted 10-29-08. |
| Tackling Scleroderma! |
| Tackling scleroderma through donations, memberships, books, brochures and awareness bracelets: |
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Shop/Donate |
| Running for SCLERO.ORG! |
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| Running for SCLERO.ORG: Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs ) Reposted 10/01/08. |
| Scleroderma Can Koozies Now Available! |
 Scleroderma Can Koozies! Keep your hands warm with cold pop cans, $2.50 each, minimum order of 4 ($10), please. Reposted 10/01/08. |
| In Loving Memory of Maxine Gail Mackler |
| The nonprofit International Scleroderma Network thanks Gerald Mackler for his donation in loving memory of Maxine Gail Mackler. Posted 09/15/08. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten
much worse and has spread... |
| Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me... |
| More New Stories: November 2008 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Keep on Surfing! |
| Go to ISN News: September 2008 |
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